Hi yes my mouth was full of thrush most awful feeling and my throat was so sore I could hardly open it . After suffering for days I made up a salt water mouthwash the next morning the furred tongue had disappeared. Mouth not as bad now ,whether it was the mouthwash or a combination of the drugs leaving your body I don't know. Still have numb lips and tongue , and a very itchy bumpy neck which is very sore taking some Piriton for that although doesn't seem to be going away yet . Still got a little thrush and itching below but got some canestan for that . Always look forward to my good few days when I can eat and drink reasonably normally , by then it's almost time for next sessions lol , we will get there much love xxx
Hi. I'm going through this horrendous pain now. My chemo side effects have been okay ish.....definitely bearable, but just finished my 2nd lot if weekly filistagram injections and can't relax.....can't lie down, can't sit or stand....was advised to take clariton for few days before injections start ,and to load myself up on ibuprofen and painkillers on the day I started. Was fine for 6 days ......on both occasions the 7th has been agony. Tried hot bath which gave some relief whilst in it, but pain back within 2o mins. My only consolation is that the next 7 will be my last.
I took my 4th daily injection today of filgastrim (first round of TC) and had been feeling ok but these pains have just woken me and made me feel panicked, as the pains seem to be around lower back, thighs and this general middle area though I am assuming this is what is going on but it's scary isn't it when your body experiences things never felt before - this is my case anyway. And feels like no matter how much I stretch my legs they ache. Well will take ibuprofen and hope for some relief soon xx
I actually ended up in hospital after my last injections as I was in so much pain. They literally fed me morphine for 4 days after which I was able to get up and walk around, and eventually get some sleep. I've been out a week , this is now 2 weeks after last injection and still got the pains although they are manageable now. I've 1 last set of 7 to go then hopefully I'll never have to see those bloody things ever again !!!. I'm really dreading the next lot.. Think the Clariton does help slightly but for me ibuprofen and paracetamol didn't touch the pain. I was on Oramorph and Morphine sulphate in hospital and was given some to bring home. Maybe ask your doc if they'll prescribe it ??.
Only silver lining is that I've been told that the amount of pain actually shows they're working.......just doesn't feel like it at the time.
I'm so sorry to hear that, you must have been in agony and terrified. It's true - it must be working if it's this painful but it's so weird. I'm home with just ibuprofen and heat on the back, but it's coming and going. And doesnt sound as scary as yours, but who knows what the next days will bring. Glad yours are nearly over!!! Take care of yourself x
Thank you all for sharing your experiences, it is invaluable for someone in my situation.
I am also having severe pains in my spine and lower back and trying to figure out if it has anything to do with filgristim.
Mine started gradually and increased during the course of my chemo in the last 2 months, but all of sudden after my 4th chemo cycle (not the filgrastim injections that usually start 4 days after each cycle and go for 3 days) I started to get a SHARP severe pain in my spine and lower back when I move (e.g. trying to get off the bed) so much so that had to be taken to the hospital with an ambulance for pain relief.
The pain really resembles a slipped disk in its sharpness and its movement-dependant nature, and this confuses me when I compare it to what I read here. An MRI is booked in 3 weeks to hopefully clarify the cause, but till then I am trying to figure out if this is actually from filgrastim or not.
I'd love to know if anybody else has got sharp and movement-dependant pains from filgrastim?
Did get resolution? I have stumbled across this post as I have been woken by this pulsating pain in my lower back which is excruciating! Odd thing is I had my filgrastim injection a week ago! It sounds very similar to the pain others have described and there's no let up! Yesterday I experienced real clammy features and struggled to get myself under control, so much so I was on the verge of calling my chemo unit. But after sitting in the car with the air con on for 30mins it did the trick. Then about 6hrs later, bang out of the blue suddenly I had this pain in my back - paracetamol haven't done a thing and now it's 4am and the pulsating has woken me. Would love to know what it is as it's blimen scary!
I had bad experiences with the Filgrastim later on in chemo. Wound up in hospital too. A registrar told me my white blood cell count had gone through the roof, my bone marrow had worked a bit too hard. Had bad pain with the last 3 lots of chemo and a high temperature. Morphine didn't do much good but Morphine and Gabapentin together helped a lot. I took Gabapentin a few times with no ill effects. Good luck!
