Thyroid nodule...inconclusive biopsy and possible surgery

Hi Everyone, 

I went to the doctors with a pulled neck muscle around 3 months ago and whilst she was examining me she found 2 swollen lymph nodes which she wanted checking out so I was referred for an ultra sound scan. Whilst having my scan they found a small nodule on my thyroid but was reassured that it looked fine but he would be mentioning it on my report. I was then referred to ent by my gp and the consultant there had a good look at my throat etc and seemed unconcerned but wanted the thyroid consultant to look at it. When I got to the thyroid consultant he seemed very concerned  and told me the nodule looked “abnormal” and was sent straight for a biopsy! After a a scary 2 weeks my results have come back as inconclusive and I have been given the option of another biopsy or to have it removed. Forgot to mention that my thyroid is also slightly over active and I have an appt with endricology in Nov. 

Has anyone else been in a similar situation? My anxiety is through the roof 

 

Emma

Parents
  • Hi Emma,

    I am in a very similar position at the moment however I am waiting for my biopsy results to come back. I had the biopsy done last Monday along with a CT scan. Having spoken to my consultants secretary, she’s advised that my CT results are back however the biopsy results are still with the lab (even though my radiologist at the time told me they’d be back within 4 days). They won’t tell me my CT results until I get my biopsy back so the consultant can paint a full picture which is understandable. 

    I have lumps on both sides of my thyroid, the right coming in at 4mm. My consultant has told me he’s pretty certain I’ll need surgery in the near future but I’m not sure if they’ll remove the whole thyroid or not yet.

    I have been told that it could be thyroid cancer from one doctor and the next isn’t so sure - so I’m really unsure what I am supposed to think - just trying to stay positive and block it out but I still haven’t got a results appointment booked which is frustrating!! I was told I must cancel a two week holiday for these tests and it’s been 8 weeks since my initial two week urgent referral. 

    I feel frustrated for you that after a long two week wait your results have come back as inconclusive and you’re now having to weigh up the pros and cons of having surgery or opting for another biopsy. Hopefully you’ll figure it out and stay positive (easier said than done - I know!) 

     

    xx 

     

     

  • Hiya! 
     

    I hope you don't mind me asking but are they worried the 4mm nodule is cancer? My ultrasound picked up two nodules one was 1 cm and the other one was just over 1cm but apparently are U2 graded so do not warrant an endocrinologist appointment but seeing your comment has made me think maybe I should push for the appointment? X  

  • Hey,

    I actually had surgery in December 2018 to remove half of my thyroid and the nodule which was of concern. Thankfully it turned out to be completely benign (the head of ENT did say to me before surgery he thought the chances of it being cancerous were slim, which they say is the case for the majority of thyroid nodules however because I had a few conflicting opinions from other consultants, he felt it was best to remove the lump and test it, rather than to be at risk of it being something nasty)

    If the consultant have said they are not concerned then trust them - I know that's easier said than done (believe me I've been in your shoes!) but they do know what's best. I've actually got a 3/4cm nodule on the remaining half of my thyroid which was checked at the start of the year, it had been scanned and they discharged me as it's of no concern whatsoever. Hopefully that gives you a little piece of mind. You know your own body, if you notice any changes in size etc then always get it checked out. If I can answer any other questions please let me know x 

     

     

  • Hi everyone

     

    I'm new here and have valued reading your posts here. I had a partial thyroid lobectomy yesterday as two biopsies have failed to determine whether my nodule is benign or malignant. I think the first came back Thy3a and the second Thy3f but I've never completely understood those terms. The nodule was an incidental finding on a scan for something else over a year ago. I don't believe I have any symptoms but sometimes I think my mind plays tricks on me. It has been a really long time to get to this point. I was told I needed the operation just before lockdown but that i would have to wait for lockdown to ease before they could schedule cases like mine. It has been a very long 15 weeks of working full time, looking after two small kids and worrying almost non stop. I am so exhausted. Now I have to wait another 2 weeks for the results. Hope everyone else waiting and wondering is able to stay strong.

  • Hello

    Waiting is the worst part. I am sorry you had to wait all through lock down too. What symptoms did you think you have? 

    I have thy3 as well, 6 months after its being benign. It's grown 7mm too and I don't like the look of the lymph node on the side of the lump which is enlarged and hurts.

    My operation is in a couple of days time (Mon 13th), then waiting for results, like you have at the moment

    In hope all goes well for you. 

     

     

  • Had CT scan about a month ago, got results last week which mentiones a couple of other things which do not seem serious,. Although at the end it said Ihad a nodule on my thyroid which was found by chance . I then had a consultation on the telephone a few days ago and was told I would need another scan/x-ray to get a closer look at the nodule  They were unable to tell me whether the nodule was benign or cancer but was told they are siding with it being benign. What I am worried about is that I have had a sort of clear my throat cough which comes and goes since the start of the year. Does anyone know if a benign nodule can still cause symptoms like a cough. Thanks 

Reply
  • Had CT scan about a month ago, got results last week which mentiones a couple of other things which do not seem serious,. Although at the end it said Ihad a nodule on my thyroid which was found by chance . I then had a consultation on the telephone a few days ago and was told I would need another scan/x-ray to get a closer look at the nodule  They were unable to tell me whether the nodule was benign or cancer but was told they are siding with it being benign. What I am worried about is that I have had a sort of clear my throat cough which comes and goes since the start of the year. Does anyone know if a benign nodule can still cause symptoms like a cough. Thanks 

Children
  • Biopsy is the only way to know. I had no symptoms apart from noticing a lump at front of neck, tired and feeling of having to clear my throat. My blood work was "normal" and the nodule turned out to be cancerous. Thankfully it was slow growing and found it in time (by chance during a gp visit). 

     

    The endocrinologist had me thinking it was going to be benign. Not trying to worry you but make sure you're happy with level of investigation done on it...for your own peace of mind. Every case is different. If the lump is solid and showing calcification characteristics on the ultrasound, it CAN indicate malignant characteristics. Don't jump to conclusions until you have your follow up though. 

     

    Anything you wana know, post here. People are very good at replying. 

  • Thanks and yes I am aware that it may be cancerous or benign.

    Really just wanted to know if you can get a clearing of the throat cough even with a benig nodule or if anybody else had a similar cough and it ended up being benign.

    Hope you doing well though.

  • Hello there,

    Benign nodule can easily cause all sorts of symptoms. Sonographer told me, the larger it is, the more you will feel it.

    Unfortunately quite often they  cannot say from US scan if its cancerous or not.

    When I had my scan done, it came back as U3, which means "unidentified". It had characteristics of both benign and cancerous nodules. Next step was FNA (biopsy), when they put a needle in your neck a few times and get some cells for tests.

    First time, half a year ago it came back as Thy2, which is benign.  But very often it comes back as Thy3, which, again,  means they cannot say what it is. Then the only way to find out is to remove half a thyroid with the nodule and send it to lab.

    My second biopsy half a year later came as Thy3a (atypical), and I now had operation to take it out. But still didn't get results on if its cancer or not. It's a 3 weeks wait and I should know next week hopefully. 

     

    If yours is causing you discomfort, it is very likely it will be removed, even if it comes back as benign after biopsy. Mine came to the point of constant earache, jaw ache, weird cough and sensations when swallowing. It was pretty large, 7x5cm. Now when it's gone, I couldn't believe how thinner my neck looks.

     

    Maryna:)

  • Thanks for replying, just that when you Google benign symptoms for thyroid nodule, all you get is symptoms for cancerous ones. Apart from the clear the throat cough I have no pain or lumps/swellings. Also I was told the CT scan never showed any cancer in surrounding or nearby areas which was good to know.  Got to keep my fingers crossed I suppose.

    Hope all is well with you too.

  • Google is terrible! lol

    I studied hundreds of US scan images on Google trying to compare it to my own and identify if its cancer or not, and found features of not cancer. It didn't look as bad as some of those you find.

    Thyroid cancer is apparently quite rare (though it doesn't look like it when reading this forum), and it's the best cancer you can get (if such thing exists, best cancer), as it grows very slow and does not tend to go in other body parts. So usually people get rid of it completely without any complications.

     

    You need to keep an eye on it, if the lump grows, and have another check up in a few months time. If they offer you FNA, go for it. 

     

    All the best of luck,

    Maryna

  • Glad to say that I got an ultrasound on my neck area a few days ago and it is benign, the doctor said it should not cause any problems. Not sure what size the nodule is as was just so relieved at the time. Will most likely get a letter with regards to any follow up visits needed.

  • That's great news! Glad it turned out  nothing to worry about.

    It's worth to keep an eye on it and make sure they do regular check ups every 6 months.

    I am still waiting for my results and its past 3 weeks they promised

  • Thank You. 

    Will chase them up if I don't hear anything back. Is it scan results you are waiting for?

    Got to say that in my experience of scans/ultrasounds that they soon flag it up if something bad is found and let you know, so the fact that you have not heard anything is maybe not a bad thing although I fully understand that we all want results back asap. Anyway let me know how you get on and hope all is okay 

  • No, it's histology report I am waiting for, after they took the part of thyroid with the lump out, basically to say cancer or not-cancer. They take forever on some reason. Nothing came from the lab yet, and when it does, doctors will be having a meeting to dicuss...

    I probably won't know till the end of next week now the earliest...

  • Hi there, I hope you are keeping well.

    I now know that I have cancer :(

    It is a "better" one, follicular variant of papillary carcinoma, encapsulated, non-invasive and doesn't look like lymph nodes spread. But because of the size 4.5cm they will have to do completion thyrodectomy (remove the rest of my thyroid) on 29th of September. Depending on findings, it will be decided if I need RAI treatment or not.

     

    Keep an eye on your nodule, even if its benign.  Mine supposedly was back in November... it's a question I have for them, how comes it turned large cancer 6 months later?

    Wishing you all the best:)