Hiya, I'm wondering a year and half down the line what happened with your symptoms and how you are? 
I have the cobblestone throat, It started as patches initially then bumps appeared. I also have awful holes in my tonsils that appeared earlier in year and getting awful tonsil stones (gross I know), but on top of this I've also found a big growth on side of my tongue and noticed red dots on roof of mouth. 
I'm terrified, I got diagnosed with ME at the start of the year as I suffer with awful fatigue and intolerance to chemicals that got has got really bad in the last year. 
I went to see the dr and she was really dismissive, said she thought it was silent reflux causing the cobblestones but didn't explain the variety of things going on and Dr Google not overly helpful 

Hiya, I'm wondering a year and half down the line what happened with your symptoms and how you are? 
I have the cobblestone throat, It started as patches initially then bumps appeared. I also have awful holes in my tonsils that appeared earlier in year and getting awful tonsil stones (gross I know), but on top of this I've also found a big growth on side of my tongue and noticed red dots on roof of mouth. 
I'm terrified, I got diagnosed with ME at the start of the year as I suffer with awful fatigue and intolerance to chemicals that got has got really bad in the last year. 
I went to see the dr and she was really dismissive, said she thought it was silent reflux causing the cobblestones but didn't explain the variety of things going on and Dr Google not overly helpful 

Hi there.

So after doing research and waiting months and months to even try to be seen,  I thought my symptoms where cobblestone too because the photos online looked the same, I noticed orange bumps on the back of the throat and under my tongue... I think the look of my throat worried me more than the discomfort I've been in because the look of my throat worsened but the pain when it all started in January eased ish overtime... I'm in less pain but have more discomfort from time to time. I nagged to my hospital that I wanted this properly looked at since I've had this problem in Jan and luckily after I  was eventually  seen in October. It was a waist of a journey, I was there for 45mins to have a 5 min chat with the doctor I've had previous phone appointments with. He had a quick look in my throat with a light and said "nothing to worry about I've seen this all before." And basically said I have a small mucus retention cyst... 

never in my life have I heard of that or explained well on what it meant, so I've had to google this all on my own. Before being told my some what "final diagnoses/not" I've been prescribed with tablets from the very beginning...  I was on penicillin for so long as I thought I had allergies to my new cat but in July I was getting shortness or breath and light chest pains. July onwards  I was waiting to have my first call from the hospital, when I had my call from hospital I was prescribed with omeprazole, I thought it was working but overtime made more problems for me. I was prescribed with gaviscon on top to help and also had a Avamys nasal spray. I think being on so many tablets overtime has caused more harm than good,  the symptoms haven't gone completely, ill still get chest pains from time to time, my nose feels heavy if that makes sense and my glands still feel irritated from time to time. After my appointment I was done with it all... I said to myself I'm not taking anymore tablets because it's costing me so much and it's not got rid of my actual problems. So I decided to keep using  my nasal spray instead and the "cysts" as the doctor called it has gone down and that was the first time I noticed something has changed since the very beginning. I still get sore glands especially in winter months... I have no idea if I have a sinus problem or I'm now a prown to infections because of that one sore I had at the beginning of the year that may have caused this all to happen idk... 

My throat is still red as anything and I doubt that'll go back to normal. Again my glands get irritated easily which effects my ears a bit and my nose...

I'm still figuring this out on my own sadly as I've given up with my GP and hospital.  I've sadly ran out of my nasal spray which I'm lucky enough to get a repeat prescription but that's the only thing that has made a difference with the look of my throat which makes me think this whole thing could be down to sinus?? 
I hope this helps and sorry I've rambled aha! Stay safe! 
 

Jasmine x

Hey! Have you had any results with this? I'm experiencing very similar symptoms (cobblestones, tonsil stones, fatigue etc). Had it non stop since November. I've just had my bloods taken and waiting results x

I have all of these annoying and painful symptoms and it's been ongoing for about 6months now. I know it was ages away but did you get your bloods back? No dr will take it seriously. Thanks