Breast total duct excision

Back in June I started having bleeding from my nipple and found a lump in my breast, my go quickly referred me to the breast clinic where they did a ultrasound on the lump and I was examined by a specialist nurse. They were happy the lump was just glandular tissue and sent me merrily on my way .But then I was called 6 weeks later for review with a consultant. She announced that even though the lump is nothing to worry about, the discharge is concerning and she wants to do a total excision of all the ducts in that breast as this is the only way to find out what is causing the discharge/bleeding and as cancer is a possible cause it needed to be done to rule this out.  So I’m booked in for this in a few weeks. I’m really worried. About the procedure, the recovery, the scaring and the waiting for the results! I’m only 38 and really struggling to deal with my emotions at the minute. Finding myself very weepy. Has anyone else had this procedure? 

Parents
  • Hi 

     

    Can I ask how you got on aftre the surgery? I am also 38 and was ref after having nipple discharge for some time, Im booked in to have surgery on tuesday next week and I too am worried it may be cancer, although biopsy of my breast tissue were clear they want to rule it out in my milk duct, can i ask did the surgery change your breast much, I only have small breasts and this is something that bothers me 

    I hope everything went well for you 

    x

  • Hi

    My nipple is slightly inverted now but it really doesn’t look bad at all, I barely have a scar. I was expecting a lot worse. The rest of my breast looks normal. 

     

    Hope that helps 

     

    x 

  • I have been suffering with bleeding from the left nipple for some time. Cancer was ruled out early on and cysts on my milk ducts diagnosed. After a number of visits, I am booked in for the same procedure to remove them. I'm 36. Never had any surgery before. Putting a brave face on but deep down I've been worrying. Thank you for speaking about your procedure, it has made me feel a little easier about things. Can you tell me what the recovery time is please? You say you didn't have too much pain? xx

     

  •  

    Hi JoJoMc,

    Welcome to our community, although I'm sorry for the reason that has caused you to join us. I'm glad to hear that you are feeling a little easier about things now.

    It is worrying when you have never had any surgery before, but you will be fine. I was first diagnosed 9 years ago and had a lumpectomy, followed by Tamoxifen. A year later I found another lump in the same breast. This time I had a double mastectomy, followed by 6 years of Letrozole. I stopped taking this in July 2017.

    You will find all of your surgical team will be very sympathetic to your case, very helpful, professional and pleasant. You ask how long the recovery time is. This varies from person to person and, will depend on age, state of general health, grade of cancer, type of cancer, etc. If I remember correctly, I think that it took me about 6 weeks after my lumpectomy.

    As for pain, I was sore the first couple of days, but it was all quite doable. I was kept sufficiently well medicated to control this pain.

    Do you have a date for your surgery yet?

    I hope that it all goes well. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Yes I was a little sore for a few days following the procedure and struggled to find a comfortable position in bed to sleep but honestly nothing bad and I’m such a wimp with pain!  I tested in bed for a day or two. Then was ok. After a 2 weeks I was pretty much back to normal... driving etc but still in very supportive bra. But I waited to do running/ jumping and heavy lifting excercise for 6 weeks. 

  • Thanks for the reply. You have definitely made me feel easier about it. Glad you are good now. Look after yourself xxx

  • Wow. You really have been through it.

    Thank you for replying to me. My op is 13th June. 

    I am worried about it (although Littlestar78 has helped with this) but was struggling to speak about it as I feel guilty worrying so much when I am one of the lucky ones not having to deal with the diagnosis that yourself and so many others have had to deal with.

    You sound so strong and so brave to talk so freely and positively to others about your fight. 

    Thanks for welcoming me and for your advice. 

    Take Care

    Jo 

Reply
  • Wow. You really have been through it.

    Thank you for replying to me. My op is 13th June. 

    I am worried about it (although Littlestar78 has helped with this) but was struggling to speak about it as I feel guilty worrying so much when I am one of the lucky ones not having to deal with the diagnosis that yourself and so many others have had to deal with.

    You sound so strong and so brave to talk so freely and positively to others about your fight. 

    Thanks for welcoming me and for your advice. 

    Take Care

    Jo 

Children
  •  

    Hi Jo,

    I was far from brave or strong just after my diagnosis.My mum had breast cancer and died 11 years before I was diagnosed. She was treated very shoddily with her cancer and, I was terrified that I would have to go through the same. Fortunately, there have been a number of changes in diagnosis, surgery, treatment and after care in this time. There is just no comparison in the care I have experienced and that which my mum had.

    I really feel grateful to our friends at Cancer Research and elsewhere, who are struggling to improve all areas of cancer care and,, it is reassuring to know that they are constantly striving to improve matters as we travel along our cancer journeys.

    I am glad to hear that you have a date for your op now - 13th June is not  too far away.  Instead of worrying yourself sick over the the next few weeks, try to keep busy, preferably doing pleasurable things. This should help to keep your mind off the wait and, at least distract you for a little while.

    I shall be thinking of you on 13th June and hope that it all goes well. We are always here for you.

    Kind regards,

    Jolamine xx