I feel for you and your predicament. My situation is not too different to yours. I first went to my GP in Feb 21 complaining of a lump in my throat and not being able to swallow food properly. In fact I 1st reported it through NHS 111 who just told me to get some Lansaprizole tablets. Cutting a long story short, my GP referred me on under the 14 day rule. Since then I have had an, X-Ray, endoscopy, Barium Swallow, Ultrasound which then located a 3.4cm nodule on the right hand side of my thyroid, another ultrasound followed by a fine needle aspiration. The findings of which were inconclusive due to insufficient biopsy matter being collected. I now have to have another FNA done on 2and Nov. This is nearly 9 months since I first reported it. I don't know whether the Consultants are not concerned about the outcome but it is starting to worry me about how much time has elapsed since I noticed this and I still have no diagnosis. 

I hope that you are now at the other end of the tunnel and that your mind is at rest. Best wishes.

Hi Moleya,

There was a 7 month gap from when my lump was initially discovered until surgery. Generally these things grow slow. Have you noticed a more rapid growth in the lump or any change in symptoms?

Keep after them as I know that waiting is the horrible part. Hopefully you'll get an answer soon.

Sorry not sure how all this works. 

My Daughter who is 20 yrs old has recently had a fine aspiration biopsy done on her Thyroidand, it came back inconclusive. The size of the lump is 1.4 x 1.5 x 3.3 cm and classified as a u2/u3 suggesting a category as a Thy1c. We have been back today and they have given the option of having half the Thyroid removed or another biopsy. My daugher chose the latter because she really didnt know what to do. She struggles sleeping at night because it’s pressing on he windpipe and she has a hoarse voice. Really don’t know what to do because there saying It will be probably benign. But what if it grows bigger. It’s all very confusing. And it has took such a long time to get to this point. 

If it's causing breathing difficulties, it's going to have to be removed at some point. 

As Hoof1 said, if it's causing breathing difficulties, probably best to remove half of the thyroid even if it is benign, as it probably is. 

I had my thryoid and all the lymph nodes at one side of my neck removed and it wasn't that bad. Obviously, nobody wants any operation, but removing half the thyroid should be manageable. Just to give an idea, I was back at work a month after my operation and getting on with my life. I imagine if it had only been the thyroid that was removed, I would have been back at work after two or three weeks.

Hi there,

I had two thyroid nodules identified 5 years ago and had an indeterminate FNA. In the last year year my largest nodule has grown by 1cm to 2cm and a further FNA was also indeterminate. I saw a consultant yesterday who recommended surgery.

Is this similar to other people's experience? Would you have a second opinion?

Thank you for sharing similar experiences, it really helps x

Hi there,

I had two thyroid nodules identified 5 years ago and had an indeterminate FNA. In the last year year my largest nodule has grown by 1cm to 2cm and a further FNA was also indeterminate. I saw a consultant yesterday who recommended surgery.

Is this similar to other people's experience? Would you have a second opinion?

Thank you for sharing similar experiences, it really helps x

Hello

This thread is really helpful and reassuring. I'm probably going to have a partial thyroid removal and I'm really worried about the after effects. How does it affect your voice?  I'm a teacher and on top of the anxiety of what they will find, I'm really worried about how my voice will cope (nodule is very close to my voice box).

HI , 

just wondered if anyone had simalar experiance 

I found a lump in my right thyroid around 20 weeks ago now, i was ref to the ENT on an urgent 2ww referall , i was seen and given an FNA ultrasound which came back as no malignant cells seen ? im guessing u2 . consulatnt was happy to leave me however due to the size it was causing dysphiga and it was crushing my windpipe im 3 weeks post op today and still havejt even been told what they have taken out sick note says subtotal thyroidectomy and i signed consent form for right side hemithyroidectomy for compressive symptoms. 

the lump was sent off for testing and i have results and follow up app on monday i have a gut feeling these will come back as cancer i have probably worked my self up though.

any one else had a benign result and once taken out confirmed as cancer ?

Please try not to worry. Even in the absolute worst case scenario, and I reckon it is unlikely, though I haven't had any experience of this, thyroid cancer is usually cured by the removal of your thyroid, so...the odds are that even in the worst case scenario, it simply means you will have to have another operation to remove the rest of your thyroid and that will likely be that. Yeah, that will mean you will have to take medication each day to make up for not having a thyroid, but that's not necessarily a problem either. And it is unlikely it will be cancerous.