Subungual Melanoma referral

Hi, I'm new here and worrying like mad. I had a fungal nail on my thumb with a light black line down the side, I went the docs twice and they said it's more than likely fungal as the rest of my nail was yellow brown and crumbling off. I was told to use a home remedy of nail applicator which can take up to a year. They don't like to give pills for fungal nail as I would need a liver function test due to the strength of them apparently. 

Anyway, I just carried on with my home treatment for nearly a year now, the black has thickened and is starting to raise my nail bed at the side. At the weekend, blood was spurting everywhere from and it was seeping blood all weekend. my nail went flat but stayed black. it's now raised up again with what looks like a lump of skin (I thought it was a blood blister) but smelling so I went to my gp again to treat infection if I had one.

saw a different gp and he agreed I had an infection and gave me anti bs. He then said he was referring me to a specialist and to expect an appointment within 2 weeks to be tested for menalona! 

straight away I went to Dr Google, I cannot sleep with fear, I'm 40 with a 6 year old son and no other family. I'm petrified that the black line has been there for well over a year and nothing has been done and it could potentially now have put my life at risk. Can somebody advise me or help me relating to this I'm so so scared waiting for an appointment and all I'm doing is imagining the worst.

Thankyou 

Parents
  • hi mum has had a biosy on her  nail 4 weeks ago and we still have had any news....is this good or bad?

  • Hi,

    You can't tell whether it's good or bad news from how long it takes I'm afraid. The current waiting time for results can be anything from 2 to 5 weeks. All biopsies go through the same procedure - they are examined by histology, the report goes back to the consultant and then the results are discussed at a Multi Disciplinary Team meeting (MDT). This is where the dermatologist, plastic surgeon, oncologist and specialist nurses decide on the next course of action for each patient as per the biopsy results (discharged if benign or further surgery if positive). The hospital then contact the patient to (usually) come back for their results - it's rare they give results by phone or letter. If the hospital didn't give your mum an idea as to the waiting time for her results, I would ring them on Monday and ask if the results are available and when can you expect to hear from them? Sometimes results are delayed because the MDT is only held once a week.

    Good luck, I hope you aren't waiting too much longer and that they bring good news. Please let us know how you get on,

    Angie (melanoma patient)

  • Still no results, my appointment was set for today and Surgeon called to say they want to do a further round of testing on the Biopsy Sample

     

    I asked if that was a good thing or not, and apparently it just means it's not very obviously cancer, but likewise it's not very obviously normal - so another 2 week wait, and fingers crossed when I have my next appt in 2 weeks the results will be back fully. 

  • Hi Louise and Finn

    Could you tell me if Acral melanoma can appear with a white grey appearance with a dark bruise area coming from Cutical area only on thumb.

    Thank you

  • Hi Polly

    I really can't say it can present in a number of ways. All I know is how mine presented, the main one once the line had a disappeared was a small bruise in the corner but I had several signs tbh. But yes my bruise was on the cuticle area but this could be anything, acral is extremely rare. All i can suggest is to see your gp and if they don't take you seriously, see a different one xx

  • Thank you for your reply  should of said. Ice already seen GP 2 week referal to dermatologist x-ray photos and a plastic surgeon called in to see me at appointment. Decided in 1/2 nail removal and punch Biopsy.  Waited 4 weeks in which time it changed quite a lot.  Plastic surgeon decided removing whole thumb nail and take biopsy.  Awaiting results. Wasn't prepared how painful it would be. 

  • Oh you poor thing :cry: yes it is extremely painful, keep it elevated, I left with a sling, keep the painkillers topped up and rest. They remove the nail then take a nice chunk out of the nail bed, it looks very weird when you have the dressing change. Did they give an idea of a timescale, I rang after 2 weeks chasing the results. I really hope and pray you have nothing to worry about. Where are you being treated x

  • Hi Polly

    i am so sorry you are also going through this stressful worrying time. 
    I found the wait from biopsybtongettingbresukts was by far the hardest time. I waited 5 weeks for mine and I felt sick every day I was convinced I had SM in my toenail. 
    Thankfully my results were negative. I've been back to see the dermatologist again as I got another streak much bigger on my big toe nail but it's not really changed in a few months so the dermatologist was happy to wait and I guess I was because he said I'm prone to melanochyia which is what the last streak was.!

    I truly hope you get a negative result and as Louise says keep up with the pain relief xx

  • I don't know if I'm aloud to give hospital name on chat. I have been told to keep it elevated I had it done a week ago today. I'm right handed so trying to do things left handed takes twice as long.  Still keeping painkillers topped up.  The wait is awful I feel so stupid worrying over a nail and until now I had absouluty no idea you could even get this condition in your nail bed.  My head is trying to play catch up.  Hope you have now been treated and are cancer free.  Thank you so much for the chat.  Xx

  • Mine was my left thumb. Its very overwhelming and there's not much on the Internet re this type of cancer besides complete horror stories that are outdated. I was referred to psych onc for counselling etc I didnt take it very well in the early days. I just wish there was someone around to help me but everything was focused on CM.

    I was the same as you, I didnt have had a clue you could get cancer on your nail bed!! Really scary when you think about it!!

    Im nearly 2 years NED now and my CT results yesterday were clear. Take baby steps and you never know, theres more chance of you being negative than positive, keep me updated, direct message me any time... sending lots of positive vibes  

  • You are so kind.  Im thrilled your scan was all clear.  Thank you for the positive thoughts.  I havent told my Adult children grandchildren or extended family yet as don't want to worry  them until there is something to worry about.  They don't live near me so havnt seen apart from FaceTime calls because of COVID.  I'm praying they will never need to know.  I really appreciate the chat talking to someone who has had nail removed and a biopsy is so helpful.  Positive thoughts.  I've been told results will be 4 weeks (3 WEEKS TO GO) probably because of COVID. Very Best Wishes to you

  • Hi Tillybobs

    Thank you for your reply.  So sorry to hear you have another dark streak on your toe nail lets hope it just disappears.  it is awful waiting for the results.   I'm either going to have good or bad news for christmas.  I've also got a nasty infection at the biopsy site so now on antibiotics that are making me feel rubbish.   I am also interested to read you had a dark streak as I did not, mine was more like bruising at the cutical that widened and grew over the weeks with a grey/white cloudy area above that kept changing in shape and size over the weeks  I did have a faint grey/brown line appeared.  I have not found anyone else apart from bruise have similar so I hope that is a positive.  

    Best wishes to you &

    Happy Christmas

Reply
  • Hi Tillybobs

    Thank you for your reply.  So sorry to hear you have another dark streak on your toe nail lets hope it just disappears.  it is awful waiting for the results.   I'm either going to have good or bad news for christmas.  I've also got a nasty infection at the biopsy site so now on antibiotics that are making me feel rubbish.   I am also interested to read you had a dark streak as I did not, mine was more like bruising at the cutical that widened and grew over the weeks with a grey/white cloudy area above that kept changing in shape and size over the weeks  I did have a faint grey/brown line appeared.  I have not found anyone else apart from bruise have similar so I hope that is a positive.  

    Best wishes to you &

    Happy Christmas

Children
  • Hi Polly4,

    We are a little bit behind you - my son had a biopsy on his nail bed last week.

    I'd noticed a line on his nail in the first week back at school in September (he's just gone into year 6). Contacted the GP who put him on an urgent (but not 2 week) referral after seeing photos. Got myself in a right flap and saw a dermatologist privately, who asked us to return after a month. The line in his nail was wider and hadn't started to clear the cuticle so although the Derm said it was extremely unlikely to be SM, she wanted a biopsy done. Another 2 week wait to see the plastic surgeon, who then said he wanted to do the biopsy urgently and would remove half the nail. After a week of isolating because of COVID my son had it done last week.

    In the end they took his whole nail off too and said they'd taken a bit of a margin around what was there. I was told to expect the results in 2 to 3 weeks. We have an appointment to see the plastic surgeon again on Christmas Eve, which I believe is to get the biopsy results, but it doesn't say that on the letter. So, like you, we may get either good or bad news for Christmas.

    My son does not know the potential seriousness of his nail line, of course, just that he needed a biopsy to see if it was something that needed treating or not. I am dreading a bad outcome. I know the chances of it being Subungual Melanoma are extremely small, but then I think that someone has to be the 'one' in 'one in a billion' or whatever.

  • Hi KatSuma 

    Bless you, nightmare isn't it I'm praying you have good news for your son. I have been told 4 weeks for result I'm over 2 week wait so I make that just before Christmas but don't have an appointment yet, but pleased you have yours.  Will be thinking of you both.  Keep us posted.

    Best wishes

    Xx 

  • Hi katsina

    So sorry you are going through this right now, my boy is in year 4 and it would just be unthinkable!!

    The Drs you are seeing are being very thorough and these tests are to rule out anything. Please please please remember the odds are massively in your favour! This is extremely rare and the chances of a positive result are TINY. I know its not the best time to recieve any such result please focus on how in favour the results will be for your little one. Deep breath, you will do this,  I hope he is doing well after his biopsy, sending BIG hugs xxxx

     

  • Hi lousieandfin,

    I am currently clinging on to the fact that this particular cancer is extremely rare in children. My son had a general anaesthetic to have the procedure done and that added to the anxiety for me (although he was excited to be having one!) I have been amazed at how he has been since - he was back at school for the afternoon the day after the surgery and says his finger aches but doesn't really hurt. We have to go back for the first dressing change today - he has asked me to take a picture of what it looks like so that he can show his brothers!

    The dermatologist we saw stressed that it is highly unlikely to be SM, but there were enough red flags to make a biopsy necessary. She also pointed out that if it does turn out to be SM we have caught it reasonably early - assuming that the line did only appear early September.

    xx

  • Polly4,

    I really hope you get your results soon, the waiting is so difficult.Fingers crossed for good news for you. xx

  • Hi louiseandfin,

    i just registered here as I was reading the comments and sent you a friend request and I really would like to talk to you about SM please! I hope you will see my message. 
     

    Vivien