Hi, Eva, sorry to hear about your predicament, it can’t be easy for you. The good thing is the ultrasound didn’t show anything so there was no point in doing a biopsy. I’ve got lymphoma and had a painless lump in neck, armpit and at each side of my lungs. I had drenching sweats at night. I didn’t have any of the symptoms you have. The lymph nodes at my lungs were very enlarged and only then they made the decision to give me treatment. . A lot of people with lymphoma are put on watch and wait and can be on it for years without treatment. If it’s a slow growing lymphoma they don’t believe the treatment would benefit you but they do check you every few months. If I were you I’d go back to your GP and tell him you are not coping. At least you are on the system and they will keep an eye on you. Take care x

Thank you so much for your reply. I'm still not quite at an exact diagnosis but it's more likely that I have lupus than lymphoma. it's still frustrating because I haven't been given an official answer even two years later but I'm a lot more forward with doctors now as I am sick of being messed about. Thanks so much, I hope you're doing well

Hi, I hope you are well at the moment. I have had the exact same symptoms since October last year and am still going round in circles trying to find out what is wrong but... I am a researcher so I have an idea that is currently being investigated. I started with painful 'lumps' in my left and right groin last year along with sweats, pain in my lower ribs on the right side, right side ear pain, vomiting and severe indigestion. I too was sent to haematology and didn't have lymphoma and also the radiologist wouldn't biopsy because the lymph nodes all looked structurally sound. I fought for a CT scan and found that I have swollen lymph nodes throughout my body. I was also sent to rheumatology but I didn't have lupus so discharged. I have been studying my own symptoms for the past year and a random news article pointed me in the direction of endometriosis. I am 40 years old and had a hysterectomy due to endometriosis when I was 36. I thought that as my womb had gone, so too would my endometriosis. Evidently not! I am now undergoing investigations for post-hysterectomy endometriosis and hopefully this one 'feels' right. Could you do me a favour and please keep updating and I will do the same? It just seems that there are other people with these symptoms and it seems that whatever condition(s) are affecting us they are hard to diagnose and someone should know that. I too have the awful tiredness forgot to say... it has been a painful and depressing year. Anyway, chin up - at least we are now 2 and not suffering alone.

Hi Sara, I hope your feeling okay!
I came to this forum because I have 2 painless lumps on the left side of my neck which I think are my lymphnodes. I went to the doctors in may, to which i was shrugged away and told it was just swollen glands. I then returned 2 weeks ago to the GP nurse to which she said they were very unusual. I have now been referred for a scan to which I am waiting for the appointment for. My bloods are all clear and I don't have a temperature but I have had these lumps for nearly a year now. On a seperate note I have been going back and forth to the GP with pain in my lower abdomen. It was originally thought to be polysistic ovaries however with normal hormone bloods and a clear ultrasound scan it cannot be this. We are now going down the route of endometriosis and I am on a very long waiting list for some form of scan to determine if this is the cause. I never thought about linking the two together but as you have mentioned something about this, could this be the cause of my swollen lymph nodes? What did your doctor say, is there a link between the two? Also how was your diagnosis of endometriosis as it seems like a long process? 
 

Hi. I have had similar symptoms, left armpit lump, left collarbone lump and quite a few in my neck and jaw. I have been shoved to the side like most people with possible lymphoma. I have too been told that it could be lupus and a few other people I know was told the same thing and it turned out they had lymphoma. I've been suffering for around 2 years. Haematology are debating whether or not to discharge me as I have a ridiculously high esr. Just a constant waiting game. 

Hello, I have stumbled upon this chat whilst googling my systems (I shouldn't do) as it worry's me more!! I have serve health anexity. I have a lymph node above my left collar bone. It has only been there for 9 days I have had my Covid vaccine about 2 weeks ago. I have been to the doctors and they have sent me for bloods and said if they come back clear i will be sent for an ultrasound. I have frantic about it I feel so concerned and worried that it's something wrong. They explained it could be due to my Covid vaccine and to be honest I haven't felt well since my jab. I do not have any typical "sinister" systems such as night sweats etc. I just feel like I've got a cold etc. The node doesn't hurt and feels very movable and firm not hard. I know it's silly to worry when it all adds up in terms of an immune response to the vaccine but it's so hard to not over think. I usually wondered if anyone had similar effects after having the Covid vaccine. This chat brought me a little comfort reading the comments. Thank you 

Hello, I have stumbled upon this chat whilst googling my systems (I shouldn't do) as it worry's me more!! I have serve health anexity. I have a lymph node above my left collar bone. It has only been there for 9 days I have had my Covid vaccine about 2 weeks ago. I have been to the doctors and they have sent me for bloods and said if they come back clear i will be sent for an ultrasound. I have frantic about it I feel so concerned and worried that it's something wrong. They explained it could be due to my Covid vaccine and to be honest I haven't felt well since my jab. I do not have any typical "sinister" systems such as night sweats etc. I just feel like I've got a cold etc. The node doesn't hurt and feels very movable and firm not hard. I know it's silly to worry when it all adds up in terms of an immune response to the vaccine but it's so hard to not over think. I usually wondered if anyone had similar effects after having the Covid vaccine. This chat brought me a little comfort reading the comments. Thank you 

Hello!

I had my covid vaccine 2 weeks ago (moderna)

I'm 25 and a week ago noticed swollen nodes in my armpit, at least 2 or 3 near my collarbone and now 1 or 2 in the top of my breast closer to my armpit and chest.

I did worry at first as I've previously been for an ultrasound for discharge on the same side, no sign of anything suspicious.

But there have been a few articles about vaccines causing this type of lymph node enlargement, and specifically in relation to breast screening and breast cancer concerns. These are mainly American sites so it's understandable us in the UK are only just experiencing this, especially with the vaccines that have been in use longer over in the States.

The advice is to delay screenings until 8-10 weeks after your vaccine, and go to the doctors if they haven't gone down in 6 or more weeks, just for a check, as I will do as I'm only 25 and don't have access to screenings yet

I'm going to likely ring for advice first, either ask my GP or use 111 or similar on a time frame to keep an eye on.

I do have my 2nd dose in August so it's highly likely this will happen again, so will see what happens! It is causing periods of discomfort but I'm trying to believe it's just my immune system doing its job, and nothing more sinister whilst I wait for the weeks to pass before going for a check. Health anxiety has definitely heightened over the past year, my friend passed away at 25 of covid, so I think now I'm realising I'm not guaranteed old age, and every day is important, but its also important to live and not fear the worst case scenario all the time, but I know its hard with anxiety to do so.

Take care everyone x

Did this get resolved? Had booster 2 weeks ago and got swollen node above left collarbone, doctors don't seem concerned nor my Mom whose a nurse, lump moves and around size of peanut. Got bloods in two days, I suffer with chronic health anxiety, can't sleep or eat with worry.