Anyone there to help me calm my nerves please ... Thank you x

Hello there. Don’t know if I’ll be much help here but I’m here if you need to vent. 

I have recurrent periductal mastitis. It does sound very similar.

My gp referred me to a specialist breast clinic, I had an ultrasound and incision to collect pus for the diagnosis and to determine what antibiotics would work best.

I sincerely hope you haven't got it as it's a miserable disease, I have had it 10+ years and im 37. 

Please push your gp & good luck

I also had a biopsy tois rule out cancer etc.

Hi, I’ve just been through exactly the same. GP said I would need ultrasound but at breast clinic he literally looked at it- touched it and said it’s Periductal mastitis. I was already on antibiotics for it as the GP suspected it. I finished my antibiotics yesterday and the pain and redness are already returning xx 

Did you get anywhere with your investigation? I am going through a similar thing but my GP literally doesn't know or won't say what it is. After my 4th visit to her today (had antibiotics for mastitis, I'm nursing, and 3 rounds of various steroid and fungal creams today she's ring the breast clinic to see if they'll ''see me"!

Hi there, my breast swelled up too,had redness from my nipple and about 3inches around my breast,pain and my nipple became inverted and thick like 4cm instead of a normal flattish nipple.   When I googled my symptoms ibc kept coming up, I convinced myself I had it because there were pictures of ibc breasts that looked exactly like mine,I got to the point where I was thinking the worst.ive lost my mother to cancer and her siblings had cancer too all under the age of 50. It’s very easy to allow yr mind to go to dark places but here is my advice,go to the dr straight away to get it diagnosed because it is highly unlikely to be ibc. It is extremely rare.so please don’t worry like I did.after going to the hospital it turned out to be mastitis at 50yrs old.

Hi this reply has really helped me! I'm 54, not had menopause yet and I'm on antibiotics for what the doctor thinks is mastitis. Seems so unusual at my age! I too googled symptoms and it keeps mentioning IBC. Going to have a follow up mammogram after the course of antibiotics. Reading your case really helped. Hopefully this is is a one-off thing - it's painful!

Thanks and take care

Zoe x 

How did you get on? I too am going through this worrying time 

Hi All,

So 2 years ago i was told it was periductal mastitis and was given a weeks antibiotics and told to lose weight. I did all that and ended up with heavy periods and then getting endometrial ablation (Novasure) for it. The Surgery altered my hormones and my breast never did get better. So 2 years later i have been referred back to breast clinic as i still have breast pain and that is even after a period. Still no lump but dense breast. If aches so bad and nothing makes it better. I have also been recently diagnosed with activethyriod and on 50mcg Levothyroxine. I have stiff painful knees  and sacro joint. My ribs and mid back hurt too and it feels so heavy. I am on heavy pain meds but nothing works. The joint issue started in july and my breast has got worse since september now. Whether any of these is inter related i dont know. 

My worse experience was going to breast clinic have 3 male doctors check me and tell me its nothing and as a woman who has had 4 kids should be able to bear the pains. I am scared to go back to the clinic and knowing my husband wont be allowed in. I am sorry i have no actual answers.