Hi, I’ve just finished my treatment for grade 3 lymphoma. My story started like yours, the FNA biopsy will confirm if you have lymphoma and what kind you have. This unfortunately took three weeks for my results to come in. The waiting is the worst bit. After that I had to have a ct scan, this tells them what grade of cancer you have, again this took a few weeks for results to get back to consultant. I also had a bone marrow biopsy but not everyone has this. When all results are in the consultant has a multi disciplinary meeting with other cancer doctors and they all decide what the best treatment would be. A lot of people with low grade lymphoma don’t get treatment straight away and go on watch and wait. I was told I am in remission and pleased to say treatment wasn’t too bad. I just followed doctors orders and took all the medication they gave me. I have another ct scan next week and I’m hoping it’s still gone. I was told my lymphoma is not curable but treatable which shocks you when you hear that but I’m hoping it stays away for a while. Only time will tell. I also had practically every B symptom in the book but never even gave lymphoma a thought as I have auto immune problems and thought it was that. I wish you well with your biopsy which isn’t too bad, I had two taken from my neck then another 13 taken from under my arm, I think they were worried that it was aggressive but turned out it wasn’t. Let us know how you get on. 

Thanks for your reply

Since your treatment had your lymph nodes went away or down any? I hope you stay in your remission period aa long time. I have been reading up about low grade and alot of people can spend years in remission. 

Im very nervous about everything amd wprry to the point i feel unwell. I know i shouldnt as what will be will be whether i worry or not x

hello,

im currently waiting for my biopsy results to come back, I’m being tested for lymphoma. Just wondering what sort of treatment you had and how long for? Wishing you all the best xx

How did your biopsy go? My appointment is for next Monday im so anxious about it.

Hope your keeping well xx

Hi, I had 6 treatments of RCVP, it usually took about roughly 4 hours, they put the retuximab in very slowly at first as that’s usually the one you can have a reaction with but they give you paracetamol, steroids, anti sickness and I had the antihistamine intravenously before the infusion starts. The retuximab takes hours to go in, when that’s finished they put the rest of the chemo drugs in. It’s honestly not too bad, nurses are wonderful and help you every step of the wAy. My next worry is my ct scan on Wednesday, just hope it’s ok. The waiting is honestly the worst bit of this journey. I hope all your biopsies are the correct result for you, fingers crossed x

how did your ct scan go? I get my biopsy results tomorrow xx

Hi,

How did your biopsy go? Mine was unbelievably quick and painless. Results tomorrow so no sleep for me tonight xx

Mine is on Monday so will be a lomg weekend!!

Glad it went well good luck with results keep us updated xx

Good luck for your results, try your best to enjoy the weekend x

Hi, my ct scan went ok, drank the horrible drink at home then had another half pint to drink when I got there. Thank goodness my taste buds are gone lol. They still put the dye in your vein as well, I think it highlights any cancer cells. They did my neck, chest,  abdomen and pelvis. I see the consultant on Wednesday so I'm hoping he can read the results from the scan as the reports usually take weeks to come in. Good luck with the biopsy results, let us know how you got on.

hey, 

so so I got my results and unfortunately I have grade 1, classic modular Hodgkin’s disease (ie Lymphoma). I’ve waited 6 months for an outcome and had to go private to get one but at least now I know. I need a PET scan and chemo starts after Christmas. The specialist was very positive and optimistic and states that is curable so I’m putting all my faith in that. Difficult times ahead but I’m made of strong stuff! Hope you get a more positive outcome than I have. Xx

Sorry to hear bout your results, can I ask if you are going private for your treatment? My first appointment with my haematologist told me if it was grade one it would probably be radiotherapy but because mine was grade three I had to have chemo. Your ct scan usually tells them them the grade of cancer. Grade one is good, means it’s only in one place.  I wish you well, it’s really not too bad, let us know how you get on. 

Sorry to hear bout your results, can I ask if you are going private for your treatment? My first appointment with my haematologist told me if it was grade one it would probably be radiotherapy but because mine was grade three I had to have chemo. Your ct scan usually tells them them the grade of cancer. Grade one is good, means it’s only in one place.  I wish you well, it’s really not too bad, let us know how you get on. 

hi,

yes im having the treatment privately, ABVD chemo. It’s stage 2A, so classed as early. So will have 2-4 cycles and a PET scan. 

Hi Rufus, hope you are well did you also have radiotherapy if so what area and how are you doing after radiotherapy. the plan for me is ABVD 4 cycles then radiotherapy but am worried about the long term affects of radiotherapy. It is Stage 2B.