Had a faecel elastase stool test and it was normal at 451 (above 200 is normal).

Still in limbo suffering with malsorbation with no idea why, I was given creon before the elastase test but not sure I should be taking it if that came back normal. My normal GP is of no use so need to wait till Wednesday to see gastro.

Hi Scott.

I see its been a while since your last post. I was wondering how you are and if you have any news.

Your journey mirrors mine. I too have had all the tests which came back normal.

My GP has said he can do no more and is sending me down the mental health route.

Hi Scottio..Hope you are well... I, as others are also facing similar issues.. for the past 2 months I've had weird pain feeling under both both ribs on and off... lots of gas, neck pain and some itching. Alot of changes in stools, but I'm on sertriline and lansaprazole.. I also suffer from high anxiety and worrying constantly about my pains. Are you still getting symptoms?

Kind regards 

Hi Scottio, I had Acute Necrotizing Pancreatitis, the doctors did not expect me to survive. I was 8 long months in hospital.  I had been having similar symptoms to you, I had even been in hospital with inflamed liver years before. I felt something was wrong and different about my metabolism. But all tests were inconclusive and I sat under the umbrella term that is IBS. My pancreatitis was put down to a gall stone, though only sludge was found. I wonder if your body is struggling to process fat, like I believe mine was. Gall stones form from cholesterol and/or calcium. I do not eat more than 20 grammes of fat a day now, alongside Creon, I am much better. 20 grammes of fat a day is very hard but essential to prevent any further flare ups. If  I have a blood test the following day after a flare up, the amylase levels have already dropped and do not show as elevated. There is a Facebook group called Pancreatitis Survivors who would be able to supply you with their symptoms for comparisons. I truly hope you find what is wrong, do not allow the doctors to rest until you do. Don't be like me, I am lucky to be alive, many don't survive an Acute Pancreatitis attack, I was given only a 10 per cent chance. Greatly reduce your fat intake and see if it helps. Good luck. X

Hi Scottio. Now you have the necrotising pancreatitis under control, please don't leave it there.

Annoy the hell out  of your Dr, until they give you a complete diagnostic workout. You need to know WHY ??

I know it's an old post but I've got the same symptoms as you for 8 months and now I'm itching all over did you ever find out what was causing it thanks

I'm still here but I'm no further forward, the itching I can only relieve with 40mg Amitripilyne each night which has taken care of that at least.

Doctors think I'm nuts and I've run out of money for private appointments and specialists.

The last test I had was a MRCP which came back normal. 

Snap I'm in same boat as you I'm 36 I paid for private mrcp last month in which came back normal also had ultrasound 2 chest X-rays camera down and god knows how many bloods tests I've had have you still got the pain 

I've not had much pain lately just the stools, dark urine and itching mainly. The meds have helped with some of it.

The pancreatic specialist said it couldn't be my pancreas as CT Scans, MRCP and blood tests showed it as being normal. Just wish someone could let me know what is going on and how to fix it. 

I'm paying for a ct scan for end off august cause I'm away next week I'll let you know how I get on my pain seems to be worst if I have a beer take care and I'll keep you updated 

hi pal it's been a while. how did you get on with your journey. I'm 31 now and having similar issues. any advice you can offer.

Not any further forward really, had all the tests which came back negative. Still suffering from chronic itching and pale fatty stools. No one can tell me why it's happening but just have to live with it at the moment. 

Sorry its not great news. 

Not any further forward really, had all the tests which came back negative. Still suffering from chronic itching and pale fatty stools. No one can tell me why it's happening but just have to live with it at the moment. 

Sorry its not great news. 

wish you all the best. its been ongoing for a number of years so atleast u can rule out PC. i remember I had pale stools when younger due to a h-pylori infection. for me probiotics really helped. maybe worth introducing them.