Worried I've Been Misdiagnosed With IBS

I just thought I would post here for a little peace of mind, or at least to hear some advice/personal experiences.

I am a 22 year old woman and roughly 6 months ago I began to experience severe abdominal cramps accompanied by changes in my bowel habits. What’s more worrisome is that shortly after my abdominal cramps began, I first noticed blood on my tissue paper after a bowel movement.

I saw a doctor who carried out a rectal exam and told me that there was a small haemorrhoid (but also told me that nearly everyone has small ones) and that the change in my bowel habits (going more frequently with looser stools) may have aggravated it and caused it to bleed. She told me I likely had IBS and prescribed me suppositories and advised me to see her again if my symptoms didn’t improve.

After 2 weeks of using the suppositories, the bleeding did not stop. I was unfortunately unable to see the same doctor, and the second doctor simply prescribed me more suppositories and brushed me off. I decided not to use the second supply of suppositories, and after another week or so the bleeding stopped entirely on its own. I also began to follow a FODMAP diet around this time and my abdominal cramps disappeared as well.

I had no more issues with bleeding for the rest of the month, so I figured it really was just a combination of IBS and haemorrhoids and went on with my life.

However, a few days ago I noticed blood again while wiping.  An hour after discovering the blood, my abdominal cramps returned and are still present 5 days later, despite still following my FODMAP diet and eating meals that hadn’t given me any bother over the last six months. I have not experienced more blood since.

I’ve booked to see a doctor this coming Tuesday and I am going to ask for a referral to a gastroenterologist for further investigations. I’m just concerned it’s potentially bowel cancer, and that it’s been left to spread for over 6 months now.

Has anyone with IBS eaten meals for months without upsetting their stomach, and then all of a sudden those same meals caused abdominal pain months later? I just don’t understand why my IBS would kick back up all of a sudden when I haven’t made any changes to my diet, and it’s been stable for months.

Many thanks for any responses!

Parents
  • You are correct to be worried and you must insist on a full investigation.for some years I had been suffering with IBS  . Was given various pills and potions including hypnotherapy. Many visits to a consultant , Finally my GP referred me for a colonoscopy, the consultant refused this and again diagnosed IBS. 

    Last year I was given a colonoscopy, was found to have T4 bowel cancer. Major operation to remove a large part of my bowel followed by 6 months of chemo. Some cancer cells entered my bloodstream and at high risk of spreading to lungs and liver. 

    Do not accept a diagnosis of IBS without a thorough check for bowel cancer.

  • Hi mike.e

    i was wondering if you’d mind elaborating on your symptoms and how long they’d gone on for and how persistently. 

    I’m worried myself.

    Thank you! 

  • Hello

    about 10 years ago I was having abdominal pains and some constipation. I was diagnosed by my GP with IBS and given buscapan and gaviscon. The pain continued I was referred to a consultant who confirmed. IBS and sent me for hypnotherapy. The symptoms persisted and was given different medications,still no improvement

    acouple of years ago my GP referred me for a colonoscopy , the consultant again confirmed the diagnosis as IBS and because I did not present the classic symptomes of bowel cancer,I was again refused  a colonoscopy. 

    Within a year I was in extreme pain and my excrement was very difficult and came as slime and ribbon like. My GP demanded an urgent colonoscopy which revealed a T4 cancer, which is a large tumour that had grown through my bowel wall, resulting in a major operation and chemo therapy..I have since been informed that a diagnosis of IBS should not have been given without first conducting a colonoscopy.

    DO NOT accept a anything other than a colonoscopy

    My misdiagnosis will probably cost me my life

     

  • Hi , I was just wondering if you have had a diagnosis yet ? My symptoms are almost exactly as what you have described , I have recently had blood tests and gave stool samples , then doctor is arranging colonoscopy. I'm so scared I'm 28.

    Trying to find something it could be to stop me worrying.

    Thankyou

Reply
  • Hi , I was just wondering if you have had a diagnosis yet ? My symptoms are almost exactly as what you have described , I have recently had blood tests and gave stool samples , then doctor is arranging colonoscopy. I'm so scared I'm 28.

    Trying to find something it could be to stop me worrying.

    Thankyou

Children
  • Yes as I said previously I was finally diagnosed with bowel cancer size T4,after being discharched with IBS..

    Subsequent operation removed a part of my bowel and went through 6 months of chemo. I have been told that I am at 'High Risk' of recurrance. All because a doctor decided it was IBS and took a chance that it wasn't cancer