Breast total duct excision

Back in June I started having bleeding from my nipple and found a lump in my breast, my go quickly referred me to the breast clinic where they did a ultrasound on the lump and I was examined by a specialist nurse. They were happy the lump was just glandular tissue and sent me merrily on my way .But then I was called 6 weeks later for review with a consultant. She announced that even though the lump is nothing to worry about, the discharge is concerning and she wants to do a total excision of all the ducts in that breast as this is the only way to find out what is causing the discharge/bleeding and as cancer is a possible cause it needed to be done to rule this out.  So I’m booked in for this in a few weeks. I’m really worried. About the procedure, the recovery, the scaring and the waiting for the results! I’m only 38 and really struggling to deal with my emotions at the minute. Finding myself very weepy. Has anyone else had this procedure? 

Parents
  • 13th October 2020

    I had the same thing, I have just had my operation Friday the 9th, all went well the operation took 45mins, I had a full left breast duct excision, I took pain killers on Friday evening when I got home and to be honest I have had little pain, I can move my arm, my boob did swell to twice it's size and bruised, but other then that it's been ok, I have another appointment in 2 weeks, I hope every thing goes ok for you too, take care.

Reply
  • 13th October 2020

    I had the same thing, I have just had my operation Friday the 9th, all went well the operation took 45mins, I had a full left breast duct excision, I took pain killers on Friday evening when I got home and to be honest I have had little pain, I can move my arm, my boob did swell to twice it's size and bruised, but other then that it's been ok, I have another appointment in 2 weeks, I hope every thing goes ok for you too, take care.

Children
  • Hi all, I've been reading up on this post as I'm sure to have an excision, probably start of 2021. I'm more concerned about going under than the results as it's my first general anaesthetic op ever, my worry is pain levels afterwards. I'm glad I have somewhere to read up on others' experience x

     

     

  • Hi Miss SM,

    A very warm welcome to our forum.

    Pain levels post-op are all quite manageable. If you are in pain you will be given a preparation to control it. There is a worry with all anaesthetics, but your anaesthetist will take good care of you. You will aso have a pre-med prior to your surgery, so your care team will know if there are any likely problems beforehand.

    Do please keep in touch. We are always here for you.

    Kindest regards,

    Jolamine xx

  • Hi MissSM,

    Have you had your excision? If so how did it go? I go in Wednesday next week for a total excision with a possibility of under arm node removal too (2/3 were enlarged on the scan). Im wondering what to expect? Hope all has gone well for you and results are clear x

  • Hi Mercy100

    I ended up only having a single duct excision so was grateful for that although that doesn't help answer your question. I had minimal pain because of this but needed a few days off work, the anesthetic left me feeling dopey and tired. Im getting my dressing off and results tomorrow so everything is pointing towards thumbs up. The nurses were brilliant and told me to take my time before I left recovery. I wish you the very best for next week and for your results xx

  •  

    Hi Miss Sm,

    I am so glad to hear that your surgery went well and, was less invasive than you expected. I hope that your results tomorrow are all good news.

    Please let us know how you get on.

    Kind regards,

    Jolamine xx

     

  • Results today, what they removed was an intraductal papilloma so all good. The scarring is itchy and a little sore but otherwise good.

    Thanks for the support on this thread, it's so helpful to know that there are other out there who you can share this experience with.

    Sandi xx

  •  

    Hi Sandi,

    Thank you for the update. This is fantastic news. I am delighted to hear this and I can only imagine your relief tonight.

    Kind regards,


    Jolamine xx

  • I've been reading these posts which have been helpful so thank you so much for this forum.

    I was told today that I need to undergo a single duct removal to identify the cause of my discharge and to stop the discharge. I was first advised it would be done under general anaesthetic but considering I was not too keen on having the whole of the ducts removed if the single one can't be located on the day, my consultant then advised to have the procedure under local anaesthetic...!!!

    I agreed but after some thought I am extremely worried and thinking I should just be put to sleep!

    Has anyone had this procedure done under local instead of having general to be put to sleep? 
     

  •  

    Hi KaelaS,

    Welcome to our forum. I'm afraid that I was never given the option to have a local anaesthetic for my duct removal. However, if you go to the blue banner at the top of this page and click on the search engine, then insert duct removal under local anaesthetic, you will find similar posts. 

    Why not give your breast care nurse a phone and discuss whether you would be better to have a general or a local? 

    When are you due to have this procedure? Do please let us know what you decide. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    Thank you for responding and for the advice.

    i am booked in for 31st March but I think if I ring Monday to ask for General instead the date might have to change.

    I've watched videos of the procedure and it looks scary to have done under local but then it means I'm awake to be able to discuss options if they can't locate the single duct on the day.

    I did ring a nurse on a helpline yesterday from "Breast cancer now" who was lovely but ultimately it is my decision to make which is proving a difficult one to make as pros and cons to both.

    I also searched all over on here yesterday using various search formats but couldn't find anyone who'd had it done under local anaesthetic, or who had mentioned they had anyway.

    Obviously not only am I worried about the procedure but the outcome of the tests they run on the duct :-(

    xx