Hi what was your out come

Hi i have Pan Colitis....Ulcerative colitis of the entire bowel x

Let me know how you get on. Please Don't worry . Once you know what is causing the problem you will much better because then you can find the solution x 

UPDATE:

I am still waiting for my Colonoscopy Biopsies results, however I have just rang the hospital and they said that the surgeon is due to look at them next week. For an 'urgent referral' it's a longish wait.

I've had no issues since the clear out, just persistant floating stools.

All the best to everyone, enjoy the sunshine today :)

Xx

Bless you. Let us know when you receive your results, think positive xx

Thank you so much :) 

I hate waiting haha 

Hope you are doing okay? x

Some results today, my top to toe scan was all clear. Was told mucus could be because of polyps and the streaks of blood seen before were too. Suggested the removal of polyps but wasn't worried about it. 

the abscess needed to be drained but in sheer panic I bathed it with salty water. It burst on its own and although painful I'm feeling more positive. Thank you for all your support 

So I had my flexible sigmoidoscopy today. I was so nervous, not so much for the procedure but worrying what they might come across. 
 

I haven't had any blood for a while now and I've come to the conclusion that I only get it when I'm constipated. I still get mucus with most stools, but not as much as I used to get. 
 

Nothing was found during the flexible sigmoidoscopy, no haemorrhoids, proctitis, polyps etc. To say I'm relieved is an understatement.
 

if anyone has any questions please feel free to reply to this response (so I get notifications)

Hi 

Ive had similar to you. Been fobbed off with ibs for aslong as i can remember as bloods etc come back normal and because of my age. Since my appendix ruptured in 2013 its only got worse mucus and blood in stool and pain in all my right side and lower back. My gp eventually took a stool sample which come back with something high in it. Now waiting for a referral for possible colonoscopy.

Really anxious of all the tests.

Good luck to all.xx

Hi there. Sorry for the delayed response, but your post caught my eye. Do you happen to know if your gf had a fecal calprotectin test before she was referred for her colonoscopy? Thanks!

First time posting, I have had some anxiety for some time concerning potential bowel cancer as I have had ongoing symptoms in the bowels for some time (blood, mucus, discomfort and more recently fatigue), as someone who also has a long term and quite pronounced anxiety disorder, to worry like that is not unusual for me , however I have a colonoscopy coming up in the next 8 days and, as I expected, I am particularly nervous. My doctor turned me away several times last year saying diversicolis or ibs, only when I mentioned mucus this year did he refer me, I wonder if there are certain conditions that have to be met before they are allowed to forward you on?

im very sorry for anyone here who has gone through their ordeals, but also heartened to see that most people were found to be mostly well in the end, at least with non life threatening outcomes. I am also very happy to see such a friendly community and such supportive individuals.

Coming on here is actually a breath of fresh air, instead of going to google or YouTube and finding every response to be late stage cancer, to see people with similar symptoms actually for the most part having less dramatic conditions does help strike a much needed balance, regardless of the eventual outcome, I know that I immediately felt calmer just reading through some of these posts.

It is sad to see that this terrible illness is on the rise in younger people, I feel that regardless of what the outcome will be of my own investigations, it has opened my eyes to the importance of early detection and diagnosis, and I will most certainly be looking to support charities like this one in the future that aim to get the word out there to educate people on the importance of this. I completely agree with many here that screening should begin at a younger age (although I appreciate the cost to the nhs), I myself never realised how important it was until my own recent scare or that it could be such a silent menace until often it is too late.

All the very best.

How did your colonoscopy go?

I have had rectal bleeding intermittent for 10months now. I have seen several doctors and they see their is a fissure and give me ointment to use. 

The fissure will not heal and im not convinced that is not the only problem. My anxiety is through the roof as i cannot get a referral for a sigmoidoscopy as they believe this where the blood is coming from.

I have had no weight loss, i am not tired (ive been training for half marathons), i go twice a day roughly the same time. I have occasional gas and abdominal pain but again im not sure if this is anxiety build up. 

Too much information but i have had rectal discharge too. The doctor did a swab and came back all clear. Its asif the fissure is leaking mucus (if that is possible). I really really need a sigmoidoscopy for my mental well-being. I just need some clarification. If the cream they are prescribing me is not working, surely its something else??

My stools have not changed in terms of consistency, however there is mucus and a small amount of blood when i wipe.

How did your colonoscopy go?

I have had rectal bleeding intermittent for 10months now. I have seen several doctors and they see their is a fissure and give me ointment to use. 

The fissure will not heal and im not convinced that is not the only problem. My anxiety is through the roof as i cannot get a referral for a sigmoidoscopy as they believe this where the blood is coming from.

I have had no weight loss, i am not tired (ive been training for half marathons), i go twice a day roughly the same time. I have occasional gas and abdominal pain but again im not sure if this is anxiety build up. 

Too much information but i have had rectal discharge too. The doctor did a swab and came back all clear. Its asif the fissure is leaking mucus (if that is possible). I really really need a sigmoidoscopy for my mental well-being. I just need some clarification. If the cream they are prescribing me is not working, surely its something else??

My stools have not changed in terms of consistency, however there is mucus and a small amount of blood when i wipe.

Thank you for asking, but it is not until Wednesday.

I believe my consultant did say that one of the things that can potentially cause mucus is a fissure, however I am not a doctor myself of course so please do not take what I say as gospel. I had a fissure once myself, it was quite painful, if I remember I fixed things eventually with exercise, Salt baths, and suppositories. Sitting down for way too long has always been my worst enemy.

I suppose there's always the private option if you feel you absolutely need it and are not getting past your GP. You sound as anxious as I feel, so I do hope that it works out for you soon :)

It was fine in the end, the prep was the worst part, the actually investigation was almost entirely pain free. The better you bowel prep the faster and easier it have a lot of funky looking mucosa in the lower sigmoid so my initial diagnosis is proctitis, waiting for biopsy results. Nothing obviously "bad" although having an ibd isn't great. It has spurred me to start looking after myself better.

very best of luck with yours js57 and others :)

How was the biopsy results? 

Ive booked in to see the doctor again. I have been fine for almost a week, and here we go again the blood has come back. I cant get a break. It affects my mental health so much. I physically feel fine. No real abdominal pain, not tired, no change in bowel habit. Something is obviously not right. 

Hope you guys don't mind me jumping in here and joining you but I've had some blood in my stool, a positive fit test and been referred for a coloniscopy.

I'm so scared. I've had stomach problems for years and years but never passed any blood until last week. I was also diagnosed with anaemia back in March but my Gp put this down to heavy periods.

Will read back through this thread but just wanted to say hi

Hi Everyone

I have been reading these threads and wanted to offer some reassurance.

So blood in your stool and or mucus can be worrying and it sets off your threat system which in return brings on anxiety.

When I was 22 I had two hospitilations.  I was diagnosed with Crohns and put on medication.  I am 44 now and have managed to live a perfectly normal life and have a lovely 5 year old Daughter.

Its a scary experiance, but it definately doesnt mean the worse.  :) 

Hello

I have been reading this thread trying to gather information about my symptoms. Last November i had blood tests done as I was getting tummy gripes when i ate. These tests have showed nothing and that was confirmed by my GP who referred me to the hospital but not as an urgent case. 

In the last 3 weeks my symptoms have changed and my bowel habits too. I  contacted my GP and did a fit test and a H pylori. This came back negative but the fit test positive. I had a consultation last week with the nurse and she did a rectal examination and felt around my tummy. I have now been fast tracked to the hospital for further investigation.

My symptoms include tummy pain after eating. Stitch type pain in both sides. Belching. Nausea. Weight loss but i think its because i am scared to eat. Loose stools with a change in colour. Mucus with blood in it but that happened on sunday.only Extreme tiredness. Heartburn. Bloating. Sweats and a feeling in the later evening of a temperature,/fever could not get warm. 

The last 2 days i have been almost sympton free and have enjoyed eating food. But today I had my results showing something is not right. I am so scared now. Been tearful most of the day. 

Have you had your colonoscopy yet? What is the wait time.

Im seeing my GP on monday to push and push for a sigmoidoscopy. My mental health isnt in a great way.

I also in the past few months have started severely itching around the groin area/lower abdomen/between anus and private parts. The itch is red and the itch on my groin and lower abdomen looks like a hives rash. I am now worried the cancer may have spread to the skin??

I have booked in to see a dermatologist on Wednesday aswell. 

Hi hoping you don't mind me jumping in.

I've had symptoms since Nov last year.

Daily diarrhea with mucus - this has been persistent and hasn't changed.

I also get a twisting sensation in the lower left side of my tummy. If I bend down it twists so much its excruciating.

I built up the courage to see Dr in March - they took blood and stool samples.

Both came back with an urgent call from my Dr saying I was severely anaemic and have a b12 deficiency. Prescribed me ferrous fumarate, folic acid and I have b12 jabs regularly. 

My stool sample showed high inflammatory markers.

Dr said they would be urgently referring me to gastroenterologist.

I've been back to Dr within last week as I've lost 16lb since Nov - unintentionally and, have found bloody mucus in stool. Stool has turned black but, says could be a side effect of iron tabs I'm on?! 

Dr phoned gastroenterologist to chase urgent referral and was told waiting list is 39 weeks!! 

I'm getting a little anxious now as none of my symptoms have subsided. And, 4 months after my urgent referral, I still haven't had any correspondence. 

Please help put my mind at ease x

Hi All

Just wanted to share my story. I was diagnosed with indeterminate colitis in 2016 aged 21 and was never classified as crohns or ulcerative colitis. Back them the symptoms were much more intense in that I was having chronic diarrhoea. Anyway cut a long story short I was given Pentasa and within 3 weeks it was totally gone. Not to return until...

I had these exact symptoms starting May this year. Blood on stool, Mucus, changes in bowel habit going from normal stool to constipation, soft stool, slight niggling pains in abdomen, occasional sense of bowels not being empty. Everytime I went to the toilet I had blood and or mucus. Scary stuff. But not the same as before.
 

Went to GP and had bloods done, elevated CRP & ESR. Referred to gastroenterologist and was seen quite quickly.
 

After an agonising few months I had my colonoscopy today unsedated. Yes it was painful at times, more like and intense cramping pain and certainly unpleasant. But the prep was just as bad IMO. Small patch of rectal inflammation and some more at the cecum. Doctor suspects this is Crohn's due to the skip lesions (areas of healthy bowel) in between. Whilst this is not ideal. I am lucky that this is mild, at least for now. And if the last episode was anything to go by then it should respond well to the medication.

The worry really is the worst thing in the world and makes us project and live worst case scenarios in our heads. Wish anyone with these horrible symptoms all the best in their diagnosis and eventual recovery.

B

Hi everyone,

First time poster here and very glad that I found this forum as there are a lot of positive accounts of everyone's experiences. I really hope that everyone is staying positive and drawing the same encouragement as me from these posts...

A bit of a long winded post so please stick with me, I just want to share my experience up to today.

I'm 51, a single father of three teenagers, no previous health issues, no history of bowl cancer in my family although my 76 year old mum has had a couple of colonoscopy's in the past and had polyps removed.

In November last year I noticed some bright red blood in my stool. I didn't initially worry too much as I thought it may be down to straining on the toilet. 

It happened again in January and March with much more bright red blood.  Around the turn of this year I also noticed a dull ache in my lower abdomen about 2 inches to the right of my left hip. I didn't initially associate that with what was happening with the blood in my stools and to this day don't know if this is connected, but that dull ache has remained and periodically is more noticeable at different times of the day.

Then more bright red blood appeared this week Thursday 22 July, so bite the bullet you must I said to myself and phone your GP! I guess I was very nervous about doing that as once you start that ball rolling you are on a process of discovery that you don't necessarily want to be on, but time to face the music and deal with it head on than bury my head in the sand, at least that was my thinking.

So spoke to my GP on Thursday he had me in yesterday Friday 23 July and took bloods, performed a rectal exam, and a feel around in the tummy area and we discussed my symptoms and next steps. There was nothing obvious he said and in the large majority of cases there is nothing to be overly concerned about. I had to smile when he said, that being said, we need to get to the bottom of it! 

I mentioned I'm in BUPA and given that I didn't appear to fit the urgent criteria for the NHS then we agreed that I would more than likely go via this route with his referral next Tuesday when we have a follow up to discuss my blood results. 

Low and behold the bright red blood was back this morning twice which is a change as it has been weeks if not months in between similar episodes previously.

So I immediately phoned BUPA this morning and registered my immediate requirement for a gastroenterologist specialist and colonoscopy which will now be booked next Monday.

Obviously I'm hoping for the best next week but whatever happens, I know I will get to a conclusion with BUPA very quickly on this and I'm drawing a lot of encouragement from others accounts here. 

Just wish I wouldn't have hung around now and put my big boy pants on a bit earlier, but as they say let's face the music and keep dancing. 

I will certainly keep you all posted in the coming days regarding the process I'm now embarking upon and its outcome.

Fingers, toes and everything else crossed.

Keep well all and please stay positive anyone going through similar to myself.

My nerves are a bit threadbare and my anxiety seems to be reaching new heights every day, but we can get through this!

All the best