I have no lady bits had them all take away at 46 I am now  66 yrs.Had blood test because  felt abit under the weather  , when doctor got result found CA 125 was high 100. Had ulchsound  found nothing . Doctor  said he his going look into to see what other test I need xx has anyone  out had the same experienced. 

Hi All, I had an elevated level in July 2018 of 50 and had all the relevant scans to be told everything is normal. Yesterday I received my latest result and the CA125 is now at 71. Now being referred for further scans and feeling anxious. Has anyone experienced this and still come away with normal results? 

Hi. Did you have any back pain or other pains at all? X

Hi I was wondering if anyone had any updates on their situations? 

Went to gp with abdominal and back pains. They booked me in for all the bloods including one for ovarian cancer. Result came back abnormal as it was 34. Redid bloods couple days later and risen to 46. Booked me in for emergency scans for 2 weeks time including an appointment with gynae. I am 28 years old with 3 kids and they put tiredness down to having 3 young kids running around me but I am even more tired than usual and can't stop feeling sick. Pains are getting worse ending up with cramps around my hips on my left side. My periods are all up to date so I know it nothing to do with me being pregnant. Any advice would be great as it is keeping me up at nights with worry 

Hi there, I too had abdominal and back pain as well as tiredness. My ca125 went from 44 to 96 within a week and then to 42 and my latest result was 45 (about a month ago) I had an ultrasound and an mri of my pelvis and both have came back fine. I did request an mri of my stomach though as I know ca125 can rise from cancers other than just the pelvic area but iv been told to wait for the gynaecologist to refer me. However these last 2-3 weeks since my mri I have been so busy though and it's like I don't even acknowledge any pains within my body whereas before it was all I could focus on cause it would be so prevalent. So I don't know if the pain is psychological and anxiety related to some degree. I'm waiting until October to see my gynaecologist now and have my bloods repeated.

Btw im only 34 with two very small children, so I can also relate to the extreme worry and sleepless nights that this must be giving you. 

 Even though gp has referred me for an emergency scan I still have to wait 2 weeks before I receive a letter and just worry of symptoms worsening. Did you gp prescribe you anything for you to come on a daily basis? It's worse at night

Are U sure ur not pregnant? It does take around that time. I waited 2 weeks for my ultrasound and a further 3-4 weeks for my mri. The doctor used to prescribe me stuff for IBS but I never took it because I was convinced it was more than IBS

Yeah I'm sure lol. Just finished my cycle couple days ago 

Hi there,

I know this was a long time ago but my levels have raised to 180 so I wondered how you had got on in the end?

x

Hi just got my ca125 level back and it's 50 I am worried sick as my go won't be back in surgery for another week has this ever happened to anyone with a level of 50 and everything turned out ok xx

Hi Sunshine, I am going through the same thing right now, levels came back at 110 and have to have a large cyst removed. Did you find out what was causing your levels? am new here so apologies if I haven't read everything yet x

Hi Sunshine, I am going through the same thing right now, levels came back at 110 and have to have a large cyst removed. Did you find out what was causing your levels? am new here so apologies if I haven't read everything yet x

Hi I'm not sure if this will help anyone but I hope it will after reading these posts and them easing some of my worries.

I went to GP about bloating, low down pelvic pain radiating to right side of lower back and what I thought was Cystitis; burning and urgency to wee after drinking fluids etc.

GP arranged bloods and called me the day after I had them done saying slightly raised CA125 (I don't know what the number was).  She said she was referring me for an urgent scan which I had less than a week later and it's come back clear - No ovarian cancer, no cyst, just showed a small fibroid.

I've got to go back to look at other possible causes but I was sick with worry and just wanted to hopefully reassure others in the same boat.

I'm 44 and have a lot of symptoms of OC and was terrified going for my scan.

The Sonographer also made a point of saying that a lot of things can raise CA125.

Thinking of everyone going through the same x