Subungual Melanoma referral

Hi, I'm new here and worrying like mad. I had a fungal nail on my thumb with a light black line down the side, I went the docs twice and they said it's more than likely fungal as the rest of my nail was yellow brown and crumbling off. I was told to use a home remedy of nail applicator which can take up to a year. They don't like to give pills for fungal nail as I would need a liver function test due to the strength of them apparently. 

Anyway, I just carried on with my home treatment for nearly a year now, the black has thickened and is starting to raise my nail bed at the side. At the weekend, blood was spurting everywhere from and it was seeping blood all weekend. my nail went flat but stayed black. it's now raised up again with what looks like a lump of skin (I thought it was a blood blister) but smelling so I went to my gp again to treat infection if I had one.

saw a different gp and he agreed I had an infection and gave me anti bs. He then said he was referring me to a specialist and to expect an appointment within 2 weeks to be tested for menalona! 

straight away I went to Dr Google, I cannot sleep with fear, I'm 40 with a 6 year old son and no other family. I'm petrified that the black line has been there for well over a year and nothing has been done and it could potentially now have put my life at risk. Can somebody advise me or help me relating to this I'm so so scared waiting for an appointment and all I'm doing is imagining the worst.

Thankyou 

Parents
  • Hi Louise,

     

    I know this an old post so apologies for replying here but I've tried adding you etc and I'm not the most technologically minded so I'm giving this way a go! Is it ok if we talk please? I am having a thumbnail biopsy on the 29th of this mo th and would love to get your opinion on things if you don't mind! Thanks a lot, Rachael x 

  • Hi Rachel,

     

    I hope your biopsy went well and you are doing ok. I too had a biopsy done on my thumb on 2nd July, had my nail removed & biopsy on nail bed so am happy to help you with any questions, although I may not know the answer, I know what you are going through! 

    I'm still waiting on my results IhI my appointment at the end of August so im trying to stay positive as I have my husband and kids but it's hard not to worry. 

    I will try adding you as a friend.

     

    Take Care

  • Thanks Angie

     

    Oddly enough, my basal cell carcinoma former under a healing scar caused by hair straighteners - I thought it'd just not healed well and ignored it for a few years. Lesson learned there.

     

    I know my referral will be to the plastic surgeon, so I'm assuming it's not just a punch biopsy. The waiting is the worst bit, but luckily I work from home at the moment so could attend with little to no notice so I'll definitely tell them that.

  • I have my consultation with the plastic surgeon in 3 weeks - had hoped to be seen sooner as the line is widening at the base of the nail. 

     

    The waiting is the worst bit :( 

  • Hi,

    I'm just going through the waiting process. I've had my nail removed and nail bed for biopsy. How did you get on? I found the plastic surgeon registrar I saw and the surgeon on the day wouldn't give an opinion at all and just said its best to get it off. So hard as you just want something to cling to! 

  • I've just read this thread and been useful, thanks [@louiseandfin]‍ and [@AngieT]‍ especially.  I had a biopsy last year and results were slightly ambiguous but no need for further treatment/biopsies unless I had more signs. I now had a new line appear in a different place on the same nail measuring bigger, 3mm bottom and 2mm at the top and Hutchinsons sign positive (had developed since Christmas and was seen in Jan but didn't look suspicious then). Lines are also not even. I had the second biopsy done yesterday and waiting on results now and dealing with pain. At least this time I can rest, last time was peak lockdown and no one could help, children were at home and husband had to go to work.

    I had it done privately and he's seeing me next Friday with hopefully results but might be a bit longer. Dressing change on Wednesday as last time the first one wasn't nice so didn't want to wait a whole week.

    I hope everyone is doing well.

  • Dear Ellenrose. 
    I am so sorry you are having such a worry again. It's just never ending sometimes, I completely empathise with your worry as I also had a second biopsy but on  a different toe ( this time my big toe ) but thankfully it was not sinister. Mine measures 2.5mm at the top and 5mm at the bottom which freaked my out as my pinky toe was a straight line of just over 1mm.

    For  me I was just told I am prone to melanochyia but I have to still keep an eye on them, check every 2 months ( I check daily ha ha ) and if they change go back. 

    Sending you lots of strength and positive vibes and I hope you get the results soon as the wait is torturous. 
     

    good look, thinking of you 

     

    xx

  • Thanks so much for your message. Good to know your second was ok. Being prone to them also worries me as don't want to go through a biopsy every year with the worry, pain and time off work!

  • The dermatologist I saw said we have to draw the line on biopsy every time. He didn't really want to do the second one he wanted to wait. It was me who was freaking out over it. 

    It was awful going through it again as like you say it's just like a vicious circle, but if I hadn't I would have just constantly worried I had SM as I was convinced I had it. 
     

    Do you notice your growing up the nail? Oddly I've not noticed they just seem to appear? But I do wear nail varnish all the time and just do a quick take off and renew  so I didn't really notice it growing up my nail. 
    Now I don't wear nail polish - but I wear closed toe shoes, I guess I will have to when the flip flops come out but I like to check them all the time - I think it's made me so paranoid I check everything! 

     

  • Mine is on the fingernail, and yes, it's grown up with the nail. This one was very faint and thin in January and halfway up the nail but got a lot darker and wider as it has grown. They were more sure of doing a biopsy this time than last as has more sinister features. If this is benign I will ask about what if it keeps coming back. The nail did grow back clear last year before line reappeared. It's weird. 

  • Hi EllenRose,

    I'm sorry to hear you are going through all this again. I hope it all goes well on Friday and that the results are clear. Please let us know how it goes,

    Angie x

  • Thanks [@AngieT]‍ 

    I went for a dressing change this morning. The nurse was very kind but it took 45 mins as it was quite stuck. More uncomfortable than painful and I know the next one won't be so bad. She said it was was looking good so that's one thing.

Reply Children
No Data