Hello Littlestar78,

I also had nipple discharge amd went to my GP with this symptom. They referred me to breast clinic and then they did ultrasound there but couldn’t see anything suspicious. They said they still would prefer to do total duct excision to make sure what is causing the brown discharge. I had the operation on 1st October and the results came back two weeks after. Recovery was better than I expected and within a week I went back to work. Unfortunately the results came back with some bad news. They found a 6mm invasive ductal carcinoma (IDC) and some high grade DCIS so they couldn’t get clear margins. I had to have another operation on 8th November with an attempt for the surgeon to remove more cancer and also sentinel node biopsy to see if it was spread to lymph nodes. I’m 36 years old with a 21 month old daughter so for me since the diagnosis life has changed a lot and I’m trying to be patient with everything happening. I hope you will get better results after your op and it is easy to say but try ro distract yourself as much as you can with the things you enjoy doing. Whether it is good news or bad news all we can do is to be as strong as possible. If you have any questions please dont hesitate to get in touch with me. Happy to help in anyway I can.

Hi, 

How are you doing, its been a while you signed in here but I just wanted to reach out to you seeing you also had a baby to tend to while dealing with this dreadful disease. I have a 3 month old and will be having my op next week.

How did you manage with the baby and you treatment?

How did your treatment go? 

How are you doing now?

Hope to hear back from you soon. 

Cheers xxx 

Hi, 

How are you doing, its been a while you signed in here but I just wanted to reach out to you seeing you also had a baby to tend to while dealing with this dreadful disease. I have a 3 month old and will be having my op next week.

How did you manage with the baby and you treatment?

How did your treatment go? 

How are you doing now?

Hope to hear back from you soon. 

Cheers xxx 

Hi AWW,

My baby is now a 26 month old monster toddler :) I am doing better and having regular checks with my oncologist and surgeon. I am currently on tamoxifen.

I actually couldn’t manage anything within the two months post op hence I had to ask for help so I was lucky my mum came to stay with us. My husband and my mum helped me go through the worst as otherwise I wouldnt have been able to look after my daughter. I hope you also have some support as you will need it.

Surgery was the hardest part of the treatment and then I had radiotherapy, luckily I didnt have to have chemotheraphy. 

I also went back to work mid March on a phased return but since last week I moved back to my full time hours.

I feel more tired than before and dealing with some side effects of tamoxifen but it is currently managable.

I will be thinking of you next week. Please keep us posted.

Canarijaune xx

Hi Canarijaune,

It sounds as if you are doing really well. I'm glad to hear that your mum and hubby have both helped you out with the baby. It took me all the energy I had to look after my two at that age and, that was when I was in the whole of my health!

You will naturally be tired if you are now back to work full time and, then dealing with the wee one when you arrive home. You need to be careful not to overdo things - just listen to your body.

What sort of side-effects are you getting with Tamoxifen? I'm glad to hear that they are currently manageable.

Yes, there is a private messaging facility on this site. You have to send a friend request and, this has to be accepted, before you can communicate in this way. You will find instructions on how to do this under 'Help using our Forum' at the top left hand margin of this page.

I hope that you will find your energy levels building up, now that your radiotherapy is behind you.

Look forward to hearing from you and, happy to give a potted version of the past 9 years.

Kind regards,

Jolamine xx

Hi dear, 

Yes am glad you are feeling OK apart from the tiredness, hopefully that will also be controlled soon. 

Yes I have my mum and hubby helping me, my mum has been a star, I don't know how I would have been able to manage with out her. 

My diagnosis is similar to yours, high grade dcis with micro invasion. 

Did you have lumpectomy or mastectomy? I am having mastectomy with immediate recon using implant.

I hope to have clear lymph nodes too. 

Will keep you posted. 

Cheers xxx 

Hi AWW,

I am glad to hear that you have your mum and hubby on standby  to help you out with the baby for the next few weeks, as you will be a little tender for a while after your op.

I shall be thinking of you next week and hope that it all goes well for you.

Kind regards,

Jolamine xx

 Thanks Jolamine, you have been so helpful. 

Hi AWW,

Sorry to hear about your diagnosis but it is good news of the bad news that it is early stage. Did you also find out if yours is hormone positive?

I am glad that you have a good support team to help during this difficult time. I had lumpectomy but it was called LICAP flap so it was a reconstruction from my own tissue. Do you know the date for your mastectomy?

I will be thinking about you.

All the best with the operation. Keep us posted.

Canarijaune xx

Thanks for your kind words, yes my op date is May15th. 

Is LICAP flap using your back tissue? I can't remember reading about LICAP flap. 

Hi Canarijaune,

I am happy to accept your friend request, but seem to have lost your request before I managed to post a reply.

Could you please try and send another request? This has happened to me a few times in the past week, but I'm not sure why. 

Kind regards,

Jolamine xx

Hi AWW,

i will be thinking of you on the 15th May.

Licap flap uses the back/side tissue and it involves an incision quite big starting from under the breast and goes all the way back to your shoulder blade. The scar isnt too bad now so i amhappy with the result. However in my case as the tumour was near my nipple my surgeon had to remove the whole aerola area so I have another scar there without a nipple. Just a patch of skin. In a year’s time there will be the possiblity of nipple reconstruction and tattooing to make it look same as the other one.

Thank you for explaining to me, i am loosing my nipple too so I guess it will be similar to yours. 

All so daunting but at the same time reassuring because of you all sharing your experiences and showing us that it is do able.