Hi guys,
Im new to this forum and feeling really stressed/scared/fed up. Just looking for some advice and some friendly words!
Im 24, ive been struggling with my reproductive health since the age of 18. Ive had intermittent bleeding, painful periods, sciatica, crippling lower back pain (unable to stand for more than an hour), cold extremities among those that I can think of! Was put on the mini pill after a pap smear aged 19 and basically told to get on with it.
I was recommended to get the copper coil in Feb 2015, cue the worst two years of my life. Unbelievable pain during ovulation, periods, any time during the month! Mood swings, unbelievably bad back. During the first time (yes 1st)a nurse attempted to remove it, I was told I had a retroverted uterus and ‘shy’ cervix. They asked me if there had been any trouble getting it in, and I told them I had never been told it was retroverted.
The discomfort I experienced in them trying to remove it meant it took 3 attempts. My quality of life improved, but my back has been on and off terrible. As you can imagine by this point im sure its endometriosis. During a particularly bad time of back pain and bloating, I was referred for ovarian cancer blood tests, all came back fine. This was followed by an internal ultrasound. I have a polycystic enlarged right ovary – but they told me I shouldn’t feel its effects.
That was 6 months ago, its all been pretty quiet. But 3 weeks ago I woke up looking around 6 months pregnant. This is not particularly unusual, however it has continued for 3 and a half weeks. I could cry im so uncomfortable. I feel full as soon as I eat, I’m loosing weight (im 5ft 8 and 8 stone 6 so I don’t want to lose any), I’m just so tired, my chest hurts and feels tight, im burping constantly (very embarrassing at work), and I feel helpless. The doctor has referred me for a full round of bloods including the ovarian cancer marker again. Im having a bowel can and another internal scan.
I just don’t know what to do – I feel like im going insane but I know something is wrong. It could be SIBO, or endo or cancer I have no idea. Potentially a cyst that is taking up room in my stomach area? All I know is something is wrong, the chest pain is scaring me the most. However this could be indigestion?
Does anyone have any advice or similar stories? My bloods are on Wednesday and scans have not et come through the post.
Thanks so much for reading
Jess