colonoscopy pain

i had a colonoscopy on 6th october 2018 it was really painful and the consultant didnt care i was screaming for him to stop and all he said was that it was taking him too long with all my screaming, he eventually aborted the procedure and used a smaller camera which was a little better but not much. he didnt go right to the end of my colon and was very dismissive about my trauma.I felt very let down as nothing was explained to me at all, only that as far as he could see there was no cancer, so what were the lesions on my colon that were seen on a ct scan. I will be reporting this as soon as i can. and by the way NO the sedation didnt work. 

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  • Colonoscopy Pain

    I'm so glad I found your post. I had a colonoscopy with sedation this morning and it was excruitiatingly painful. I was wide awake throughout and in so much pain that I had to be given two doses of Pethadine, not that it made much difference. When it was over at last, I felt shocked and traumatised by the ordeal. The consultant seemed to think I'd made a fuss about nothing, though the nurses who looked after me were much more sympathetic and understanding. Ironically, ten minutes after the colonoscopy finished, the sedation seemed to kick in and I fell into a dazed stupor for the best part of an hour. Never again! If I ever have to have one of these barbaric procedures again I will insist on a general anaesthetic and pay for it if I have to. As far as I'm concerned, all the websites I read which said that colonoscopies are not painful are simply telling lies. Be warned anyone else facing one!

  • I had a colonoscopy last weekend...went privately at the cost of £1800 because was told the sedation on NHS is not significant enough to stop any discomfort. So I was lulled into a rather smug state of mind thinking I was going to sail through the procedure. Oh no! Completely traumatised, the sedation didnot work and the pain was excruciating. I was in tears and was made to feel like I was over reacting. God forbid if I have to have another one. 

    Please check beforehand what pain relief you are given and how much because it can prevent a lot of heart ache.

  • Hi RaeMc, thanks for this information, it's a great relief to hear that. I am waiting for a reply from hospital about my request for GA. What area of country do you live?

  • I have had this procedure twice. With gas and air it was appalling. I sobbed the whole time and was almost breaking the nurses fingers. The procedure was done lying on my side. From what I remember, the 2nd time I had sedation and was more facing front leaning backwards. I watched the whole procedure on the screen and it was no more than discomfort that time

  • Hi Andrea, I am really sorry you suffered as much as all the contributors to this blog. I think it is absolutely appalling that this procedure is actually happening in the NHS. Especially, after reading all these posts. I am going to do my upmost to get this procedure changed.

  • I’ll keep my fingers crossed for you!! I live in Kent

  • Hi I don't really know how this chat works but can I just ask what people's symptoms were of bowel cancer ? I'm waiting for an appointment for a colonoscopy which will be within the next 2 weeks. I'm so scared. I'm 29 and have a 2 year old I always over worry at the best of times. I'm so stressed. Xxx

  • I had a colonoscopy 15 years ago... It was unbearable and had to be terminated... I have a decent pain threshold and it was unbearable.  I am now incredibly worried as I was casually told they found several polyps but did not schedule any follow up or gave me any impression that it was anything to worry about.  I was in my late 20s at the time and that I had IBS.  I now regularly experience various symptoms including regular mild blood loss but more recently, repeatedly I have gone over a week with no bowel movement (and when I do it is always underwhelming), fatigue, incredible pain, then uncontrollable diarrhea with now very heavy blood loss... I have also noticed that I cannot gain weight ( although I can bloat ) even with  little or no excercise, if anything I am eating the same, exercising less and losing mass..... Is this anxiety or am I right to be worried... Any sensible thoughts appreciated

  • I had my first colonoscopy on Friday - it was indeed torture and had to be aborted - felt like surgical knives being pushed inside me. I screamed the theatre down in pain. I will never have it again despite double dose of sedative. Picolax prep also horrendous vomiting sweating and nearly passing out. 3 days later still have abdominal pain which I'm not sure whether I need to get checked out or not - no bleeding though. Is that normal ?

  • I had my first colonoscopy 3 weeks ago, I was sedated and sailed through it - happy days! I was told I needed another one to continue the colonoscopy as I had 5 poylps obstructing the rest of the way so they would be removed and the colonoscopy finished.  I went into the 2nd procedure yesterday relaxed (if completely drained and wobbly from the laxatives!), but it couldn't have been a different experience!  I screamed and screamed throughout the whole thing, they had to double the sedation, (which still didn't help with the pain) and I have been left woozy and wobbly and very traumatised!  Afterwards they needed the bed, because they were doing so many others that day, so they forced me awake and my husband had to take me back to the car in a wheelchair!  The two experiences were like chalk and cheese.  I have to have another one, I imagine this is to check that the poylps have healed (although I haven't been told anything), and then another procedure on large, bleeding haemerhoids, so 2020 is an awful year for me (on top of the Covid situation).

  • I'm so glad to have found other people who have had a similar experience to me. Don't get me wrong, I'm very sorry for all your bad experiences but feel like I'm not alone in this and 'making a fuss over nothing'.

    I've had 7 colonoscopies. I've had ulcerative colitis for 35 years which is very well controlled and I don't 'suffer' with it. Joy of joys though, I also developed what my GP thinks is IBS around 15 years ago. Again not much of a problem except for 2-3 times per year when I get extreme pain. This has got worse with every episode and has now become totally unmanageable. I used to get by with Buscopan, paracetamol and colpermin but not any more. I ended up in A&E on morphine and my GP has now allowed me to have a small bottle of Oramorph at home (I've used it only twice and it took the edge off).

    I have had no answers from my GP or hospital consultant and I would say they take so little interest that I wonder if they believe me when I describe how severe the pain is. I'm a very petite person and gave birth to 2 bouncing baby boys, one of them posterior, with a quick suck on the old Entonox. Easy peasy. I don't consider myself to be making a fuss over a small thing.

    I had a colonoscopy 3 years ago and the sedation was utterly useless. It has to be a much lighter sedation than in my previous colonoscopies because I had no memory of those and went home happy but absent minded. All back to normal in short order. I discussed my experience with my consultant and he said he would do it himself next time. That was today.

    Again sedation was completely ineffective and the pain was excruciating despite me telling everyone involved about my last experience. They had to abandon after getting very little done and now I feel traumatised and tearful because I went through all that again and have no useful results.

    WHY the heck has sedation changed???

    I'm heartened to read on this thread that general anaesthetic might be offered in exceptional circumstances and will bring this up in my review. Has anyone successfully had this?

    Plenty of Googling leads me to believe I have visceral hyperalgesia/hypersensitivity. This seems to be well known amongst bowel disease/IBS sufferers but a foreign idea to my GP and consultant.

    I'm not wasting 2 days doing bowel prep and going in for this again when it leads to ridiculously excessive pain and no useful results. Not happy at all ️

  • Hi I  have just had the same procedure and I like you also felt that not enough time was given for the medication to  work  hence a aborted colonoscopy 

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