Hi All,

I know this is quite an old post from when it began but I am just wondering if anybody has any updates to how they have got on?

Three weeks ago I had a CA125 test and it came back at 41 and I was referred for an US. I told the Doctor it was the last day of my period when I had the test and so a week later I retested and it had come down to 36 which, although it’s not under 35 I thought it was reassuring it had come down a bit rather than going up. I had an US a few days ago and it was clear, apart from a small fibroid which is 1.2cm that I’ve had for a couple of years.

The sonographer told me she couldn’t see anything to be worried about and that my womb and ovaries looked fine and confirmed the small fibroid was there still. I left feeling so relieved.

The next morning, I had a review booked at my GO surgery and assumed she would say there was nothing to worry about because the scan was clear. Instead she has referred me back to gynaecology on the 2 week pathway for suspected cancer and I am now absolutely terrified.

Apart from a bit of spotting between periods, which I honestly thought was ovulation bleed, my only other symptoms are bowel related. I’ve had a clear FIT and am on a standard waiting list already for Gastroenterology.

I have since read the CA125 can be raised for other cancers in addition to just ovarian cancer and I’m so worried now. I’m paranoid of every little ache or pain I feel and I now have to wait another 12 days before my gynaecology appointment.

I am in my early 40’s and still having regular periods with no signs of menopause.

Just wondering if anybody who’s been in a similar situation has had any, hopefully positive results?

I am sorry for the long post and thank you to anybody who takes the time to read it.

Hi hun! 

Did they find out what was going on? My blood levels are 38 and I have pain in tummy awaiting a ultrasound but absolutely terrified xx

Hi Zaraellen19 so in October I saw gynaecology again and had a CT scan on my abdomen and chest. My consultant said these were just a precaution as he didn’t seem concerned about my elevated CA125 result. He said there are other things like periods and endometriosis which can cause the marker to elevate slightly especially in pre-me opausal women. My CT came back all clear and then they booked me in for a hysteroscopy to check out my spotting. It was the same consultant who did the hysteroscopy and he told me there and then everything looked fine and I was being discharged. Since then, my swollen lymph node has gone back down fully and I’ve not had any further issues. My first CA125 was 41. I completely understand how you feel because I was exactly the same and it absolutely ruined several weeks of my life as I couldn’t concentrate or think about anything else. I hope this helps reassure you a little that it’s not always worst case scenario and can be other things. Please let me know how you get on. I really hope all goes well with you and wish you good luck with your scan. Please try to not let it consume you. It made me so miserable and turned out being nothing. Take care of yourself xx