Swollen lymph on left side of neck

Hi everyone,

my name is Charlotte and over the last few weeks I have been reading some posts on here and I thought I would join in and try and get a bit of reassurance/stories from other users.

Around 3 weeks ago I went to the doctors because I had 2 lumps on the left side of my neck, one hard and one quite soft, located directly underneath; my doctor ordered blood tests which have come back normal except for high bilirubin and low globulin which are being repeated in a month (full blood count, urea and electrolytes etc - don’t think there were any Tumor marker tests) and she also booked me in for an ultrasound which is next Tuesday. But I am really struggling to think of anything positive that could come from hard lymph with no other signs of infection, when tonight I was having a feel and noticed another node on the right side of my neck and I have gone into total melt down. I am on the verge of a panic attack, I’m terrified of dying and leaving my child and baby and I can only think of the worse. Positive stories will help or anyone in the same boat who can advice me. I know I can’t do anything to stop this but I can’t help but feel ‘dirty’? With these hard lumps in my neck, I just want them to go away. I will update as and when. Thanks for listening. 

  • Hi, I have a swelling on my left hand side of my neck. It's soft, not a lump as such just a swelling. I haven't been ill or had any signs of infection. I'm absolutely terrified. I have two little boys 2 and 3, and I'm so scared I'm going to be diagnosed with cancer 

  • My lymph node is not soft, I do think that is changes in size slightly (although it's hard to rely on touch alone). I am aware that these nodes are sensitive to being prodded and poked so I have avoided doing so.  I will be thinking of you at 6pm, it's good to hear that the ultrasound went well, did the radiologist provide some feedback at the appointment you attended? 

    xx

  • Hi Sophie

    I'm also feeling very scared but I'm trying to distract myself as much as I can. Do you have an ultrasound booked or an appointment with ENT? I guess we are all here for each other and that's so important and that we can reach out to one another  as often as needed. Xx

  • Hi, it's such an awful feeling isn't it. I think I'd rather know than being in the dark about it. Yeah I have an ultrasound, I was referred Monday so not sure when I'll get the actual appointment. Have you had an appointment through? X

  • Hey 

    thanks for getting back to me! I've noticed mine changes size alot when I touch it too much it goes from being really soft and Mobile to quite hard when I keep pestering it. I've had this node come up for years when I get sick but this time my heads gone into overtime. The radiologist said it looks perfect was in the normal range just slightly bigger than my others. That it would almost be too small to biopsy but that's why I'm talking about today if there's any chance for it to be done! I really hope you're ok, this anxiety is so worrying an awful worst I've ever felt in my life xx 

  • Have you had any tests done? Please don't be worried and try think as positive as you can I'm really not doing good either! it makes you appreciate your life so much more doesnt it? Really sending you my thoughts xx 

  • Hopefully you will feel more reassured after the appointment, it sounds like promising news from the ultrasound. 

    I have never noticed this particular lymph node before and my GP suggested waiting and watching for 3 weeks before referring me to the 2 week pathway. He was quite reassuring however the ENT (telephone appointment) used language like 'ruling out anything sinister' and that sent me into overdrive. Is your raised lymph lower or upper neck? Xx

  • I have an ultrasound a week tomorrow and I honestly feel completely overwhelmed with anxious thoughts, not all the time but when I allow myself too.  I've downloaded an audiobook, listened to podcasts, and keeping busy when possible.  If you are able to distract yourself it may help. I can't believe we have a bank holiday weekend approaching, for me that will be hard.  
    I will keep you and all of us, in my thoughts and prayers xx

  •  

    Hi Riley,

    I am delighted to hear that you can swallow again. It's amazing just what symptoms anxiety can add to the mix at times like this. I am glad to hear that you can lose yourself in your audiobooks, as having a distraction does help the time to pass.

    I shouldn't think that you'll have long to wait for an appoitment with ENT after you've had the ultrasound. Have you tried doing a jigsaw or some equally time wasting project over the holiday weekend? You can lose yourself in a project like this quite easily.

    Don't worry about the ultrasound itself. It is a very easy and straightforward procedure. I had one yesterday. My appointment was for 10.10am and I was home for 10.30am. I now have the worrying 10 day wait for results.

    I look forward to hearing from you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine 

    Did the radiologist provide any feedback during the ultrasound and did they aspirate the lymph node? 
    The wait is so hard, I've received a text to say that my ENT follow up will take place a week after the ultrasound, so another 2 weeks to go.  I'm trying to remain calm and distracted (sometimes easier said than done). I may tidy the garage as that's a task I've definitely put off since I dropped a 5 litre tub of emulsion over me and the garage shelves. I think that will no doubt keep me busy for a good few hours. How about you, do you have any projects on the go? I love a jigsaw so may see if I can borrow/buy one xx