Hi Emma,

I am in a very similar position at the moment however I am waiting for my biopsy results to come back. I had the biopsy done last Monday along with a CT scan. Having spoken to my consultants secretary, she’s advised that my CT results are back however the biopsy results are still with the lab (even though my radiologist at the time told me they’d be back within 4 days). They won’t tell me my CT results until I get my biopsy back so the consultant can paint a full picture which is understandable. 

I have lumps on both sides of my thyroid, the right coming in at 4mm. My consultant has told me he’s pretty certain I’ll need surgery in the near future but I’m not sure if they’ll remove the whole thyroid or not yet.

I have been told that it could be thyroid cancer from one doctor and the next isn’t so sure - so I’m really unsure what I am supposed to think - just trying to stay positive and block it out but I still haven’t got a results appointment booked which is frustrating!! I was told I must cancel a two week holiday for these tests and it’s been 8 weeks since my initial two week urgent referral. 

I feel frustrated for you that after a long two week wait your results have come back as inconclusive and you’re now having to weigh up the pros and cons of having surgery or opting for another biopsy. Hopefully you’ll figure it out and stay positive (easier said than done - I know!) 

xx 

Hiya! 
 

I hope you don't mind me asking but are they worried the 4mm nodule is cancer? My ultrasound picked up two nodules one was 1 cm and the other one was just over 1cm but apparently are U2 graded so do not warrant an endocrinologist appointment but seeing your comment has made me think maybe I should push for the appointment? X  

Thanks for replying, just that when you Google benign symptoms for thyroid nodule, all you get is symptoms for cancerous ones. Apart from the clear the throat cough I have no pain or lumps/swellings. Also I was told the CT scan never showed any cancer in surrounding or nearby areas which was good to know.  Got to keep my fingers crossed I suppose.

Hope all is well with you too.

Google is terrible! lol

I studied hundreds of US scan images on Google trying to compare it to my own and identify if its cancer or not, and found features of not cancer. It didn't look as bad as some of those you find.

Thyroid cancer is apparently quite rare (though it doesn't look like it when reading this forum), and it's the best cancer you can get (if such thing exists, best cancer), as it grows very slow and does not tend to go in other body parts. So usually people get rid of it completely without any complications.

You need to keep an eye on it, if the lump grows, and have another check up in a few months time. If they offer you FNA, go for it. 

All the best of luck,

Maryna

Glad to say that I got an ultrasound on my neck area a few days ago and it is benign, the doctor said it should not cause any problems. Not sure what size the nodule is as was just so relieved at the time. Will most likely get a letter with regards to any follow up visits needed.

That's great news! Glad it turned out  nothing to worry about.

It's worth to keep an eye on it and make sure they do regular check ups every 6 months.

I am still waiting for my results and its past 3 weeks they promised

Thank You. 

Will chase them up if I don't hear anything back. Is it scan results you are waiting for?

Got to say that in my experience of scans/ultrasounds that they soon flag it up if something bad is found and let you know, so the fact that you have not heard anything is maybe not a bad thing although I fully understand that we all want results back asap. Anyway let me know how you get on and hope all is okay 

No, it's histology report I am waiting for, after they took the part of thyroid with the lump out, basically to say cancer or not-cancer. They take forever on some reason. Nothing came from the lab yet, and when it does, doctors will be having a meeting to dicuss...

I probably won't know till the end of next week now the earliest...

Hi there, I hope you are keeping well.

I now know that I have cancer :(

It is a "better" one, follicular variant of papillary carcinoma, encapsulated, non-invasive and doesn't look like lymph nodes spread. But because of the size 4.5cm they will have to do completion thyrodectomy (remove the rest of my thyroid) on 29th of September. Depending on findings, it will be decided if I need RAI treatment or not.

Keep an eye on your nodule, even if its benign.  Mine supposedly was back in November... it's a question I have for them, how comes it turned large cancer 6 months later?

Wishing you all the best:)

On the subject of nodules.

I had a 0.2cm benign nodule on my right lobe and then on my last scan they said there were no nodules. Apparently they can disappear?!

Hi, sorry to hear about your experience. 
 

Do you mind answering whether your biopsy results came back benign or were they inconclusive? 
 

I discovered a lump in my thyroid a year and a half ago. I've had 3 biopsies so far (first - negative and other 2 benign). They have had problems with my biposies because my cyst is very vascular. I have been offered surgery but my surgeon said she is sure it is benign. I was very against surgery but in the last 6 months i have spoken to 2 people who have been told their lump was normal, demanded surgery and it was later discovered to be cancer. 
 

I'm a bit unsure of what to do 
 

I am booked in for my 4th ultrasound/biopsy in May and am now debating just getting the surgery. 

Hello

I am sorry to hear about scenario.  It is the worst when you cannot get the answers.

My second biopsy came back as thy3 a, which was inconclusive with abnormal cells,  comparing to benign half a year earlier. 

But the surgeon called within 3 days saying he recommends the operation,  when before I waited for 6 weeks.

The operation was done a month later. I waited for the results for a very long time,  and it was confirmed papillary carcinoma of follicular type.

I am in a cancer group on Fb, and there are lots of people whose lumps were thought benign,  but turned out cancer, myself included. Doctor said it was cancerous half a year before when biopsy showed benign.  It's just the needle takes very little cells and the dodgy areas can be missed. 

You can wait and see what US says. If it is U2, you can hang out and wait, if U3, have it out. My US was always showing U3, and so was people's in cancer groups as far as I remember... Remember,  even with U3 Thy3 it is still good chance of it being benign. But to my mind, at this stage it is better to have it out. The process started there, cells are changing, it is a matter of time...

Wishing you health and best of luck in the outcome:)

Hello

I am sorry to hear about scenario.  It is the worst when you cannot get the answers.

My second biopsy came back as thy3 a, which was inconclusive with abnormal cells,  comparing to benign half a year earlier. 

But the surgeon called within 3 days saying he recommends the operation,  when before I waited for 6 weeks.

The operation was done a month later. I waited for the results for a very long time,  and it was confirmed papillary carcinoma of follicular type.

I am in a cancer group on Fb, and there are lots of people whose lumps were thought benign,  but turned out cancer, myself included. Doctor said it was cancerous half a year before when biopsy showed benign.  It's just the needle takes very little cells and the dodgy areas can be missed. 

You can wait and see what US says. If it is U2, you can hang out and wait, if U3, have it out. My US was always showing U3, and so was people's in cancer groups as far as I remember... Remember,  even with U3 Thy3 it is still good chance of it being benign. But to my mind, at this stage it is better to have it out. The process started there, cells are changing, it is a matter of time...

Wishing you health and best of luck in the outcome:)

Hi! 
 

I don't really know if this is the right place or thread to post so if I'm wrong then let me know! 
 

I don't really have a great detail of knowledge about what's happening but I'll give you as much background as possible. Basically 7 years ago I was diagnosed with an underactive thyroid. And I took thyroxine up until 2 years ago when pregnant with my youngest. I had hypermesis so was unable to keep the medication down. Anyway had bloods taken constantly and my levels were coming back totally normal. Still are now showing as normal. All my other bloods are fine too including WBC. 
 

For the past year I've had a raised lymph node in the back of my neck. It's squidgey and is able to be moved when pressing. Accompanying that I've had pain in my neck that whole time and also a sore throat with some hoarseness. The doctors have done bloods but have said everything was fine so sent me on my way. I've been seen multiple times for the same issues over the past year. The pain has started to spread into collar bone and armpit. So I went back again and they sent me for an ultrasound eventually 'for my peace of mind'. Scan showed my lymph nodes in my neck (didn't check elsewhere) are reactive. And I have a cystic thyroid nodule on the bottom left. Doctor said it's probably not cancerous but not happy to leave it so has put me on the 2 week wait for a FNA. She didn't tell me the size of the nodule. So I'm currently waiting for an appointment. 
 

I guess I just wanted some reassurance more than anything or just someone to talk too. I have quite severe health anxiety so as you can imagine google has not been my friend. Symptoms are fatigue, sore neck down to under armpit. Hoarse voice,sore throat in the evenings,  hair loss, dry scalp, itchy forearms, slight pitting in fingernails. Just wondered if anyone else has similar symptoms and what your outcome was? I'm 35 next month. 
 

Thanks so much if you've read all that. 
 

Sam xx

Hi Sam,

I don't think symptoms is a reliable indicator whether a nodule is benign or not. We all do the same with Google and I think you sometimes convince yourself you have symptoms when reading them. 

To my knowledge, cysts are usually benign, although my consultant told me mine would likely be benign. I don't go by statistics too much. Not trying to scare you, it's just I was blindsided when I got my diagnosis. Then again every case is different and yours could very well be benign. Hope all goes well.