Hi,

How did your biopsy go? Mine was unbelievably quick and painless. Results tomorrow so no sleep for me tonight xx

Mine is on Monday so will be a lomg weekend!!

Glad it went well good luck with results keep us updated xx

Good luck for your results, try your best to enjoy the weekend x

Hi, my ct scan went ok, drank the horrible drink at home then had another half pint to drink when I got there. Thank goodness my taste buds are gone lol. They still put the dye in your vein as well, I think it highlights any cancer cells. They did my neck, chest,  abdomen and pelvis. I see the consultant on Wednesday so I'm hoping he can read the results from the scan as the reports usually take weeks to come in. Good luck with the biopsy results, let us know how you got on.

hey, 

so so I got my results and unfortunately I have grade 1, classic modular Hodgkin’s disease (ie Lymphoma). I’ve waited 6 months for an outcome and had to go private to get one but at least now I know. I need a PET scan and chemo starts after Christmas. The specialist was very positive and optimistic and states that is curable so I’m putting all my faith in that. Difficult times ahead but I’m made of strong stuff! Hope you get a more positive outcome than I have. Xx

Hi Rufus, sorry to hear about your diagnosis but great to see you’re keeping a positive attitude. 

Can you tell me what exactly you had done privately? 

I have an ongoing investigation with Haemotology (I have a swollen lymph node in groin and have had some night sweats)  but I feel like it’s progressing so slowly. Haemotologist told me

my lump feels more like a cyst so I guess that means I will be even less of a priority. I would be willing to get some tests done privately if it speeds things up a bit because I’m about loosing my mind waiting for an appointment to get an ultrasound and worry that after that I may need to wait and wait for further investigations depending how that goes. 

Hi,

I had an initial consultation,CT scan and Biopsy, I was diagnosed within 3 weeks. 5 months in and NHS hadn’t even referred me to a Haematologist or thought about a biopsy. If private is an option for you I wouldn’t hesitate- wish I had done it sooner!

hi,

yes im having the treatment privately, ABVD chemo. It’s stage 2A, so classed as early. So will have 2-4 cycles and a PET scan. 

Thanks for getting back to me and best of luck with everything that’s to come. 

If you don’t mind me asking, how big were your lumps?

the one in my groin is about 2cm x 1cm, it doesn’t seem to have grown much since I first noticed it, maybe a title thicker but that’s about it. I don’t seem to have any other palpable nodes but who knows what is underneath. 

My GP referred me to Haemotology when I went back a second time, after being told to watch it for a few weeks and if it hadn’t gone down to get back to him. At the time I was so busy fixing up my house and preparing for a baby coming I almost completely forgot about it untill my partner pointed it out again in Late September. I had bloods taken which were “satisfactory” then an inspection by the Haemotologist said he was convinced it was nothing to worry about and most likely a cyst. I was still referred for an ultrasound which I should get by the end of January.. the waiting certainly is tough.. like you I find myself worrying about all matter of scenarios.