Had a faecel elastase stool test and it was normal at 451 (above 200 is normal).

Still in limbo suffering with malsorbation with no idea why, I was given creon before the elastase test but not sure I should be taking it if that came back normal. My normal GP is of no use so need to wait till Wednesday to see gastro.

Hi Scott.

I see its been a while since your last post. I was wondering how you are and if you have any news.

Your journey mirrors mine. I too have had all the tests which came back normal.

My GP has said he can do no more and is sending me down the mental health route.

Hi Adski,

Ive not found out what the issue is unfortunately, Ive had a few more tests like a stool tests to show pancreas enzyme levels which were normal and I’ve had a colonoscopy too which didn’t find anything.

The only thing that’s come back suspect is one liver test which is now normal, a iron level which was high and the fat in my stool which is 2 times higher than normal.

I now suffer from constant yellow fatty stool and dark urine but the pains in my stomach have been more settled. 

My doctor gave up and I can see why when everything is showing normal test wise but I’m just taking it day by day. I know there is something up given the change in my bowels and urine but if it were PC I think I’d be very very ill by now surely?

I have had all the same tests as you and all come back ok my doctor is refusing anymore but my symptoms continue to get worse and worse surely this is red flag 

I’m in the midst of a similar nightmare. Pain in my upper left quadrant; stabbing/dull ache which is worse when I lye on my front. Pale/fatty stools, dark urine and feeling in poor health generally. I’ve had a colonoscopy, CT scan and more recently an MRI. I couldn’t tell you how many blood tests as I’ve lost count! I’ve had nothing yet - all has been clear but I’m still waiting for my MRI results.

i can sympathise with you massively - I feel most people are thinking I’m a barm cake but the pain is persistent. The symptoms seem to change (come and go) for example, some days I get really bad wind. After spending god knows how much money with private health firms I’m now with a Gastro consultant in the NHS - he’s been thorough so far which is refreshing. GP just thought I was an anxious head case! I too have had dental issues which leads me to be absolutely and utterly convinced it’s PC!

Im only 31 so I keep reminding myself about the unlikelihood of my wandering thoughts - but it’s a terrifying thought all the same.

Hi, just read your post and wondered if you found out what was causing me your problems.  I have a similar problem with my GP who keeps saying you have had all the tests and we can find nothing wrong.  

Hi, just read your post and wondered if you found out what was causing me your problems.  I have a similar problem with my GP who keeps saying you have had all the tests and we can find nothing wrong.