Swollen lymph nodes for almost two years

I've never posted anything hear before but I'm desperate for some advice 

In October 2017 I noticed a lump on the side of my neck with no other symptoms. I had had night sweats on and off for years but never thought anything of it until they started to happen a few times a week. I went to the gp who told me to come back in two weeks if the lump hadn't gone down. This happened for another four months until I finally said that I was either to be referred somewhere for an answer or I was going to make an official complaint.

I had an ENT appointment in September 2018 and by this point I had swollen lymph nodes in my armpit that were unbearably painful. The consultant sent me for an ultrasound biopsy and a CT scan to query lymphoma. The ultrasound didn't show anything so a biopsy wasn't performed and my CT did show enlarged lymph nodes but "not big enough to be worrying" 

I was already really frustrated because I wasn't getting any answers and my health was getting worse and worse. For context I'm at university in Scotland away from home (Ireland), working part time and volunteering so I really didn't need the stress. Not to mention how worried my parents were, and were not a rich family who could afford to fly back and forth all the time.

I had a haematology appointment in December where I was basically told that they didn't know what was wrong with me and they were ready to discharge me. Not only were all my original symptoms getting worse (I now had painful lymph nodes under both arms and in my neck) but I also started to show new symptoms. I had constant kidney infections that couldn't be treated, i was exhausted all the time, my appetite had gone, I was getting headaches everyday and I either had a fever or chills, no in between. I pretty much broke down and demanded to see another consultant which I did in January.

This consultant told me that my scan looked clear and pointed out things they would be looking for. He then booked me an appointment for April which was basically a "wait and see" kind of thing.

Fast forward over two months and my health has gone from bad to worse. On top of everything else, I become breathless quite easily and it feels like there is a lot of pressure on my chest. I know that this could be down to anxiety but I can't help but relate it to everything else. 

Everytime I go to a GP I'm told I'm being overdramatic (I have bipolar disorder which doctors already judge right away). I'm really panicking to the point where I might have to quit my job and uni because my health is so bad and I'm in a constant state of panic.

No one in my family, close and extended, has had cancer so we don't know how to deal with it. I do know that I feel like a complete hypochondriac all the time and I cry pretty much every day over it. Would there be a possible way to seek a second opinion without having to go private which I really couldnt afford? I'm running out of options and if it is cancer I at least want to be given the chance to fight it.

Thank you for reading, any other experiences or advice would be really appreciated so I don't feel so alone in this 

Parents
  • Hi, Eva, sorry to hear about your predicament, it can’t be easy for you. The good thing is the ultrasound didn’t show anything so there was no point in doing a biopsy. I’ve got lymphoma and had a painless lump in neck, armpit and at each side of my lungs. I had drenching sweats at night. I didn’t have any of the symptoms you have. The lymph nodes at my lungs were very enlarged and only then they made the decision to give me treatment. . A lot of people with lymphoma are put on watch and wait and can be on it for years without treatment. If it’s a slow growing lymphoma they don’t believe the treatment would benefit you but they do check you every few months. If I were you I’d go back to your GP and tell him you are not coping. At least you are on the system and they will keep an eye on you. Take care x

  • Hello it’s been 6 years so I don’t know if your still active I’ve had swollen lymph nodes in each of my groin my neck and by my ear for about 2 3 years now I’ve been doctors and I’ve had blood tests and I’m vitamin d and iron deficient I get pain in the one in my neck sometimes but for months I’ve had no pain I’m always tired also I dropped loads of weight drastically I’ve been able to put abit back on now but I used to be chunky and struggle to loose weight now I can eat loads and I hardly  put it on also I have another pea sized lump in the middle of my neck that I can move around I get bad rib pain that radiates to the back  which makes my lungs feel fragile I feel like doctors do t care they lies to me first saying I was getting the works when I only had a blood count 

  • Hello idk of you are still active how many lymph

    nodes do you have on your neck

    for years

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