HPV POSITIVE AND HIGH GRADE

 

Hi 

I had my smear last Wednesday and week later I’ve had my results back confirmed HPV and high grade dysaryosis, cytology appotment is Monday 17th  I can’t sleep and am a bit emotional! im also very angry with myself 30 years old mother of three and never had a smear (not because I was scared just life was busy, I forgot to keep booking and I’m a idiot) anyone had any experience with this? I cant help but think the worst! For months I’ve had heavy periods sometimes clots, and pretty much 80 percent of the time there’s light bloody on tissue, I’ve had lower back pain for months and hip pain that comes and goes? Are these a sign? I’m driving myself mad! 

  • Hi I'm in this situation I have my colposcopy 3 days ago and they have removed what they believe is cancer and have sent it off to find out the stage or something to be honest I kinda blocked him off a little I've had abdominal pain is that normal also I don't think I can wait that long it will drive me crazy I'm in a bit of denial I think my husband makes jokes to deal with it that's just how he works doesn't offend me if anything it helps but I can't tell anyone that I'm afraid of the outcome 

  • Hi xemmax1 how are you doing? Any news ? I hope you're well

  • Rachel11 are you ok ? Did you got all your result?

  • Hello xemmax1

    I am in a similar boat.

    Had my loop done 10days ago awaiting results (4 weeks)

    My husband is a very positive person and tries to make jokes ect.Sometimes i feel he is just ignoring it all and if he dosnt think about it it will just go away.

    Please keep posting and letting everyone know how you are all doing.It helps to know other people are going through the same.

    Thank you Ladies.

  • I got a letter after my first smear to say I have high risk hpv and high grade dyskaryosis. 
     

    I have a colposcopy booked in for next Friday. They also included a leaflet for the loop exicision will they do this at the same time? 
     

    i feel so worried. 
     

    thanks xxx

  • Hey ladies 

     

    Just wanted to come on here and wish you all well with what your going through... 

     

    since my first post in 2018 I've had cin3 removed twice and last check up was last Monday... where a smear was taken.. they put the dye into my cervix and yet again for the third time they said there is changes but until the results come back they can't confirm if CIN 1,2 or 3... I've not been able to get rid of the HPV as of yet (will find out if third time lucky once I get my smear results) if high grade again I'm being advised to have a hysterectomy which is fine I'm very lucky to have all my children..Just wanted to say I'm here if anyone wants to talk.. I know going through it a third time sometimes you just need to talk to someone who understands what your going through xx

  • Hi Nat124

    They did with me.Once the had a look and agreed with my Cin3 results they did the loop and took a biopsy.

    It depends what they see.

    Good luck 

    Keep us posted on how your getting on.

  • Wow 3 times.

    I dont know how you have stayed sain.Im going out of my mind and im first time round.

    Every day is different 1 day im ok the next im a complete mess.

    Im waiting on my results, but cant help thinking of the worst.I know you shouldn't but cant stop.

    Good luck Hopefully this time round it gets sorted for you.

    Xxx

  • Hi Rosierose

    i can relate to this I had a loop in 1987. Then no one told you what grade I was if they did I can't remember. I did develop genital warts which I went back and forth at the gum clinic to get them frozen off. It took 10 years before they never came back. I think my immune system is low, I do have Lupus so I'm not sure if that didn't help. Although my smear tests have been clear up to 2016. I've just had a smear test recently and was shocked to find the results saying I have high grade HPv with low grade abnormal cells. I'm due for a coloscopy on 19th March 2021. Someone on another post said they have only started testing for HPV in 2018 so I am thinking did I never get rid of the virus even though it came back clear. I'm never going to find out now. If I have had a loop can I have another loop? Sick with worry 

  • Hi

    I have just been reading though all these messages about everyone's experiences. Some make me feel more positive, some don't but that's just the way things go. 
     

    I had CIN3 a year ago. I had LETZ treatment and I thought that would be it. 6 months later I had another smear and then some biopsies and it was moderate dyskaryosis. I was then booked in for some more treatment but they decided against it on the day as I haven't had children yet. (And they were hoping it would go on its own after another 6 months) 

     

    6 months later and now my smear has come back with high grade dyskaryosis. I now need to go for more treatment. I just hope this is the last of it and it won't affect having children etc. 
     

    slightly worried :(