I think you did the right thing. 

Inconclusive means they did not detect cancer cells in the sample and if they did not detect cancer cells in three separate samples then that must be reassuring.

My son's first needle aspiration was taken from three angles and cancer cells were detected in the biopsy. He then had another needle aspiration at the specialist hospital. Sample was taken from one angle only and the result came inconclusive as cancer cells were not detected in this sample. But because cancer cells were observed/detected previously, he will need to have an operation to remove all or part of his thyroid. We will find out next week if they recommend removing part or all the thyroid but like you my son is not happy to have all of his thyroid removed and we are going to insist they only remove the right side with the nodule.

Having said that, I have a friend whose daughter was born without a thyroid and she takes one pill a day and lives a normal life. Another friend's mother had all of her thyroid removed many years ago and also led a full life after.

Be strong and stand by your decision. 

My son's op has been booked for June. I hope and pray that proper testing for Coronavirus are in place by then...

Hi. I'm new to this so please bear with me. 

I'm a 34 year old woman and about 10 days ago i discovered a lump on my neck and immediately went in to panic mode. I called my doctor the next morning and she asked me to send her a picture of the lump as they are limiting face to face appointments atm due to covid 19. I sent the photo and she called me straight back to say that it looks like the lump is on my thyroid gland and how long has it been there. I honestly have no idea although it is so obvious now i feel like an idiot for not noticing it sooner.

I went in for a blood test the next day and my bloods came back normal apart from slightly high platelets which my doctor doesn't think is related to my neck lump, but have to go back in 4 weeks for re test. Now, by this point i had barely eaten anything for a week and i'd been having constant anxiety attacks. I've convinced myself i have thyroid cancer based on other peoples stories and i am not coping well at all. I've had blocked throat, swollen lymph nodes, blocked ears and diarrhoea which could just be reactions to extreme anxiety but i'm worried they're related to cancer now.

My doctor could sense how worried i was so tried to hurry my ultra sound along and i've managed to get an appointment next Thursday. My main worry is that i'm going to have to wait for ultra sound results then have a biopsy, wait for those results all while Covid 19 is happening. I dont think i'm going to cope. 

I've read your stories which are inspiring but im absolutely petrified that i have anaplastic thyroid cancer and they won't be able to help me. My family think i'm way over the top and can't understand why i'm so upset and worried. Did anyone else have a massive breakdown through out this process? I'm at my wits end already as i am 100% certain that this is cancer due to everything i've read about it. Doesnt help that i'm going through a divorce as well. Just feel so alone. Cant eat anything or be happy about anything. Just think about cancer all the time. 

Dear Katstar85,

I'm so sorry that you are going through all of this on your own. It is not easy and in many ways not knowing what you're dealing with makes it more scary.
 

In answer to your question yes I very nearly had a break down when I was told my 25 year old son has thyroid cancer. I have also just had a melt down outside UCHL this morning whilst waiting for him to have his pre op assessment done. I wasn't allowed to go in with him and was very anxious about a host of things such as the danger of him picking up coronavirus and the fact that he will be undergoing general anaesthetic to have part of his thyroid removed next week, to mention a few. Most of all I'm upset that he should be going through all of this at such a young age.

My advice to you is to get your investigations done ASAP so you can find out what exactly you are dealing with. Thyroid cancer spreads very slowly which is one piece of good news. 

My son's cancer was diagnosed before the pandemic and only now has he been offered a date for his operation. So in many ways your timing is good as they are just starting to look after non- covid patients.

Please do not hesitate to reach out again if you feel low. You are definitely not alone...

Dear Anna62,

Thank you so much for taking the time to reply to my message, especially when you are going through such a tough time yourself. It's just as hard for loved ones to go through this as it is the patient. I'm so very sorry your son is going through this especially during this awful time but he is in the best hands now and I wish him all the best for his recovery. 

You are so right that waiting for answers is the hardest part of all this and as it is slow growing, the urgency maybe isn't there but I am going to push as hard as I can to get my appointments and results ASAP. I'll even go private if I have to.

Sending you lots of positivity for your sons operation. Please update me on how he gets on. I'll be thinking of him.

Thank you so much Katstar85.

My son's operation is next Tuesday and he can come home on Wednesday. I will keep you updated.

Thanks again and take care.

Hi Hoof1,

Thank you for taking the time to reply to my message.

I have a lump in my at the front of my neck, slightly to the right (looks like a goiter) which moves up and down when I swallow. Since I found the lump I've noticed what I think are swollen lymph nodes under my chin and blocked ears (that click when I swallow). The last two symptoms could be due to extreme anxiety but it's hard to tell. I've also got a painful chest and the lymph nodes under my arms feel a bit sore. Could be from heavy breathing due to anxiety. My throat was extremely blocked at one point but that was definitely due to stress as that has since subsided. I'm such a state at the moment. I keep thinking I have thyroid cancer that has spread to the lymph nodes and in to my lungs. My brain just will not stop! My ultra sound is next Thursday so will just have to wait and see but I suspect I will need a biopsy done. It's just all the waiting for appointments and the constant dark thoughts that are killing me. I was absolutely fine before I found the lump. No symptoms at all. The fact that a doctor hasn't even examined me has not helped.

Did you have any symptoms?

Hiya! 
 

I hope you don't mind me asking but are they worried the 4mm nodule is cancer? My ultrasound picked up two nodules one was 1 cm and the other one was just over 1cm but apparently are U2 graded so do not warrant an endocrinologist appointment but seeing your comment has made me think maybe I should push for the appointment? X  

Hi [@Katstar85]‍ ! 
 

our symptoms sound almost identical! I hope your scan goes well! X 

I had a lump that moved too when I swallowed. No symptoms really. I did notice that when I swallowed it felt that my throat wasn't fully cleared. My mother told me I looked pale and thin in the face. So I got my bloods taken and they were normal. My gp noticed the lump by chance and felt my neck. She thought it felt solid so sent me for an ultrasound, which then led to a biopsy. Asked if I had palpitations, weight change, disturbed sleep, change in period, change in bowel movements, hoarseness, trouble swallowing or pain in neck area.