Hi there ...

Oh my, please try not to look on things as bad your imagining ... we all feel totally scared at first .. and it's nateral to wonder if it will take us at some point .. 

Pain relief has come a long way, as have treatments ... please hold on till you see your Dr... l thought my time was up when first diagnosed... but that was nearly 2 years ago ... so yes feel scared but try not to think of all the worse case sinarios .... wer all here with you ..

We've all been where you are now ... sending you a vertual hug. . Chrissie xx

Hi Dover,

Welcome to the forum.

I am so sorry to hear about your tumour and how it is affecting you. I hope that the doctors will be able to reassure you that they can do something to help you when you see them tomorrow.

As Chrissie says, we all expect the worst when we are diagnosed at first, but fortunately, this seldom turns out to be the case.

Let me also reassure you that nobody should die in pain nowadays. Medication often needs to be adjusted as our condition progresses, but, providing that this is done, we should be able to manage it.

Do please keep in touch and let us know how you get on. We are always here for you.

I shall be thinking of you tomorrow and, saying a prayer that things are nowhere near as bad as you are thinking.

Kind regards,

Jolamine xx

Thank you, PET scan booked for Monday. Will try to be positive xx

Thank you x

Hi there ...

Will be thinking of you Monday. . I know it's a scary time ... l was the same waiting for tests...results ... and treatment ... it's not easy, but things have come along way ... not long now ...

Sending you a vertual hug .... Chrissie xx

Hi Dover,

How did you get on with your appointment last week - did the doctors commit to anything? I hope that you get some answers from your PET scan.

I shall be thinking of you next Monday.
Kind regards,

Jolamine xx

Hi, they are not committing to anything other than to say the tumour is obstructing my windpipe which meant they had to go via my voice box to send me to sleep for the biopsy. Seeing SALT tomorrow. x

Hi Dover,

I shall be thinking of you tomorrow and hope that all goes well.
Kind regards,

Jolamine xx

Just come back from hospital .My only chance is major surgery to remove all of my tongue and my voice box. May then need a feeding tube and permanent tracheostomy.

Has anyone else had this surgery.

Hi Dover,

Thank you for your update. This is certainly not the news we wanted to hear. I am sure that someone who has had this surgery will come along soon, but I just wanted to say how sorry I am.

Have you got a date for surgery yet? This may sound awful at the moment, but I'm sure that you will deal with it all. It's amazing what you can do when your back is up against thhe wall.

Dare I ask, how are you feeling about this diagnosis?

Thinking of you and wishing you the strength to get through this.

Kind regards,

Jolamine xx