Hello just wanted to pop in. I had hodgkins lymphoma Stage 4b four years ago... Some symptoms that u explain were similar but myself suffered from uncontrollable bed sweats within 10mins of being in it, itching in and out of a bath, the weight loss was gradual over 18mnths.. Insomnia but put that down to the stress as I always say to people you know your own body as I went 18months of high inflammatory blood results but no action an inconclusive needle biopsy only to be told it was a hernia.. Given 35% chance remission I'm still here.. Ensure you push your GP's for answers.. Always here x

I don't have any enlarged lymph nodes that I know of , I'm exhausted all the time , it's ruining my life , Docs say bloods are fine , no further action, what do I do ?? Xx

I just realised the doctor called me at 2pm and left a voicemail (I didn't even see this) she has asked I contact her asap !! The surgery is now closed until Monday ... I feel sick ️ 

Doctors almost never leave actual messages on voicemail. They always ask you to contact the surgery. Neither you nor I know what the doctor wanted to say, so you'e simply assuming the worst and panicking. Looking at it logically, nothing has changed: your bloods are still clear, you don't have night sweats, no lumps, and you're still a non-smoker.  You can either worry about this all weekend, or you can simply take things day by day, speak to the surgery on monday, and then if (and only if) it's unpleasant news, start panicking. 

I don't think doctors call at all if bloods are clear though do they ? I think it's more likely that the first conversation with the secretary was most likely Incorrect and I was given incorrect information, Any way,either way I now have a weekend of worry , I know I most likely sound like a petulant child but I am so scared , I red lot really  am and I have no one in the 'real' world to talk to  

Sorry, Lola, but you're now allowing your imagination to run riot.  There is no reason at all to think that you've received incorrect information.

The fact is that you don't know why the doctor phoned, and neither do I. You can speculate more and more crazy scenarios all weekend. Or you can make a conscious effort to calm down, drive these wild speculations out of your thoughts, and find out on monday what the doctor wanted. 

I'm have a lump and have my appointment on Monday with ENT,  I'm extremely worried, my mind has gone into overdrive and I definately thinking the worse. I totally understand where your coming from.

But telemando is right, please dont worry this weekend, i know its hard but you have no lumps, and other symptoms.  My doctor has phoned me before sending me into panic mode, but he just wanted to confirm that everything was ok about some ultra sound results as he knew I was panicking.

I hope this help x

I'm new to all this but letting myself get really worked up and worried 

So long story but basically I have been generally really unwell like really bad fitigue muscle pain etc for about a year also had abnormal blood the whole time wbc always high

About 7 months ago I have a really bad cause of tonsillitis and my neck began to swell on one side... It has never gone down and now I have high wbc crp and lymphocites are up as well

Been urgently referred to ent and already had a chest x-ray cancer has been mentioned by me doctor and also the possibility of them doing a biopsie 

Hi, a year ago i found a lump on my neck, omg the panic i felt was horrendous.  All i could think about was my 4 girls.  It turned out to be an enlarged moveable lymph node.  A year on i still have it.  I check it every week.  When i go to the dentist they check it.  But it could change so im cautious.  

The waiting and not knowing is the worst feeling ever.  Im sure the doctors are checking for all scenarios but if you need to realease some thoughts im here to listen. 

Kernow200

Thanks for the reply think I'm the same just worried what it all means for me and the kids x

Did your doctor refer you and what kind of test did you have to diagnosis it ?

Hi,  i was on holiday and came back early   as the lump was obvious.  I had been ill, so was expecting antibiotics from doctor.  No he referred me urgently to ent, 2 weeks..  I went private i was that worried.  Seen within 7days.  The consultant was amazing he felt it and said its a shoddy lymph node.  That was it.  He was head of ent for 2 hospitals.  Felt comfortable with his diagnosis.  He said just keep an eye on it, it will probably never go.  Even told me how big it was.

But when i go to the detist they always have a feel and they could tell me more about how deep it is.  I can sometimes feel it sometimes nothing.  Im more open to not jumping to conclusion.  A friend of mine had lymphoma and no symptoms it was only diagnosed on a routine blood test.  

Its eay to say dont worry  but i know exactly how you feel x

Kernow200

Thanks for getting back to me x I have an appointment at ent In a weeks time so just trying not to over think to much

I think the one thing that scared me was the doctor mentioning cancer and biopsie she even called me last night to go over my bloods and checking I had an appointment set up for ent 

Originally I was referred routinely but once she got my bloods back she wasn't happy and changed it to an urgent one x

Thanks for getting back to me x I have an appointment at ent In a weeks time so just trying not to over think to much

I think the one thing that scared me was the doctor mentioning cancer and biopsie she even called me last night to go over my bloods and checking I had an appointment set up for ent 

Originally I was referred routinely but once she got my bloods back she wasn't happy and changed it to an urgent one x

Hi,

Cancer is such a scary word, but the diagnisis could be different but want to rule it out.  Im glad your seeing the doctor soon.  Unfortunately that week feels like a month.  Do you know if its just a consultation or results?

Kernow200

I'm going to ent next week for the first time and them will see what test they want to but my doctor is currently chasing my chest x-ray results and does feel it nessasery to repeat bloods atm as a lot of my bloods come back abnormal x

Hi,   i spik

e to a friend of mine, who had abnormal blood plus a tiny lump on her collarbone.  She was referred urgently and it was her thyroid.  The lump was  non cancerous but had to have half her thyrod remove.  Never been a problem since.  She did have a chest x ray but that was routine for ent.

Kernow200 x

Had my ent appointment today he's never asked any questions other than how long I have had it, also wasn't aware I have had blood tested checking everything.( elevated white count and high crp and something else elevated)

Stuck a camera down my nose everything looks fine but he's concerned about my neck so referred me for an urgent ultrasound and then discuss what happens next regarding doing a biopsy. 

Good new though that my chest x-ray was clear

I'm just concerned about all my symptoms which he showed no interested in discussing..

Hi,

Firstly, good news about your chest x ray.  I don't think doctors say too much at the beginning as it may not be the dreaded C but we want to know the answers to everything.  As i went private it was so different he asked me everything and went throu everything there and then.  I went with my friend and she had a totally different experience, he was lovely but only gave her the minimal amount of information.  Maybe its because until they have a definate answer they dont want you to worry (which is not possible)!

I went with my friend when she had a biopsy and thats when she discovered the nodules in her thyroid.  They turned out to be non-cancerous.  At the biopsy she was told they were nodules and it was two weeks later she had an op to remove them, 1 week later she got her answers.

How long do you have to wait for the biopsy?

Kernow200

They haven't decided if I'm 100% having one they said they will see what the ultrasound results are and then make a decision x

He did actually point out more lumps that I wasn't aware of and a swelling running down the front of my neck x

so had my ultrasound a week ago and on the right side I have lots of lymph nodes and that he wasn't happy with so he took 2 fine needle biopsys and I'm now waiting on the results... 

It's so strange that no lymph nodes in the other side are up on the right .. The swelling getting even bigger and now I have just decided to prepare for the worst but hope for the best 

I'm terrified but don't want to talk to my family to much as I really don't want to worry them 

Hi,

The waiting is the worst and hopefully you wont have to wait long.  My lymph node is still noticable but moves and my dentist said she could feel that i had more than one up but i could only feel one.  Can you feel yours?   

Kernow200