Smear test results - borderline changes and HPV infection

Hello

I am 25 and had my first smear test in May. It took over 3 months for my results to come back and the results were borderline abnormal cells and a HPV infection.

I have (wrongly) over Googled this and cannot seem to remain calm or worry about this. I think it’s  the fact of having HPV and not knowing how long, long enough to be cancerous? I know people say it takes years to develop into cancer but I first had sex at 16 but because you never know what if it has been since then.

I feel completely helpless and I know I should just wait for the colposcopy but at this point in time I do not know what to do. My partner has been extremely supportive but I still have so many questions. Can I still have sex with him? What if he has it or had it and passed it to be and never knew, would having unprotected sex pass it back and forth and make it worse? 

Any supportive and and helpful replies would be really appreciated, just to ease my mind because it is breaking me.

Thank you 

  • Hi [@KBD]‍ 

    I'm do sorry to hear about your abnormal smear and how anxious you are. 


    I'm 33, and I had an abnormal smear result on my first smear when I was 25 too (although I hadn't had the vaccine as it wasn't around when I was 16!). 
     

     it took along time to get the results and get treatment (over 4 months). During the appointment at the hospital they removed the abnormal cells from my cervix, and also took a biopsy as they thought it looked bad and wanted to discuss with other doctors. As I'm sure you can imagine I freaked out at that point and was certain I had cancer. Unfortunately I didn't get my all clear for another 3 months after that, however I did get the all clear. 

    8 years on all my smear tests since have been normal, including extra ones following the abnormal smear when I was 25. 
     

    don't worry about the colopscopy- it's quick and relatively painless. If you're  squirmish like me don't look on the screen!  You might also be a bit sore after, I remember sneezing and laughing hurt a bit.

    I think abnormal smears are quite common, it's just not discussed very often. My sister also had an abnormal smear and was treated and hasn't had any further abnormal cells for 5 years.

    Take care and wishing you the best with your appointment :-)

     

    note- only just noticed that KBD's post was from 2018. But I hope my story can help put others at ease who have had an abnormal smear.

     

     

  • Hi All,

    Not really sure if I'm in the right place, so please bare with.

    backstory : I am 34 went for me first smear in May. Just had results. HPV positive and some " abnormal cells".

    Letter states I will be sent outpatient appt, however my mind is now in over drive.

     

    I have for the first time ever resisted googling and been reading your stories instead ( thank you all )

     

    I guess I'm just here for honesty and support.

     

    p.s reason for late Cervical screening is due to anxiety at the thought of having it ( guess who has learnt a huge lesson) :-( 

  • Oh [@Mommag86]‍, don't blame yourself. The most important thing is that you had a smear and now you're going to get sorted.

    also 1) most likely you will just  have abnormal cells which can be painlessly removed (like mine were and with no abnormal cells since) and 2) you don't know how long you've had these cells, they may not have been picked up in earlier smears anyway.

    I know it's easier said than done (and I proper freaked out when I got my abnormal smear back 8 years ago), but try to relax and not think about it.  Remember There is no cancer until a diagnosis.
     

    take care x

     

  • Thank you so much for your warm, kind words!

    it is certainly a lesson learnt and I will never let anxiety stop me going for future screenings.

    I just hope the refferal appointment comes through soon because I am not good with waiting.

    thank you so much! 
    I am doing all I can to remain positive x

  • I feel I am quite late to the chat, but I am so grateful for others sharing their experiences. Personally I do not know many people who have had to have a colposcopy, they just tell me they have had the smear and theirs was negative.

    Back in February 2021 I was called in for my first smear test aged 24. Personally I am always more anxious about results rather than the actual procedure. I finally got my results for the smear test after 10 weeks which said I was HPV positive and had borderline abnormal changes. This made me extremely anxious, especially as none of the female relatives in my family (or extended family) had been referred for a colposcopy. 

    After 4 weeks of not receiving my referral letter (delays presumably due to COVID-19), I constantly rang my GP, the colposcopy department at my local hospital and the analysis lab itself (who could not tell me anything). It turns out there was a miscommunication between the lab (where they analyse the samples) and the hospital where they perform the colposcopy, so it was a goo job I chased it up. After another two weeks they sent me a referral letter for my appointment, with another 6 weeks to wait. I am just so relieved it is booked

    I am glad so many people are talking about having a colposcopy on here because it is very reassuring. The worst thing for me (and probably a lot of others) is waiting on results or waiting for appointments, it is extremely stressful and I honestly haven't slept well since getting my smear test results all those weeks ago

    I was also told by one person who has a colposcopy after having "low dyskaryosis" and went for a coposcopy who ended up being fine, which is great. But she basically said that I didn't have a right to be anxious because hers was worse than mine. Personally, I think everyone has a right to feel anxious about anything they are going through, as everyone copes with things differently. That is why I have found this chat listening to experiences so reassuring.

    But I agree, positive smear test results aren't openly talked about enough, and it needs to be so that people don't think the worst all the time (I know I do)

  • Aww [@Delilah1892]‍  sorry to hear that you have an abnormal smear and need an colposcopy. And that you had such a long wait and then a negative experience when you opened up to someone :( that's a lot to deal with.

    I agree with you, everyone has the right to feel whatever they are feeling when they are awaiting test results. It is such a worrying time, and you don't need people making you feel guilty of your anxieties on top of everything else!

    I really hope your appointment goes okay, and you get the all clear. From my experience it's uncomfortable but not painful and there is a nurse looking after you the whole time. If you can have someone to pick you up after,   and take the rest of the day off work just to rest up. I felt sore for a few days after when I sneezed or laughed hard!

    take care x

  • Hi,

    I had my smear results after 5 weeks and was Hpv positive with low grade changes. I’ve been for my colposcopy today which I was extremely anxious about. I haven’t slept well since all this started and wasnt dealing with it at all well. It was quite a quick procedure and I was so happy as my cells were back I normal with no biopsy or treatment needed. The staff were so lovely and really made me feel relaxed. I hope yours comes around quick x

  • Hi,

    I'm 25 and have just recieved my smear results after two months. I have tested positive for HPV and have borderline cell changes. Obviously I'm very worried so any advice would be appreciated please :) 

  • Have they referred you to colposcopy ?

    I went today and it was like a smear but a closer look at the cervix. I myself can only speak for myself and I didn’t feel any pain. I didn’t need any treatment as luckily the consultant said everything looked normal. I have to have a follow up smear in a years time. 

    Any questions feel free to ask 

  • Hi,

    Yes they have. Just worried and Google definitely hasn't helped!

    Glad yours went well.

    Thanks x