Paget's disease

Hi everyone 

I have been experiencing severe itching in my left breast (nipple area) for a few weeks . And both breast are very swollen, sore and tender (not unusual for me)

but the left moreso.

i have no rash or other symptoms apart from lumpy nipple ducts at bottom of breast. I have no rash /scaling or bleeding or discharge . I had mammogram , ultra sound both showed no lumps but an area of dense tissue underneath the nipple area where I am itching . I have biopsy this week.

Extremely worried it could be inflammatory breast cancer or pagets has anyone else experienced this ?

as it appears to be quite rare . Any advice would be welcome thank you for reading xx 

Parents
  • I went to my dr 2 weeks ago, with a rash on my nipple. no itching. no soreness. and was sent for further test. mamagram and scans all came back clear. dr did a punch biopsy just to be sure. came back positive 2 weekslater for pagent desease.Even the doctor was shocked at this.. I am now booked in for 2 weeks time for surgery ,( just right befor christmas) to remove the nipple and areola. googling was th worst thing i could do, all the stories , you ready. make you worry more.

    just keeping my fingers crossed, that everything with the surgery goes well. and will know more about further treatment, if needed . after my op\

    me and my family are gonna have the best christmas . and deal with what comes after.

  • Just been reading up online and came across this thread. I have had an intermittent problem with my left nipple for 2 and a half years. Red, raw, wet or crusting.. It eases off with different creams that I have tried (steroid, fungal and antibiotic). At the start of of this I went to the GP about this and a lump at the same time so I was referred to the breast cancer clinic and had both breasts ultrasounded (but this was because of the lump). I thought since this was ok i didn’t need to worry and just try alternate creams.. recently most of my breast became red and itchy sort of rashy/ bumpy which made me start researching more and finding everything is pointing towards Paget’s disease.. I had my gp app today and urgent referral to the breast cancer clinic again but I’m terrified.. especially that’s it’s been so long since initial symptoms.. any advice? What happened after you posted before as I see it was 6 years ago. I hope all positive outcomes for you!! X

Reply
  • Just been reading up online and came across this thread. I have had an intermittent problem with my left nipple for 2 and a half years. Red, raw, wet or crusting.. It eases off with different creams that I have tried (steroid, fungal and antibiotic). At the start of of this I went to the GP about this and a lump at the same time so I was referred to the breast cancer clinic and had both breasts ultrasounded (but this was because of the lump). I thought since this was ok i didn’t need to worry and just try alternate creams.. recently most of my breast became red and itchy sort of rashy/ bumpy which made me start researching more and finding everything is pointing towards Paget’s disease.. I had my gp app today and urgent referral to the breast cancer clinic again but I’m terrified.. especially that’s it’s been so long since initial symptoms.. any advice? What happened after you posted before as I see it was 6 years ago. I hope all positive outcomes for you!! X

Children
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