Ovarian cyst

Hi! I’ve never been in a chat room before but I’m a bit scared about what’s happening and I can’t really talk to my boyfriend/family about it at the moment. Long story short I was on my period for too long (probably TMI, sorry) so I went to the doctor. She said it was probably stress-related but she booked me in for some scans at the hospital anyway. I had the scans done and I was told that although they couldn’t find the cause of the bleeding they had an ‘incidental finding’ of a cyst on my right ovary and that it won’t go away on its own. Although I’ve had lots of scans and blood tests I’m not being told much about what’s going on. I keep being told conflicting things, e.g yesterday I was told I was going in for more tests, but it was actually just a chat. I’ve also been told conflicting things about whether it could be cancer and what the next steps are. I’m 24 years old and I’m really scared, I’m trying to be brave but it’s difficult not knowing what’s going on. Apparently I am meeting with a consultant tomorrow but again I’m not sure as I keep being told different things. I was just wondering if anyone has been through anything similar and has any advice/information about what the next steps are? Thank you. 

Parents
  • Hi,

    Just come across you’re post as I’m going through very similar! Thought I had a kidney infection a few days ago so was seen in the hospital as it was during the night I had awful lower back and lower abdo pain for 3 days at that point and was convinced I just needed antibiotics quick as I had one 2 months ago. They kept me there for quite a whilst as my heart rate was too fast and got a temperature. Then started vomiting.

    They found no sign of infection but did a CT and found a 3cm cyst on my right ovary. Doctor said that it was unlikely it would cause me pain as it is so small but is possible and I needed to go to my GP for a gynae referral as they can’t do it.

    Got straight in the GP the next day and she referred me to gynae but said I need an Internal Examination of my cervix. She said they will do that at Gynae or I can also have it done at GP and I can wait for Gynae to do it. I asked how long my appointment would be and she said a few weeks so I said well I’ll wait then. But then in the next breath she changed her mind and said actually I want you to have one done urgently here!:( so booked in for tomorrow it’s only been 2 days. 

    After a chat with GP I did remember that I bled for 4 weeks recently and do often bleed after sex but have put it down to the mini pill as I know it can cause havoc but I’ve been on it for years now. I also got sent for bloods straight away and one of them was the CA125 (that looks at ovarian cancer) but she never said that to me.

    Also, just to let you know I’m only 25. I had my first smear 16 months ago and it was clear!:/

    xxx

     

  • Hi, thanks for your reply! It’s scary not knowing what’s going on. I wasn’t told one of my blood tests was for cancer either, I only found out by searching online frantically! I’ve had a couple of transvaginal scans and although they were a little bit painful they were not as bad as I thought they would be. I had a bit of pain during sex too but I had no idea it was a symptom! I feel like I don’t know anything about what’s going on or about ovarian cysts. I’ve never had a smear test before, I had a letter about booking one but then all of this happened. All that I found out today is that I will be having keyhole surgery to remove my tennis ball sized cyst (?!) and they will try to keep my right ovary if possible. Hopefully my surgery should be within the next month but it’s just a waiting game now. I hope everything goes ok for you and if you need to talk I’m here for you. <3 xxx

Reply
  • Hi, thanks for your reply! It’s scary not knowing what’s going on. I wasn’t told one of my blood tests was for cancer either, I only found out by searching online frantically! I’ve had a couple of transvaginal scans and although they were a little bit painful they were not as bad as I thought they would be. I had a bit of pain during sex too but I had no idea it was a symptom! I feel like I don’t know anything about what’s going on or about ovarian cysts. I’ve never had a smear test before, I had a letter about booking one but then all of this happened. All that I found out today is that I will be having keyhole surgery to remove my tennis ball sized cyst (?!) and they will try to keep my right ovary if possible. Hopefully my surgery should be within the next month but it’s just a waiting game now. I hope everything goes ok for you and if you need to talk I’m here for you. <3 xxx

Children
  • Hi there I am to in the same situation I’m booked in for a colonoscopy in a weeks time and biopsy to be done yet I’m trying to just get through it but it’s hard not knowing so I’m awaiting my surgery it’s very scary but I’m taking one day at a time at the moment. I think searching google is what you do but I rang the nurse up and asked her questions she’s so lovely and been very supportive, I hope all goes well for you