Vulva Sarcoma

Hi everyone,

i would just like to know if there's anyone in here that has had a sarcoma of the vulva.

im so scared this is what I have,  I went to my gp today after I found a small hard lump deep in my labia.  She felt it and said it didn't feel like a cyst and has referred me for an ultrasound.  Everything I've read about this points to sarcoma and I'm truly terrified

I have 5 children including a little boy of 4 months and the thought of not seeing them grow is breaking my heart.

 

any advice would be greatly received 

xxx

  • Welcome to the forum CJsmummy although I'm sorry for the reason you are posting. 

    I know this is a lot easier said than done but try not to research your symptoms online, especially using 'Dr Google', as it has a tendency to make your worries and fears ten times worse.

    Hopefully some of our members who have been in similar situations will be along soon to offer their support and advice but try and stay busy if you can as it does help to take your mind off things and make time pass more quickly whilst waiting for your appointment.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi, 

    Sorry to hear about your current helath concerns. Life is hard and scary for us all. 

    Although i cannot help you personally, I can reccomend you someone who is currently in the public eye and dealing with Vulva Sarcoma. 

    I only know her from her instagram, her username on instagram is Jaydamccannx 

    I'd recommend looking her up and evening contacting her as she is a lovely, honest, down to earth girl who would be happy to help and sympathise with you xx

     

    Best wishes with everything

    Aine xx

  • Hi there I hope you are feeling better now and have found out what was wrong.I also found a lump in my kabia around a month ago but it could have been there longer.itsince really small like a bean shape around 2 millimetres in length I Googled an stressed myself right out,I have a 3 year old to and couldn't  stop worrying.I went to the doctor yest and he thinks a sebacious gland blocked.I'm hoping that  yours was something like this. My lump is in my labia  majora and I can feel ithe inside x

  • Hello,

    I know this is an old post but I just wondered how you got on? I have the same thing