Hi.Ive not been well for 4mts cough bad throat etc had  heart scan chest scan had chest infection. That went then had pleurisy that went still poorly sent for lung cancer scan that came back clear but noticed a lump in my neck.1cm had that checked was told thyroid was enlarged  still poorly went hospital for a scan and biopsy but biospy not needed.4 lumps there now instead of one and the lumps on my collar bone are associated to problems with breast ..So waiting for boob scan now so there saying its not thyroid causing the problem .x

Hi there 

I have been reading posts for ages like this so thought I would tell my story so far. I developed a small pea size node behind my right ear in Dec I was sent for an urgent referral to ENT as I was feeling very lethargic too. I had a camera up my nose and into my throat and all was ok and was told as the node was tiny he suspected nothing. I have raised esr and crp markers in my blood and have done for several years which I have now been referred to rheumatology for as they suspect an auto immune condition with me. Since lockdown I noticed a bigger node in my neck on the left side. I haven't had any known infections or virus'. It's moveable soft to touch but it's bigger but some days feels smaller than others. I'd say it was 2cm maybe smaller on other days. I rang the doctor and have been referred for an urgent ultrasound. This was done on the 1st April but due to lockdown haven't been seen as of yet. Since then I have another three tiny nodes develop at the side of the bigger one. I have had a achey throat off and on since Xmas but not have developed a chesty cough however my daughter's has had one so I do suspect it's just that. I am just concerned it's something sinister although I have come to thinking that no amount of worrying will change or help my situation. I do have health anxiety too and rely heavily on Dr Google to self diagnose myself which is my downfall. All I want is the relevant tests to out rule cancer but it's very difficult at this time. I just don't understand why some days it's bigger than others but don't think it's grown much in the time I've detected it. I have a multitude of aches and pains all over my body but again due to sensitivity points I'm questioning if I have fibro or an auto immune condition. I have also has a raises rheumatoid factor result too. My worries have affected my day to day life and have found myself pushing my loved one away which isn't good. I am 37 a mother to three one being autistic so I'm very much needed and I just want to know what wrong with me so I can either get treated or move on without being in this awful limbo I am in. 

Sorry for the long post like I say I have read these posts for a long time so thought I'd share my story 

Thanks 

Thank you for your response. How old are you if you don't mind me asking. Must be awful for you to know it's returned. I have a painful left arm too but my right is also tender just not as bad I am sensitive in so many places. I don't have night sweats or weight loss just achey throat off and on. Just want to know what happening. This lympnode is a good size in my neck 

Thanks again 

Mind is painful and hurts often when u turn my head and moved around 

Thanks again 

On one of my visits to my haematologist who I see every 3 months, I did say to her that my neck is a bit sensitive, her answer was pain is good, lymphomas are not painful, she asked if I had a sore throat which I did at the time. That did relieve me a bit so maybe that's a good thing for you as it  may be your glands are doing a bit of overtime. Forgot to say, I did have a biopsy under my arm as well which I didn't know I had a lump there. Keep your eye on it to see if it comes and goes. I get fully checked when I go to the hospital, she checks all round my neck, my underarms, stomach and groin. The ct scan shows the staging of the lymphoma. 

Oh I was 65 when diagnosed, the majority of people in getting treatment when I went were in this older range. I have my fingers crossed for you 

Thank you didn't think glands could be felt in stomach ?? How was chemo for you? Life is hard isn't it :(

Was it non hodkins or Hodgkin's you were diagnosed with if you don't mind me asking. Just waiting for gp to call me as the hospital said the only way I'll be seen quicker is if ny doctor Calls them

Hi, I coped with chemo very well, just took it one month at a time, the medication they give you now help a lot. I had non Hodgkin and it was a rare form call Nodal Marginal Zone Lymphoma, the biopsy tells them which kind you have, there are many different types of lymphoma and they are treated slightly differently. The ct shows exactly where the enlarged nodes are, I was shocked to find it was all over me at the time and I think that why they decided to give me treatment. At the moment I am stage two and no treatment is needed at the moment. It very difficult to get your head round living with cancer but once you can accept it, it gets easier. I do get anxious going for my check ups but I feel better leaving the hospital. My appointment has just been cancelled and the call I got said I would get one in six months time which will make it 9 months since I've seen the doctor. It did worry me a bit, but as long I don't have the other symptoms I will cope with it. You are young try not to worry and just enjoy your children in this difficult time. I hope I havnt worried you more than you already are. I am a total wimp with illnesses but I got through this and I'm sure you will. The tests and waiting are the worst bit. But it may be nothing, just keep that in your head. Enjoy the sunshine xx

Yes I am trying to. Doc wants me to have bloods done Thursday and given me antibiotics as the node are sensitive but not all the time so we will see. Thank you for replying ️ wish you all the luck in the future take care

Take care as well, keep in touch and let me know how you got on, will keep my fingers crossed for you that it's just an infection and the antibiotics work for you. Have a lovely day x

Thank you :) I do have a bad feeling but worrying can't change it so I'm going to carry on as normal and try and look after myself so if it is sinister I stand a better chance of fighting it xx

Thank you :) I do have a bad feeling but worrying can't change it so I'm going to carry on as normal and try and look after myself so if it is sinister I stand a better chance of fighting it xx

Hi :) 

I've been lurking on here for a while, so thought I would jump in. 

I've a lymph node on the right side of my neck since February. It's movable, painless (although when it first came up it hurt when I moved my head a certain way) and roughly around 1cm. 

I went to the doctors when it first came up and she felt it was nothing sinister as I also had a cold and throat was inflamed. Weeks later, I got over my cold but node was still there so contacted the doctor (pandemic had started so it was done over the phone) who prescribed antibiotics as I was still having pain in throat and ear. Ear and throat pain has cleared up but yet node is still there.

I've also this weird itch (now going my google, a lymph node and itch dosen't look good) but I'm trying not to freak out and jump to conclusions too much about it as I've had this exact type of prickly itch around 3 years ago after a really stressful time, it had stayed around for a few months and then disappeared, there has been other stresses in my life this past few months, due to a family member being ill and then the stress of the pandemic so it could possibly be releated to that. (As the itch only really comes when I get panicky).

I'm gonna get in contact with the doctor and see what's best to do. My heart goes out to others who are worrying at this time as it really is so scary.

*Just editing to ad that I've had blood tests and all came back normal

Mine is a lot bigger a node that small my ent doc said not to worry but it's so hard isn't it. Have you had blood work done x

My blood work didn't show anything, I do get my bloods done every three months now. I'm not sure what they look for, maybe too many white cells or red cells, I'm not sure. My ESR under control atm so it gets checked as well. 

So your esr and crp levels were always raised. Yes its usually white blood cells I think as they collect in the nodes don't they 

Thanks for your reply Lisa. Yes I had bloods done and all thankfully came back normal.There has been Hodgkins Lymphnoma in my family, so when the node first came up, I was much more wary off it then I otherwise would have been. Like yours it seems to change slightly in size, but generally in or around 1cm. 

Its just the fear of the unknown isn't it. Google will basically tell us the worst, but then coming on here it's so much more reassuring. I've been itching all morning as I've been so anxious again but now that I've relaxed a bit this afternoon the itch has stopped.

I hope all works out positively for you :happy:

And you mate. Have you tried an anti instamine see if he takes the edge off. I just hate how my chest Is feeling today feel like I'm swollen when I swallow. I just hope I have an infection how old are you did you say x 

I'm 29. Yes, I usually take one in the morning and it calms  it down. Yes hopefully it is just an infection, it took nearly the full 10 day course of anitibiotics for my ear and throat to stop hurting but I've been feeling so much better since. (It just would have been nice if the lymph node had've went away too lol) 

Hopefully it will all be ok for us both life is worrying isn't it let me know how you get on 

I'll definitely keep in touch, and please do the same :)

So I spoke to the doctor this afternoon, I'd mentioned that I was concerned about the length of time the lymph node had been there. She was so lovely and reassured me that a throat infection had showed up in my bloods and I had been treated with the antibiotics and sometimes lymph nodes can stay up long after the infection is gone. She asked me questions if I'd had night sweats, fevers etc which I haven't. 

I had mentioned the itch, and she also felt it was more psychological as I've had a history of it coming up over periods of stress. I've just to keep an eye for any changes or if any other symptoms come up.

So for now, I'm gonna move on and stop worrying about it, as it's really been something that has taken over my life the past few months.