Getting a diagnosis of throat/oral cancer

Hello,

I was wondering if someone can point me in the right direction.

In November 2018, I started with a persistent sore throat and the feeling of having something stuck in my throat like a lump. I also had a few patches on the back of my throat. I went to the GP where they said it was a simple sore throat and it will go on it’s own, did a strep throat test which was negative and concluded that the patches were cobblestone throat and again would go on there own.

After 2 weeks, I returned to the GP with the same symptoms where they referred me to an ENT specialist. In Dec 18. He examined me and I had the camera up my nose and down my throat and he said I was suffering with stress and anxiety causing the globus sensation and silent reflux. Prescribed me with some lansoprazole to go away with which haven’t made any difference whatsoever. I noticed a small white patch on my left tonsil and also a small white/yellow patch on the side of my tongue (no bigger than a taste bud at the moment). I have visited the dentist also and mentioned these but get the same response of “it’s no concern”.

I am still suffering with the same symptoms, I have been back to my GP and have been told to have a fasting blood test in 2 weeks time. Has anyone had any other experiences of being diagnosed with everything before reaching the actual diagnosis and how long did it take? I feel like I am banging my head against a brick wall when trying to explain how I feel and my symptoms.

I don’t know if it makes any difference but I did have high grade cells removed from my cervix in the summer of 2017 so now I don’t know if I am just putting 2 and 2 together  

Sorry for my ramble lol 

Parents
  • Hello there, 

    I’ve been experiencing similar symptoms like a lump on the left side of my neck around the middle, neck pain and ear pain as well and sometimes my jaw will hurt too.

    I’ve also been experiencing some dizziness, headaches and weakness in my arms and legs and always feel tired, I get tingling and pain in my shoulder/arms too. I’m not sure if it’s connected but I also get quite bad joint pain all over my body (ankles, fingers, wrists).

    I’ve not been to the doctors yet because I currently go to university but I’m away from home for another 3 weeks! I’m not sure what to do and I’m scared it could be something serious. I do tend to get quite anxious about these things and google has been no help as cancer keeps popping up.

    I’m only 19 and funnily enough im a medical student as well, this has really impacted my studies as I can’t seem to focus on anything else. It’s nice to know there are people in the same boat and such a huge support platform.

  • hiya,

    try to get to the drs and get it checked out. Do not google! I made that mistake and my stress and anxiety went through the roof and made my symptoms worse.

    i had my ultrasound on my throat today and they found nothing but the sonographer did say my lymph nodes in my neck are prominent so now to wait another week for the full results/report  

    Now to wait for another scope on the 18th April and see if that brings anything up. I am also waiting for an appt for a biopsy which seems to be taking a lifetime to come through.

    hope you get some answers soon 

  • Did you get your results? Hope your well. I am having the same sort of symptoms. Sore throat just on the left the feeling of something stuck in my throat 1 swollen lymph node for 12m that's been scanned once but the repeat scan they requested didn't happen because of covid and a really horrible earchache in the left ear. im currently on a 7 day antibiotic and if nothing helps then it will be a refurral to ent. 
    x

Reply
  • Did you get your results? Hope your well. I am having the same sort of symptoms. Sore throat just on the left the feeling of something stuck in my throat 1 swollen lymph node for 12m that's been scanned once but the repeat scan they requested didn't happen because of covid and a really horrible earchache in the left ear. im currently on a 7 day antibiotic and if nothing helps then it will be a refurral to ent. 
    x

Children
  • Hi all,

    reading through all of your posts I felt I had to join conversation.

    my husband is having similar symptoms as it all started about 6 weeks ago he had a sore throat which came on during a cold in February this year. His symptoms were really bad throat pain like a blister ear pain and all on the side of his head and neck, swollen throat and wanting too clear it all of the time too.He went to the doctors and had a telephone consultation with the doctor who gave him antibiotics and told to gargle with aspirin. Week later no change so called the doctor again, another call back with the nurse who gave him more antibiotics and the same the next week. The forth week I called and said he needed to see a doctor as covid 19 is around the doctors don't want to see him. Finally doctor called and got him in the same day for blood tests and referral to ent clinic asap. So consultant called the same day and my husband had an endoscopy on Monday but pain was so severe for him he now is waiting for a general anaesthetic for a closer look and a biopsy, as a white nodule shaped like a kidney bean as my husband describes it was seen. The consultant wasn't sure what it was so that's why he is going in for this. I have called the doctor today for pain relief as my husband can only eat soup or spaghetti and even water hurts, sleep is only for a few hours at a time for both of us. Blood results apparently were good no signs of cancer but can't rule this out as the consultant said. I am so anxious and understand all of your posts as people think you've just got a sore throat. I just want someone to give us answers and I know this will come in time, hope you all get answers soon too and I will update on my husband's diagnosis when I have answers.

    take care

  • Hi

    Just wondered if the antibiotics helped or if you got an ENT appointment?  I've had a 3.5cm lymph node in my neck for 7 weeks and now for the past 2 weeks have a lump on my tonsil, tonsil itself doesnt look swollen.  I have the ear pain, some jaw pain, throat not particularly painful but constantly clearing it, like a post nasal drip.  I have an appointment for a biopsy on 21 May, so fingers crossed.

    Pamela

  • Hi there 

     

    I've had issues with my throat since the end of Jan and it's now the middle of September and I still haven't had a diagnosis. I had a sore throat that lasted a week then it went, came back then it went again (no fever) but overtime it worsened, it was painful. The pain has moved to different parts of my throat which is strage. It only affects my glands and ears now not the back of my throat or tonsils... but sadly tonsils still look awful and overtime I've got orange spots at the back of my throat which I think is flamantion maybe cobblestone? 

    When my throat wasn't shifting I contacted my GP and I was prescribed with penicillin for tonsillitis. Didn't work so  I thought I had an allergy to my cat as I've never had a cat before so I was prescribed with fexofenidone (think that's how you spell it). It definitely helped my sore throat for couple of months but then I stopped taking them in the middle of July as I was experiencing chest pains and shortness of breath. A few days later from not taking them my throat came back sore but mainly my glands and ears that were affecting me. I've nagged to my gp countless times to be seen, I've probably contacted them about 7/8  times throughout  this year and because of covid I'm not classed as an amergnacy. Like what do you class as an amergnacy these days...?! 
    Back to July time I contacted my GP, had to wait for my call consultation and I said "I'm done, I want this seen ASAP, sick of paying for precriptions every months for nothing to work." The doctor said she will requested an appointment to see an ENT specialist at my local hospital.  
    I received a text to fill out an appointment sheet which was fully booked, so I had to wait a week and if they don't contact me I have to contact them. I contacted them and the receptionist said I'm on the waiting list,  it'll be some time till I get seen. I waited 3 weeks and contacted them again and mangaged to get a consultation call appointment. 

    25th August) the doctor doesn't think it's an allergy so I've scraped the tablets and I was told in my letter that the doctor would like to see me for a face to face consultation in two months. He prescribed me with Omeprazole and a bottle of gaviscon for my chest pains. I mangaged to book another appointment as I had some questions (14th sep) The  prescription is working to a point but soon after my call in sep I'm starting to feeling a lil off again with my glands and ears but I can't complain as  I've felt much worse months and months ago.  He doesn't think it's serious but I beg to differ.. you can't tell over the phone!! But the doctor said the same thing as the last call which was he'd see me within two months... I'm loosing my mind like why is it taking so long?!!  After my spat with my GP in July I was told by a doctor that because I'll be referred to see an ENT specialist now that they aren't going to see me... so I lost my crap and said "I've had this for far too long, I'd feel more at ease if it was just looked at already" so she sighs and said she'd book me in to be seen. The doctor said she couldn't feel anything abnormal, was booked in for some blood tests by a nurse and they came back clear.

    so now I'm at this stage id most likely be seen by the end of this year if I'm lucky... I'm only 24 and I feel like because of my age they aren't bothered 

     

    x

  • Hi all

    well my husband was diagnosed with stage 1 throat cancer. If it wasn't for the doctor finally referring him I doubt he would've found out so quick.

    His sore throat and ear pain went this is because the cancer had grown through the nerve in his throat apparently. 
    He had a 6 week intense course of Chemotherapy and Radiotherapy which made him very ill. He has a tube into his stomach for nutritional drinks as he couldn't eat. He had lost his taste too which is a side effect. Bloods done weekly and at the hospital daily.
    Now his treatment has finished and he hopes to get the all clear fingers crossed we should find out in October.

    Please don't loose hope just ask too get a second opinion as this is your right to.

    I do feel it is worse trying to get to see a doctor now than during lockdown and I do sympathise with people trying to get seen.

    I will update on his next consultant appointment to see if the cancer has gone.

    Take Care

  • Hi there 

     

    I'm so sorry to hear, I was hoping it wasn't anything serious but I'm glad he's been looked at probably and he is in the right hands. It's good that he was seen sooner rather than later and I hope the treatment has worked, fingers crossed. Wishing your husband all the best and I hope you both can recover from this,  keep fighting! <3 

     

    It's difficult trying to get seen... I had hoped I was seen by the ENT specialist already but with everything going on I've been pushed to one side and I feel like my age plays a big part in this. I'm trying to stay positive but I do have the fear that it is also throat cancer.  My current doctors have done everything they could so they've passed me on to see an ENT specialist at my local hospital so it's down to the hospital now. Everything is done via call consultations before a doctor decides to see you which I think is ridiculous because you can't be diagnosed over the phone... I've wanted my throat checked probably since March, so it's been a long wait when this all started in January. I'll be calling the ENT reception on  Monday to see if I'll get seen within a month like I was told but I have little hope. 
     

    Take care!