so just had a scan and was told have endometrial thickness of 9mm, I have had some lower pain and brown dishcharge that smelt.. Had a biopsy done today now it’s the waiting game. I am really worried..
Hi I have just been for a biopsy today the lining thickness was 13.5 I'm worried sick I don't know what to do to cope till the results come back next week...have you had your results back? Take care T x
Thickened endometrium can be the result of other things beside cancer so keep an open mind if you can. My endometrium was 16mm when I had my scan in April. Now mine was a results of endometrial cancer but if caught early it is very treatable. I had a full hysterectomy, lymph nodes removed and three sessions of internal radiotherapy, finishing in early October. I’m now on four monthly check ups and living life to the full, having just returned from a fanatic, two week cruise to the Canary Islands,
Waiiting for results for me was the most difficult and stressful, once I knew and a plan was explained to me things settled. I tried to keep busy and distract myself but eventually I saw my gp who prescribed a low dose of diazepam I took only one a day of the six I could take but it did the trick. Once I had my results I did not need them. When all else failed the people on here were and still are very supportive.
Im sending a virtual squeeze from my hand to yours and hoping your results are good.
I have just been told by my gp my endometrium is 16mm thick and i am being fast tracked for a hysteroscopy next week. I am petrified. Does a thickness of 16mm mean it is most likely cancer? All advice and support welcome. Dont know how i will be able to wait a week for the examination
I had a hysteroscopy done last year they took a biopsy of the lining and also the polyp. Thankfully all samples were clear of any abnormalities. And i was advised that at this stage even if there were any abnormalities there were options we could take ( unlike my GP who was so unsupportive).
Whilst they performed they hysteroscopy they also inserted the mirena coil which is a hormonal coil releasing small amounts of hormone which prevents further thickening of the uterine wall.
I have basically summarised everything. My journey was a lot awful from start to end. Not in terms of hospital staff, they were wonderful but generally by my GP, then the endless waiting for tests and results etc. I had 2 hysteroscopys , 2 biopsies spinal injection to numb me waist down. I used to live on this forum looking for answers and support. I found everyone very supportive.
If you want to ask me any questions please feel free to do so, i will be more than happy to help
Good luck.......you have indicated you have a thickness of 9mm well my thickness was 15mm.
Thank you Nikki for posting all about your journey. It is reassuring to read, like you I've been reading lots of threads etc and finding out that there are many women who are/have been investigated for irregular bleeding.
My periods went crazy in March, basically I've had 5 in ten weeks and the 5th one is still going. All this bleeding is exhausting!
Having a hysteroscopy this afternoon after my the scan should that my linning was 15mm and contained lots of tiny cysts.
So hoping I get some answers from today and then waiting on my biopsy results.
Its so refreshing to see im not the only one worrying about this issue.
I had a subtotal hysterectomy 6 years ago and had a bleed and excruciating bad pain in March, just before lock down. I was sent for two internal prob scans and revealed an endometrial thicking of 13mm. I've been on HRT oestrogen only for 6 years and due to lock down and not being able to be seen by anyone I was advised to take progesterone as well as the oestrogen until im seen. After 6 weeks the pain and bloating became unbearable and took myself off the progesterone.
We're now nearly in August, hot sweats are out of control, anxiety has resulted in me being off work for 3 weeks and stomach an back pains are still looming.
I'm terrified of whats happening inside my body.
Is there anyone out there that has had this issue after a hysterectomy?
If you dont mind me asking , how old are you please, and did ultrasound mention anything like heterogenous endometrium , mine is 15mm thickeness , heterogenous, im 44 yr old
waiting for hysteroscopy and byopsy , im going completely insane , ,
I am 50 years old and no they didnt mention hetrogenous to me. The thickness of my lining was also 15mm. When i saw the consultant she did re assure me that a very thick lining doesn't necessarily mean cancer, whereas my gp was the complete opposite and said it was most likely cancer.
Please dont worry. You can make yourself ill worrying. whatever the outcome, we have so many treatments available these days. Once you have your hysteroscopy and a biopsy is taken you can then take it from there.
Nikki Thank you so much , Been referred urgently so I have to have hysteroscopy in 1 week , sorry to ask again , when youre endo measured 15mm was this before menopause ,did youre periods came every months , sorry im just completely not my self , I just dont want to hurt my family , that is worrying me so much
Yes i was referred for an urgent hysteroscopy following my scan. My periods were not every month.accroding to their blood tests my hormones showed i was menopausal But i was still having irregular periods. The consultant was concerned that according to my hormone levels, the cells in my endometrium should NOT be growing at the pace they were, my endometrium cells were very active. Those are the words she used. As you can imagine you fear the worst and i had mentally prepared myself for a cancer diagnosis and read up everything in terms of treatment, surgery etc. I got so worked up, but kept a brave face for the world. In the end the biopsy results cane back negative. It was a sense of releif for me. However the consultant was still dubious and repeated hysteroscopy 3 months later and still ok. Then i had another hysteroscopy 9 months later and again it was negative But my cells are still overactive which is why they have put a mirena coil in and then discharged me.
I know its easier said than done, but please try not to worry, some people wish to close the door and dont want to know anything, others research to know everything about the condition . I fall in the latter category. I armed myself with all the information so i could ask them question each time i had an appointment and i was trying to prepare myself for things to come.
I wish you all the best, big hug to you my dear , i wish you strength to deal with what you are going through. Remember it will all be ok, whatever the outcome. The best thing is that whatever it is, has been picked up and you can be monitored and treated. There are some amazing treatments out there honestly. Please do let me know how you get along with your hysteroscopy Xxxx
Nikki ️ Thank you so much for finding time to respond to me , I appreciate it so much
im just finding so hard , just im hoping so much that is not that what im scared off, I have regular periods , no bleeding in between at all , thats why im confused how comes I have that thickening if endometrium, so no irregular bleeding , but i have pelvis pain , now I have pain all over , I dont even know what is hurting and what not ,.. I didnt eventell my mum or my sisters, my children I vould never, only my husband know that i have the procedure , Nikki I will let you know and I thank you so much for yore help , I hope god will bless you with everything you want
Nikki sorry forget simething, Before being referred for hystwroscopy , I went to see private specialis gaenocologyst in London, coz I was scared after US report , that Dr after consultation he done some examination to see the womb maybe Im not sure, and he say to me and my husband that Is not C , amd recomendet hysteroscopy and biopsy , I am thinking how dr know is not C word , he just did physical examination but not hystwroscopy , just confused , sorry if I sound stupid
Its normal to feel the way you're feeling and the waiting around is agonising. Once you have a hysteroscopy they will take a biopsy to confirm what the diagnosis is. Remember a person can have abnormally thickening of the endometrium without it being cancer. And even if it is a postive diagnosis there are a lot of options i.e hysterectomy etc etc.
You are right its not possible just to look at a part of the body.and confirm whether its cancer or not. A biopsy must be done to confirm cancer cells. So please please be strong, you're not on your own. Speak to the Mcmillan nurses. You need to be emotionally strong. And no you're not stupid you are an intelligent woman who is trying to hold it together for her family whilst she is confused and breaking inside
