Thyroid nodule...inconclusive biopsy and possible surgery

Hi Everyone, 

I went to the doctors with a pulled neck muscle around 3 months ago and whilst she was examining me she found 2 swollen lymph nodes which she wanted checking out so I was referred for an ultra sound scan. Whilst having my scan they found a small nodule on my thyroid but was reassured that it looked fine but he would be mentioning it on my report. I was then referred to ent by my gp and the consultant there had a good look at my throat etc and seemed unconcerned but wanted the thyroid consultant to look at it. When I got to the thyroid consultant he seemed very concerned  and told me the nodule looked “abnormal” and was sent straight for a biopsy! After a a scary 2 weeks my results have come back as inconclusive and I have been given the option of another biopsy or to have it removed. Forgot to mention that my thyroid is also slightly over active and I have an appt with endricology in Nov. 

Has anyone else been in a similar situation? My anxiety is through the roof 

 

Emma

  • Thank you both for replying:happy:  the consultant hasn't even mentioned about thyroid cancer, I haven't seen him since he referred me for the first ultrasound. Dr google does have a lot to answer for, however I wouldn't have come across here without it so it does occasionally have its benefits! I chased his secretary today who said she was chasing the results so fingers crossed I'll hear next week, I'll update when I do.

    Thank you again for taking the time to reply.

  • Hi Everyone, good to find this place for information exchange. I have started US scan January 2020, was normal until August 2021. Both US scan and biopsy in August 2021 showed inconclusive conclustion, and I was given option to remove thyroid or repeat scan and biopy by the consultant. I chose the 2nd one. I dont think it was fair for me to choose, as I am not professional.

    The 2nd scan was done in middle of this September, showing normal, 2nd biopsy was did last Wednesday, result will be available in 3 weeks. As everyone here can imagine, I am nervious and axious for the result. Don't know what to do if the 2nd biopsy come back as "Indetermined" again. Anyone had similar experience as me? what did you choose?  

    All of the scan and biopsy are within private, very slow, feel disappointed. I am thinking to take it back to NHS. Would be appreciated if anyone can share your experience with NHS or private.

    Have a nice weekend!

  • Not sure if this will be of any help, as I did not have the experience of getting an indetermined result. Mine was clearly cancer. I was, however, warned it was a possibility and asked if I wanted it removed anyway or to go for a second biopsy. Like you, I said that if that did happen, I would choose a second biopsy. However, if it came back indetermined the second time, I think I would at that point go with removal.

    Having my thyroid removed has really had little to no impact on my life. I missed a month of work (but it would have been less, maybe just two weeks, had it only been the thyroid; I also had lymph nodes removed which meant a significantly more serious operation) and I get some tingling in my neck and I have to take medication each morning, but that's it. It hasn't really made that much difference to my life.

    Try not to worry. The odds are that the results will come back as benign and even if they don't, the worst case scenario isn't necessarily life changing or anything. 

  • Many thanks for replying me, that is encouraging!

  • I feel for you and your predicament. My situation is not too different to yours. I first went to my GP in Feb 21 complaining of a lump in my throat and not being able to swallow food properly. In fact I 1st reported it through NHS 111 who just told me to get some Lansaprizole tablets. Cutting a long story short, my GP referred me on under the 14 day rule. Since then I have had an, X-Ray, endoscopy, Barium Swallow, Ultrasound which then located a 3.4cm nodule on the right hand side of my thyroid, another ultrasound followed by a fine needle aspiration. The findings of which were inconclusive due to insufficient biopsy matter being collected. I now have to have another FNA done on 2and Nov. This is nearly 9 months since I first reported it. I don't know whether the Consultants are not concerned about the outcome but it is starting to worry me about how much time has elapsed since I noticed this and I still have no diagnosis. 

    I hope that you are now at the other end of the tunnel and that your mind is at rest. Best wishes.

     

  • One thing that might be a little reassuring is that thyroid cancer is usually very slow to develop. It is very likely I had it for at least 5 years before it was diagnosed. Looking back at photos now, I can see the lump on my neck in pictures from 3 or 4 years before I was diagnosed. I did not notice it at the time, but now that I know what to look for, I see it.

    And when I was diagnosed, the consultant was like "well, it's not going to do anything in the immediate future, but psychologically, it's better to get it removed as quickly as possible." A nurse later said it was better to do it now as I am young and healthy and would get over the operation more quickly than if it were left until I was older. So they didn't seem to even think it needed doing within the year. And I had a very large nodule - the whole thing was 10.5cm and the cancerous part was 6.7cm. 

    Hope you get a positive outcome and it turns out to be completely benign, but I just thought I'd mention the fact that thyroid cancer grows slowly and waiting nine months is likely to make no difference to the outcome even if it is cancer.

  • Hi Moleya,

     

    There was a 7 month gap from when my lump was initially discovered until surgery. Generally these things grow slow. Have you noticed a more rapid growth in the lump or any change in symptoms?

    Keep after them as I know that waiting is the horrible part. Hopefully you'll get an answer soon.

  • Sorry not sure how all this works. 

     

    My Daughter who is 20 yrs old has recently had a fine aspiration biopsy done on her Thyroidand, it came back inconclusive. The size of the lump is 1.4 x 1.5 x 3.3 cm and classified as a u2/u3 suggesting a category as a Thy1c. We have been back today and they have given the option of having half the Thyroid removed or another biopsy. My daugher chose the latter because she really didnt know what to do. She struggles sleeping at night because it’s pressing on he windpipe and she has a hoarse voice. Really don’t know what to do because there saying It will be probably benign. But what if it grows bigger. It’s all very confusing. And it has took such a long time to get to this point. 

  • If it's causing breathing difficulties, it's going to have to be removed at some point. 

  • As Hoof1 said, if it's causing breathing difficulties, probably best to remove half of the thyroid even if it is benign, as it probably is. 

    I had my thryoid and all the lymph nodes at one side of my neck removed and it wasn't that bad. Obviously, nobody wants any operation, but removing half the thyroid should be manageable. Just to give an idea, I was back at work a month after my operation and getting on with my life. I imagine if it had only been the thyroid that was removed, I would have been back at work after two or three weeks.