Hi I'm 15 and I'm getting the exact same thing Should I be worried what did ur gp say???

Hi Jolamine,

Hope you are keeping well.

I am still waiting on a biopsy appointment. The mass they found is in my Abdominal Aorta. It kind of has a pulsating feeling to it. I have appointment with the specialist on 8th March but I really hope I get the biopsy appointment before as I think the 8th March appointment will be for results of the biopsy.

The lump I suspected below my left breast I got checked out by my GP and she said there is no lump and what I am feeling is just my ribcage so that was a slight relief.

Regarding the other main mass I am worried to death and extremly anxious is a understatement. I can't eat,sleep or do anything. I am trying my best to stay positive but it is so hard. I feel so alone and scared even though I have a really supportive and lovely family. I am constantly running to my phone and googling and I get more worried. I really hope and pray that its nothing serious or major. 

Do all people who have masses discovered have them biopsed. Does it mean that the specialist suspects cancer  thats why they have requested a biopsy or can they tell alot more about the mass. Do you have any trusted websites or statsics of what percentage of masses are proved to be benign after discovery and biopsy. 

I am so scared and I do not know what the hell to do. I just want to run away from this worry and escape but I can't. I have become severely depressed and extremely ill due to this dreaded wait. 

Sorry for the rant and long message and I hope you don't mind and can you please keep praying for me that it turns out to be something not serious or major.

Thank you,

Regards,

SholaR

Hi Shola,

I'm sorry to hear that you are still waiting for your biopsy. Since you have now received an appointment to see your consultant again on 8th March and, expect to have the results of your biopsy by then, why don't you contact your consultant's secretary to see what is happening? They are usually able to give you some indication of time frames.

I am delighted to hear that your GP didn't see anything untoward with your breast lump. I'm sure that this must have been a massive relief.  I am no expert on biopsies, but, as far as I know, all suspicious masses are biopsied. This helps to identify the type and grade of cancer if present.  I don't believe that you get these details from any other types of test. 

There are some reputable websites, but I would suggest that you are better avoiding these until you know exactly what you are up against, as it's impossible to look up anything reliably until you have an exact diagnosis. It is best to avoid the internet until you have these details to hand, as it will only scare you further and serve no useful purpose. Your consultant will be happy to give you contact details for some reputable sites which predict the statistics that you are looking for when you get your biopsy results.

It is only natural to feel so scared. Try to keep yourself busy to distract from the wait, which I know feels interminable at this stage. Why don't you phone our nurses? They might be able to give you answers to some of the important questions you have asked. They are available Mon-Fri from 9.00am-5.00pm and there is no charge for the call.

I  shall certainly keep you in my prayers and hope that whatever the problem is, it urns out to be manageable.

Please keep in touch.

Kind regards,

Jolamine 

Hi,

All went well - had a screening today and all normal. The thickened area has corrected itself.

yay!

gem

Hi Gem,

Many thanks for an update. This is fantastic news. I am so glad for you.

Kind regards,

Jolamine xx

Hi Jolamine,

I hope you are keeping well. Thought I would quickly update you on my health situation.

The mass that I had was actually in my abdomen area and I had my first biopsy in March from my neck Lymph Node. The results came back negative for cancer or anything else so my Hematologist Specialist sent me for more scans and sent me for another biopsy of the actual tumour in June which ended up being open laparotomy surgery and I was in intensive care for 2 days then in hospital for further 8 days. The results came back that I have MultiCentric Castlemans Disease which is a very rare disease. It's basically Benign Lymphoma. It acts same and looks the same hence why I was kept getting told it's most likely Lymphoma. I have been in and out of hospital as I have been so unwell with infections and as its effects my immune system I cant mix with people or anything like that. There is currently no cure for Castlemans Disease. They use cancer like treatments to see if they work its 50/50. Treatment options recommended have been Immunotherapy with steroids and if that fails it will be Chemotherapy and possibly radiation. No treatment has started yet. I am due to go back for another CT scan end of November so the specialists can see how the tumour is behaving and how its effecting my other affected lymph nodes & immune system.  The disease is so rare that my Hematology/oncology specialist team had never dealt or heard of it before so it's new to them and they are working and consulting with doctors in America whars best route of treatment as most patients are in states and there is on going research going on over there. I have been told my chances of getting Lymphoma/Kaposi Sarcoma & Leaukamia are extremely high and if treatment fails the disease would eventually turn into cancer. 

Please pray for me that everything goes fine and too plan.

Will keep you posted when I can. I have been really unwell and in hospital alot.

Thanks.

Hi Shola,

Thank you for the update. I am so sorry to hear of your journey since we last communicated. It sounds as if you have had a pretty awful time. At least you now know what you are dealing with. It is good news that this is benign. Here's hoping that your CT in November will show no change in how the tumour is behaving.

I do hope that your care team is getting some helpful information from the States and that treatment is successful. In the meanwhile, try to look at the positive aspects of this and not the negative ones. You will find it so much more helpful to cope with if you can look at it in this way.

I shall certainly be hoping and praying that everything goes to plan.. Do please keep me updated.

Kind regards,

Jolamine xx

Hi there, my girlfriend is experiencing the same thing, she has a a firm lump under her left breast, it also sits on her left rib cage. She has different size breasts and her left is the smaller of the two. I have read and seen on Tik tok other girls have had the same thing. I don't understand how this is so common but so hard to get help. If anyone can help us find a way to get help it would be deeply appreciated. We're both extremely worried and I just want to be able to help her. If anyone knows what this is called that would be an even greater help.

her symptoms include:

•weight loss

•tiredness

•feeling full after 2-3 bites of food

•pain in the lump itself

•difficulty breathing

•anemia

•costochondritis

•weakness

•the worst immune system in the world(I'm sure that one single bacteria could knock her out for weeks)

Did you find out what the lump was as I have same thing?

 charlie07070707  what did this turn out to be ? Hopefully all okay, I’ve similar 

 preocupada did you find out? I’ve got similar :(

 preocupada did you find out? I’ve got similar :(