Breast total duct excision

Back in June I started having bleeding from my nipple and found a lump in my breast, my go quickly referred me to the breast clinic where they did a ultrasound on the lump and I was examined by a specialist nurse. They were happy the lump was just glandular tissue and sent me merrily on my way .But then I was called 6 weeks later for review with a consultant. She announced that even though the lump is nothing to worry about, the discharge is concerning and she wants to do a total excision of all the ducts in that breast as this is the only way to find out what is causing the discharge/bleeding and as cancer is a possible cause it needed to be done to rule this out.  So I’m booked in for this in a few weeks. I’m really worried. About the procedure, the recovery, the scaring and the waiting for the results! I’m only 38 and really struggling to deal with my emotions at the minute. Finding myself very weepy. Has anyone else had this procedure? 

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  • Hi, I am facing the exact same thing at the moment. I am waiting for my date for the opperation and it should be through in the next couple of weeks. I had bloody discharge from my nipple and puckering around the left breast. Scan didnt show any lumps or anything like that but the consultant said i need the oppeation to check for anything else. Im 36 so about the same age. Im finding things hard to cope with at the moment also. Hopefully someone who has actulally been through the procedure will be along as i would like to know the same answeres as you. Take care of yourself xx

  • Hi Lisa I’ve got my pre op assessment in a few days so I’m hoping to be able to hold it together to be able to ask the questions I need to although I’m finding myself a emotional wreck so this is doubtful!   Hope you get your appt through soon. All the waiting is awful. 

  • Hi Littlestar,

    I had my pre op last week but still dont have the surgery date. I completly forgot all the questions i supposed to ask so i would either take someone with you or write them all down, neither of which i did. I have been going back and forth for a few months like yourself the waiting is the worst bit. Hopefully the end is in sight for both of us.

  •  

    Hi Littlestar and Lisa,

    I am sorry to see that you are both in the same position and still not sure about the procedure. As you have discovered, it is always best to take someone with you to your appointments. It is also a good idea to draw up a list of questions before each appointment. I have had 2 bouts of breast cancer and have had a lumpectomy first time around and a double mastectomy second time.

    I see that Lucie has suggested that you contact nix81. This is a good idea. You might also find it helpful to use the search facility on the blue banner at the top of this page. Insert total duct excison of breast or similar search words and this should bring up previous posts on this subject.

    This is an awful stage. You don't know what is happening, or what will be found, so fear of the unknown is a big issue. Most of us find that our emotions are all over the place in the early srages. Just warn your family that you are not yourelf at the moment. Things will improve once you get your results back. You may find yourself crying a lot. Don't worry about this, as it is a good release valve - just let the tears flow.

    I am thinking of you both and hope that your surgeries go well. We ae always here for you.

    Please keep in touch and let us know how you get on.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Littlestar and Lisa,

    I am sorry to see that you are both in the same position and still not sure about the procedure. As you have discovered, it is always best to take someone with you to your appointments. It is also a good idea to draw up a list of questions before each appointment. I have had 2 bouts of breast cancer and have had a lumpectomy first time around and a double mastectomy second time.

    I see that Lucie has suggested that you contact nix81. This is a good idea. You might also find it helpful to use the search facility on the blue banner at the top of this page. Insert total duct excison of breast or similar search words and this should bring up previous posts on this subject.

    This is an awful stage. You don't know what is happening, or what will be found, so fear of the unknown is a big issue. Most of us find that our emotions are all over the place in the early srages. Just warn your family that you are not yourelf at the moment. Things will improve once you get your results back. You may find yourself crying a lot. Don't worry about this, as it is a good release valve - just let the tears flow.

    I am thinking of you both and hope that your surgeries go well. We ae always here for you.

    Please keep in touch and let us know how you get on.

    Kind regards,

    Jolamine xx

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