Worried about lymphoma at 19 years old

Hello!

I am 19 years old and I’ve always been able to feel my lymph nodes as I’m quite thin etc. I had a new one swell up in my neck about 6 months ago and it’s stayed the size of my thumbnail I’d say- it’s moveable and soft. I also have one of a similar size in my groin but I remember having an ingrown hair at the time so I attributed it to that. I went to the Dr a few months ago and had a blood test which was all fine (apart from indications of an allergy although she never expanded upon that). 

the reason I’m scared is because every google site I read says the nodes go down eventually, yet the ones I’m concerned about stay enlarged even when there is no sign of infection. I went back to the Dr a week ago and had another blood test and a chest x- ray, then was called by the GP receptionist who said I need to make a non- urgent, routine appointment but the nearest one I could get was 2 weeks away! 

So I’m in a very stressed state right. I have no worrying symptoms, although I have been getting a sore neck/ back muscles but I think this is anxiety related. 

I’m worried that the doctor will suggest an ultrasound or biopsy at the next appointment, I’m in uni now and I really can’t cope with anymore waiting for test results, it is debilitating :( I’m also scared the tests indicate something bad and she said non- urgent just to avoid scaring me. 

 

Please help!

  • Hi there, Lula!

    I have been through this the last 6-7 months so I can understand what you re feeling. I have discovered my lymphs in the summer. Actually, I only felt one. After that, I told my mom who is a GP and she felt it to but she said it was small and moveable and she didn t worry. Like you, I googled a lot and read all this stuff about lymphoma and I made myself an appointment with a hematologist back to my city where I m studying now. I am 22. She could feel one more under my armpit and she sent me back for some blood tests and an eco. I have to mention that this app. I had was like 3-4months after discovering the first lymph, during this time, stressing so much over this and couldn't eat or sleep, lost a lot of weight, didnt have any energy left to even walk on the road! My mom back home did my blood tests and the people from the labs said I haven t been eating enough and drinking water, but apart from this, nothing was wrong with me. So  back to my hematologist... I repeated the blood tests, which improved, my white blood cells coming back to normal ( when I first had my blood tests ordered by my mom, they were really really low). But then she forced me to eat and drink water and apparently that improved my condition. The only thing I had was a bit of neutropenia. So i started to get tests on my own. X rays, 3 echos for my lymphs, 2 abdominal echos, one upper endoscopy ( which discovered a mild gastritis), endless dentists appointments and surgeons! eco for my breasts and the lymph under my armpit, gyns, dermatologists, you name it! they couldn't find anything suspicious or smt that could explain my lymphs. I had some swollen submandibular lymphs. I am also thin, like you. So, like I said, there was nothing they could find to explain them. I lost money because all of those were private and my mom has no clue about them, otherwise she would have sent me to psych! She actually threatened me. ha ha. So here I am, 7 months after this discovery, with no explanation and I am not so worried at the moment. I have accepted that this might be "normal" for me. My lymphs are around 18mm. I also have health anxiety and everything that comes up, I relate it to my lymphs. Btw, nobody wanted to biopsy them. Most of the doctors said it's nothing and only one of them, a surgeon, said I could take one out if i wanted, but to wait 6 more months. Besides, he also said he wouldn't be worried. So yes, some of us have big lymphs. I have done tests for many infectious diseases but nothing came up. Maybe it s a virus bugging my lymphs or maybe it s nothing. The good part is that most probably there is no lymphoma :) Also, I started to develop night sweats because of my anxiety... Because everything that was in my head, I started to develop symptoms that would fit the diagnosis. So you have to be careful with this. My opinion, there is nothing sinister going on. You can get an echo to put your mind at peace, but it's good to know that this is very common. If you look it up, you would see so many people with lymphs which never went down. Actually, 2 out of 3 of my echo doctors had too swollen lymph nodes! The ladies said they have ones that never went back down. For years. :) 

     

    Hope this helps you a bit with your anxiety 

  • Hi Anny, thank you so much for your reply! It’s definitely reassuring to know you’ve been through the same and can understand how stressful waiting is! I also have health anxiety and it comes back every now and then so I’m thinking I may go and see a counsellor. Also it’s fristarting for us when we explain our symptoms to friends/ family and they’re just like “it’s an infection “ or “don’t worry” when of course we will :( I’ll let you know how my appointment goes,I think if everything’s clear I’ll just try and move on with my life as I don’t want to get stuck in that cycle of testing and waiting when there are probably people out there with worrying symptoms more indicative of lymphoma who need the urgent appointments. Again thank you for your reply and I wish you all the best! 

  • Yes, this is the best you could do!

    Echo is easy and not invasive so everything will be done in 2-3 minutes. Please let us know how everything went, but I am pretty sure there will be nothing.

    Anxiety is tricky and can play with our minds. I also considered psychoterapy :)

    Wish you all the best and do not forget to drop by and give us your all clear!