Convinced I have cancer and terrified.

Hello

I need to talk to someone as I feel I am loosing my mind with worry.

In 2015 I lost my husband to colorectal cancer and I now think I have cancer too. I am a mother of three wonderful teenagers and I am terrified of leaving them with no parent at all and not seeing them grow up!

Christmas and New Year I felt perfectly well with no concerns. On 2 Jan all of a sudden I had terrible pain in my right hand side and it hasn’t gone away. The pain now is in my lower back too. What troubles me is that I have not had my bowels open properly for 3 weeks. The Dr put me on movicol which has done nothing. I had Senna which gave me a watery loss and very thin poo lick the shape of green beans!!!! I went to A&E and had an X-ray which confirmed I was full of poo. I then had an enema which didn’t work! I am passing wind so there is no complete blockage. I am booked to have an emergency colonoscopy Thursday 7 Feb and I am worried the prep won’t clean me out. I have had one prep and I have lost fluid, so the Dr has told me to take extra stools.

I feel well in myself, my bloods are ok and CA125 markers are within normal range. They did those as they thought the pain was from an ovary. 

I am crying myself to sleep at night and waking in sheer terror. I don’t know what to do or think. I have no one to talk to. People I mention it to say you are bound to be worried after loosing your husband but be positive. Thank you for listening. X 

  • Hi foxy

    So glad to hear the colonoscopy was clear - that’s great news! Hope you don’t mind me saying but you seem determined to put your ailments down to cancer.

    im glad they are investigating further but I would be amazed if you have pancreatic cancer. The symptoms you describe is more like gallstones - have you had your gallbladder checked?

  • I am simply terrified of cancer! The problem is I am torturing myself. Reading google just isn’t great! But I feel so unwell when I have been so well for many years. To all of a sudden have your bowels not work and be in pain in back, stomach and shoulder is a worry, especially when you are left very uncomfortable after eating. My gallbladder was removed about 10 years ago. I have read stories on YouTube of people having constipation and my symptoms and then having pancreatic cancer. 

    I am seeing the GP to discuss going forward. I am awaiting a date for a CT scan so hopefully that will give me answers. X

  • It’s understandable that you’re terrified of cancer, you’re experience of it justifies your feelings. However the worst thing you can do is google these things, everything in Dr Google is cancer, your’re feeding your anxiety by doing this.  I know it’s hard but try and stay away from it, there is not a computer system or algorithm in the world that is superior to actual clinical investigations. If you really want to go down that line then there is an on line diagnostic tool that doctors use, again I must stress that this tool is for guidance - with your symptoms pancreatic cancer doesn’t even hit the top ten. Gallstones, unsurprisingly comes up first, then Endometriosis, followed by heart attack (which you are not having) then diverticular disease of the colon, then appendicitis ..... I could go on but it shows that cancer is way down the list.

    It’s good that they are given you a CT scan as it will show them areas that the colonoscopy can’t, my diverticulitis did not show up in my colonoscopys but did on the CT scan. Hopefully this scan will happen quickly and then you get a diagnosis/treatment and allow you to get on with your life. 

    x

     

     

  • Hi, sorry you sound so worried, I had a ct colonoscopy with contrast  last July as I had lost st a few pounds and was absolutely terrified . Had to wait  2 weeks for result. However , I still had liw abdomen pain and was going round yo my back and really ached. I had an MRI if my back and hips and that was ok in august. But then I was getting irrattic heart beats and do it goes on. I started not sleeping well from the worry. And today I still only get a couple of hours a night because it all started with buzzing in feet and legs which ch u still have, I have had various blood tests. That was july and I had a lack of appetite. But started eating better in Aug and slept butvlosr another stone , so that makes clear stone and half. 

    And I weigh 8,8 now like bag of bones and allthey say is ive hot deoression ,have malnutrition and malabsorption and my stools are absolutely foul,  but I cannot believe it's all snxiety, I feel now ypthat I do have cancer sinewhere and it's give yo my brain as my vision give funny I feel do light headed snd fuzzy and feel absolutely shattered !   My memory  is not good , I keep firgetting  things and a feel out of touch with the world and petrified I will not fed out what's wrong befire they put me in a home for mental illness which I dobt have! ,   Help , welcome advice on how to tackle my doctors as they all look at screen and say same . 

  • Hi Trish

    i am so sorry to hear what you are going through. 

    I have had the ct scan and colonoscopy and bloods which are all fine. I am still in terrible pain and still impacted with faeces and the doctors are unable to help me shift it. I have tried all laxatives and sachets and they don’t work. No one has checked my stomach so I am having an endoscopy soon. However my doctor asked me if I am anxious and am I depressed. I said well do you class grieving for the loss of your husband through cancer anxiety? I said I am in pain and my bowels aren’t working. I said something is wrong and I need to empty my vowels o refer me to someone who can help. I now have to wait up to 18 weeks for a referral.

     

    have you just seen your GP Trish? Have you requested a referral to specialist. How much weight in total have you lost? Do you think you feel Dizzy etc because you feel weak? It’s awfuk worrying, I do feel I traumatised myself but only because I watched my husband suffer. 

    Please try your GP again and ask for a referral. Xx 

  • Hi I really having bad discomfort down below had blood test all ok just low in iron doctors gave me  valluim to calm me I wish you all the best 

  • Hello, I'm sorry I'm so late to this but I was looking at posts for my self. And I was wondering how you are doing now? Did you have your holiday with your family x

    I'm so sorry for your loss xxx

  • this sounds like me

     

    had a sharp pain in my right side upper tummy, about year ago, maybe more, since then everything has been going wrong, bowel movements all over the place, bloating etc 

     

    Its horrible 

     

    how you doing now?

  • Two years ago I had a sort of discomfort feeling in my right hip that had been coming and going.  I booked in to go to the doctors, but in the days that I waited for the appointemnt, I developed severe constipation.  It was Christmas time and the surgery had odd opening hours so I had to wait.  Eventually saw the doctors, worried sick, and they referred me on the two week pathway for oc=varian cancer.  Had the scan - nothing there, so referred for sigmoidoscopy.  Nothing there either.  However, the discomfort in stronger now but seems to be linked to wind.  Anyway, went for an ultrasound yesterday and the sonographer wanted to do a transvaginal scan which I refused. I know it might sound childish, but I needed time to prepare myself mentally for that and I was told it was just an abdominal scan for any issues with the bowel and a kidney scan for blood pressure medication.  The sonographer was snappy and moody.  I asked her if she could see anything and she snapped that she'd 'put it all in a letter for the GP'.  It has scared me to death but not sure if she was being horrible because I had refused to let her do the transvaginal scan (it is my body!) or because she could see something.  It was a horrible experience and has totally ruined my weekend.   Now worried sick that she could see something, which was why she was so insistent about having a transvaginal one.  However, she grumbled at the end that she couldn't even see my ovaries due to my tilted womb.  She spent ages on my right kidney and now I'm worried sick about that too.   Even worse, after the severe constipation two years ago, I have developed a fistula where gas passes into my vagina when I go to break wind.  I told my doctor and he burst out laughing and boomed 'no you haven't.  You'd have terrible infections one after the other.' But I know what;s happening to me.   Sometimes it all feels so helpess and I'm terrified.  Maybe the fistula is from a cancer but they won't even investigate.

  • Hi Lou

    Reading your posts is like me typing them.

    I had a positive FIT test last week and now am going for Colonoscopy on Tuesday. Terrified doesnt get close.