Hi Louiseandfin

I wondered what the outcome of your appointment was as I too am waiting for an appointment next Monday for possible Subgungual Melanoma (2 week urgent referal). 

Thanks

Hi there

Apologies I have only just seen this so I hope your appointment went ok?

I saw the specialist 10 days ago, he took some name clippings for testing and referred me for a fast track plastic surgeon appointment. The wait was hell but I saw the plastic surgeon and the results from my nail clippings showed NO fungal. I immediately went into meltdown. 

The dr advised he will be making 2 incisions on my thumb to peel back my skin, nail and some of my nail bed. He said there is a chance it's melanoma but he's since lots that are benign so again, more waiting. The procedure is next Thursday, he did say they sometimes have an idea once the skin is peeled back, however, he did say I'm not showing any sign of Hutchinsons which is a positive to cling to. So it's an anxious 10 days now. My Dr has advised me to take a week off work after the procedure as it's quite painful if the paracetamol wears off once the local anaesthetic has gone and has stated I shouldn't drive either. I will keep you posted. Let me know how your doing.

xxx

Hi ladies

Please remember subungual melanoma affects around 1% of all diagnosed melanomas so is extremely rare. It mainly affects the great toe or thumb so its even rarer to affect your pinky but can happen by all means. It's good they are rushing it through, please bare in mind if you dont have a biopsy and they tell you it is benign then this may not be the case. I was told mine was fungal/benign for 18 months, when I had the biopsy and it was sent to the lab where melanoma cells were found, because it was left so long untreated it broke away and was found in my lymph node. So while it's good a specialist seems to think it is benign without a biopsy, their eyes are not microscopes and they cannot see cells. If you are concerned they dont take it seriously then go back to your gp expressing your concerns. Remember, a biopsy is to rule out melanoma and early detection is key in the world of melanoma

thank you so much for the support and kind words! I know I’m thinking the worst but it’s pretty hard not too.  I’m thinking I will insist on a biopsy to know 100% that it is benign, praying to every god that that is the news I recieve! I’m so sorry to hear that you did not get your happy ending, I really sincerely hope that you are getting the best treatment available now xx

Remeber, IF it is mm treatments have come such a long way recently, I'm technically NED (no evidence of disease) but I'm having treatment every 3 weeks for a year to be sure theres nothing lurking. Theres no need for you to think about that though, that's way ahead and not for you to worry about, just concentrate on your next appointment, sending lots of positive vibes and keep telling yourself it's extremely rare so the odds are massively in your favour ok, keep me posted and good luck, now enjoy them beautiful children xxxxx

All you people are just amazing!! I can’t thank the members in this group enough for the supportive words! You are all inspirational!! I don’t think I’ve ever hugged them as tight as I have tonight, I will keep being positive and sending all the love in the world to you people xx

Hi everyone, just wanted you all to know that I saw my specialist today and he doesn’t think I have a melanoma!!! He was fairly confident but does want to see me in 6 weeks just to keep an eye on me.  Thank you all for the kind words xxx

Hi can I please ask if you had pain and swelling in your thumb??

Hi,

My coworker told me 2 days ago that i should have my nail check as it could be cancer, hence i am on this page. I am worried as we are about to start our ivf journey. I've had a dark (brown-ish) line on my thumb for as long as i can remember. I will book an appointment with my gp this monday for a referral. Will it take long? I pray everyone is well and recovering. 

Many thanks!

So sorry to hear that you are worried! Your doing the best thing by seen by your doctor.  If they are concerned then you will be seen by a specialist within 2 weeks.  I was so scared but thankfully mine all appears to be normal!! Sending you all the luck in the world!! 

Hi 

how have you got on??

 I too have been to see the doctor about a stripe in my finger, although it's more brown but runs from the cuticle bed to the tip of my nail.
doctor has taken it very seriously and referred me to a skin service - appointment on Tuesday. 
having googled (I know I know) I'm panicking I have two small children and fearing the worst. 
 

my stripe looks like a hutchinsons sign.
 

Any positive stories please fill me in.

roll on 2020 coz this ones been terrible since May!! 

Hi,

I'm so sorry to hear your news, I know it's like your whole world is falling apart!! I too went to the doctors with what sounds like a similar mark on my nail in August, he also was very concerned and arranged the urgent appointment! 
I'm very lucky that at this appointment the specialist reassured me that it was not what I had feared (again I also did a lot of googling)! He asked me to come back in 6 weeks time to look at it again and unbelievably by this point it had almost disappeared!!  I know how lucky I am and thank god every day as I too have little ones and the thought of leaving them behind is the scariest thing in the world!! 
Please try and stay positive and let us know how the appointment goes, wishing you all the luck in the world xx

Hi,

I'm so sorry to hear your news, I know it's like your whole world is falling apart!! I too went to the doctors with what sounds like a similar mark on my nail in August, he also was very concerned and arranged the urgent appointment! 
I'm very lucky that at this appointment the specialist reassured me that it was not what I had feared (again I also did a lot of googling)! He asked me to come back in 6 weeks time to look at it again and unbelievably by this point it had almost disappeared!!  I know how lucky I am and thank god every day as I too have little ones and the thought of leaving them behind is the scariest thing in the world!! 
Please try and stay positive and let us know how the appointment goes, wishing you all the luck in the world xx

So glad to hear this. 
 

Thank you so much for your quick response. Just what I needed to hear. 

I've had a word with myself to pull myself together and given myself the advise I often give my 7 year old. There's no point in unduly worrying when I don't know the facts yet. It's easier said than done! It's just hard core reading about this type of malenoma  

but then you need to read some things so your prepared and know what questions to ask. 

Wishing you success on your IVF journey xxx 

How did you get on with this I have a similar issue just now and out of my mind with worry

Hi Miche 

I went to see the dermatologist, was in there 5 mins. 

He looked at my finger in a microscope said it wasn't cancerous yet as it was a straight line and not wavy. I went to have some photos taken and got to go back in 3 months to see if it's changed. 
I'm in the system now and being monitored.

I was totally irrational and out of my mind with worry. Once you see someone you will feel calmer. 
Try not to google, it's the worst thing I did. 
 

good luck For you x 

Thanks for your reply. I'm keeping everything crossed that everything will be OK for me too! X

Hi was just wondering did everyone have a line ? I have been referred to a surgeon for a mark under my nail looks like a mole under the nail bed ? My doctor did mention melanoma . Everyone else seems to have had a line mine is a mile shape I've had it since January and thought it was a bruise but hasn't changed shape or grown out of nail. Any advice would be appreciated.

Good morning, the shape under my nail looked more like a bruise shape and had been there for months and I also just thought I had bruised it. It was only when my little girl kept looking at it I googled it and was not worried as most dangerous marks under the nail are a line. However within days of googling it a line appeared and that's when I made the appointment. My doctor was scarily confident that it was a melanoma, thankfully it wasn't and the mark has now eventually grown out!! Wishing you all the luck in the world at this very scary time xx

Thanks for quick reply Bekkigraham glad to hear you got giood news. Hopefully I get good news too it's so worrying .

It is the most frightening time, honestly all you can do is have hope I'm praying for you for the best news!! Please keep us all informed xx