I totally understand your worry!

My lumps in my neck were 1-2cm. I was informed by my GP and Specialist that the only way to rule Lymphoma out, is by having a biopsy so don’t be afraid to push for one if you’re concerned. Hopefully it is just a cyst and you can forget all about it. I had two ultrasounds via the NHS one in July and one in October neither provided a diagnosis unfortunately. I also had 3 batches of ‘normal’ blood tests before diagnosis. I’m being really honest about my journey because I want to help others avoid what I went through, which was 6 months of back and forth, stress etc. I had and still have no type b symptoms so it can be lurking without anything really evident going on apart from lumps X

Thanks again for he Reply Rufus.

Im getting my ultrasound next Tuesday so at least it is some progress. 

Could you tell me what happened with your ultrasounds which provided no diagnosis? (Just in case I find myself in the same situation) did they just tell you it was inconclusive and to wait and see or? Sorry to ask so many questions but I’m desperately nervous and lucky to have contact someone who has been through this already.  

Thanks again Rufus, I really do appreciate you taking the time to respond to me so thoroughly.

ive been told by the Haemotology department who referred me for the scan that following the scan I will receive a letter outlining a report of everything I’ve had done so far. This would be the blood test I had (I think this included tests for HIV etc as well as a fbc) the chest X-ray and the ultrasound once it is done. I’ve been harassing the haematology department almost every other week since my intial app to ask questions about my blood, chest X-ray etc and they haven’t seen anything untoward in either but the Dr did say they had nothing to compare my chest X-ray to.. whatever that means.. I called them again today asking for a copy of my blood tests because a couple have people said I have looked pale at work so I started freaking out about anemia/bone metastasis only to be told I would be aswell wait till after the scan or I have to pay patient liaison for a copy of everything. However the paleness may actually be bags under my eyes considering I’ve only had about 5 hours sleep each night if I’m lucky since the start of December between stressing myself out and looking after a new born. 

I guess il just have to wait and see what comes of Tuesday. If it’s inconclusive I think Il go private for peace of mind.. my family have been kidding that even if I get good news I won’t beleive it judging by how concerned I’ve been the last couple of months and if I wind up getting a private consultation I know they will definitely say that but i can’t take any chances. 

When does your treatment start? 

Had my ultrasound and it’s been determined my lump is a Lipoma and not a lymph node.

To say I’m relieved is an understatement!

i do also feel a little silly for getting so worried and worked up that I took time of work due to stress but when you hear you’re being tested to rule out cancer is pretty tough.

guess I’ve learned a few lessons here.

So did the lump that you felt initially go down a bit? Asking for a relative who has a couple of neck lumps, been referred to ent. He thinks lumps have gone down a bit. I thought if lymphoma lumps stayed enlarged?

Would you recommend asking for biopsy if not offered? Did you only have the lumps as your symptoms? Dd they go down at all at times? 

Hi Rufus, hope you are well did you also have radiotherapy if so what area and how are you doing after radiotherapy. the plan for me is ABVD 4 cycles then radiotherapy but am worried about the long term affects of radiotherapy. It is Stage 2B.