Hi Emma,

I am in a very similar position at the moment however I am waiting for my biopsy results to come back. I had the biopsy done last Monday along with a CT scan. Having spoken to my consultants secretary, she’s advised that my CT results are back however the biopsy results are still with the lab (even though my radiologist at the time told me they’d be back within 4 days). They won’t tell me my CT results until I get my biopsy back so the consultant can paint a full picture which is understandable. 

I have lumps on both sides of my thyroid, the right coming in at 4mm. My consultant has told me he’s pretty certain I’ll need surgery in the near future but I’m not sure if they’ll remove the whole thyroid or not yet.

I have been told that it could be thyroid cancer from one doctor and the next isn’t so sure - so I’m really unsure what I am supposed to think - just trying to stay positive and block it out but I still haven’t got a results appointment booked which is frustrating!! I was told I must cancel a two week holiday for these tests and it’s been 8 weeks since my initial two week urgent referral. 

I feel frustrated for you that after a long two week wait your results have come back as inconclusive and you’re now having to weigh up the pros and cons of having surgery or opting for another biopsy. Hopefully you’ll figure it out and stay positive (easier said than done - I know!) 

xx 

Hi, i had a large nodule last year and my results came back as negative however due to the size I had half of my thyroid removed (it was approx 5cm but the operation was optional). Once removed over a year later they sent it to histology and today I was officially told that I have cancer. However it’s the best of bad news as the one I have is the most common which is easily and quickly curable and it is contained. Looks like I’ll need the remainder of my thyroid removed and possible radiaiodine treatment but this is being confirmed tomorrow when I go back. 

Im always available if you want to message me with any questions. It appears the waiting for results is the worst! I had to wait a month! X

Hi,

I have just had a lobectomy on the left of my thyroid over a week ago for papillary carcinoma. Size estimated to be around 3.4cm, which will be confirmed by pathology.

The nodule was found by chance during a routine  visit (was having  my bloods checked by my gp the end of March). Reason I went to gp was I had been told I got thin in the face and pale looking. The nodule felt solid and could be seen when I swallowed by my gp. I had no symptoms and was healthy up until this. Bloods were all ok (including thyroid function).

Gp referred me for an ultrasound which was conducted in early/mid April which showed one nodule on the left lobe. Early may I got a cancellation spot for a consult with endocrinologist who examines nodule, reflexes and listed symptoms to see if I had any (which I didn't). He took a blood sample and ecg (all were ok), said it could be benign but will do a biopsy to make sure.

Longest wait ever to get my biopsy. In mid August I had my FNA biopsy which was not as bad as I thought i'td be. Results from it took around 6 days -papillary carcinoma was the diagnosis. I then got referred to the endocrinologist in mid September (same one I saw in May) who referred me to an endocrine surgeon for a consult. Surgeon told me plan to remove left lobe as nodule was <4cm. Said I shouldn't need treatment. Consult with surgeon was end of September who gave me surgery date for Oct 24th.

Had pre op assessment which involved having bloods, bp, health questionnaire/medical history, ecg and vocal cord check which was ok. 9 days over op and doing quite good. Voice slightly hoarse but that should pass, can eat ok, have to be careful with neck movements (was hard to get comfy in bed first few days after), didn't need much pain relief at all (some after op through canula and 2 panadol night after op). They measure BP after it and had me on iv. Took bloods next am which were ok for calcium (that was my ticket home the next day). Wound healing good so far. Have apt with surgeon nov 22nd to check progress. Hope this helps someone who is in similar situation.

Hi I found a small lump on my right side of thyroid got biopsies day of the ultrasound and was told they could only tell it was a follicular lump but inconclusive about cancer, but I was told by the radio waves it was giving of it looked like it could be cancer, I was so scared when they said I'd have to have half my thyroid taken away, anyway 4 weeks ago I had it done and wasn't to bad, but I have a follow up appointment this Friday to get my results I gather, if it is cancer will they have to remove the other half or will it be ok as they took the bad half out it was only seemingly 1 and a half cm, the nodule, can any one help me that's being in the same situation please,

Have you had your results yet Emma? X

Hi Fran

Yes I have had my results and it was benign! I cannot tell you the relief! I see my consultant again today and I'm hoping I'll be discharged. I'm sending positive vibes and bigs hugs to anyone else going through their journey.

Best wishes 

Emma xx

I’m not sure what this is but I will give it a shot if someone can help me plz....I’ve had to have blood tests every 3 months for my thyroid glands and always been borderline until the last one it has shot straight up to number 9...I was referred to hospital to have a scan where they found a nodule and now got to go to the ENT but I’m a little panicky can anyone help thanks x

Hi, 

From my Google searches (which I regret doing caus it makes u think u have symptoms when u don't), USUALLY that is indicative of something benign. 95% of nodules are benign. Have u had any symptoms?- palpitations, weight loss, anxiety, change in bowels, sweating, anxiety. 

There is a small chance it may not be benign but even if that were the case, thyroid cancer is generally very treatable. I myself had a cancerous nodule but it was localised and slow growing. I know it's easy saying it but try not to jump to worst case scenario. 

Hope this helps. Any more questions post on this. 

I’ve been sweaty and keep waking up in the night very tired all the time with no energy anxiety so yes most symptoms 

I'm no doctor, but it sounds like typical hyperthyroidism symptoms, which I think works in your favour (usually benign). Blood tests alone don't conclusively determine whether it's benign or malignant. In my case, my bloods were "normal" and I had cancer. Seemingly bloods are usually "normal" in thyroid cancer cases. 

Have u had any hoarseness or pain in neck?

Once they find a nodule they have to check it out to see whether its benign or not so they can take it out or monitor it. The results should be back quick from it - it should give some indication of what they think it is. 

Apologies for the very late reply, but my experience was that they found cancer in the removed half, but I have not had to have the other side out. 

Mine was inconclusive first test but she said she could do it again and again but come back the same, but I didn't know it was cancer until it was tested when it was out, everyone can be so different. Hope all goes well

Mine was inconclusive first test but she said she could do it again and again but come back the same, but I didn't know it was cancer until it was tested when it was out, everyone can be so different. Hope all goes well