Hello,

just wondered if there was any update on your symptoms since this post? I'm going through similar at the moment 

Hi ,

I am in a very similar situation to all of you girls:(

did my CA 125 tests and it come back as 51. My ultrasound and MRI is clear. I have Dermoid cyst on my overy but everywhere it says there is no connection between levels of CA 125 and dermoid cyst.

however, my question is has any of you have tested home rapid CA125 tests? Are they relable has anyone tried them ? 
 

thanks

ilona 

Hi everyone, so I'm 33 soon to be 34, I was admitted in to hospital 3 weeks ago with left abdominal pain! Have ongoing issue with reoccurring kidney infections.  My CA125 level came back at 420, and following some scans and a 2 week turn around I was in hospital 5 days ago to have ovary removed they could see only see a small 7cm cyst / possible tumor! After surgery I was advised nothing had been removed and they had checked qll

Areas of womb etc and thankfully no cancer was detected  / no areas looked effected.  Now I have to wait 6 weeks to be seen again, my CA125 level since opp have dropped down to 230 but still high and I'm trying not to worry as I got the all clear for ovarian cancer really but the question is why the massive increase? Up to 35 would be the norm ! I'm trying not still worry but it's hard I've a little boy only 6 I just want to be confident that I am ok! Has anyone ever had anything like this before? Thanks Sinead 

My ca125 is 420, I have had an ultrasound and a fibroid 10cm was seen and an ovarian cyst 1cm, they are doing a ct scan and a womb biopsy, I'm very worried. But so far all is ok, but its knocked me sideways.  I'm not sure a ca125 test is the best thing on.the planet. 

Hi IM838

I haven't done a home test but my blood results came back two days after going to local hospital for blood tests so it was fast.

hope you're ok.

Hi just reaching out for some advice/clarity

my mum recently got diagnosed with endometrial cancer stage 2/3 and has had a successful surgery done. They removed some of her lymph nodes as they were cancerous too and then we were under the impression that she was having chemo only for precaution reasons. After her second dose of chemo it became clear that there must still be cancer but her levels have reduced from 15 to 13. I would like to know why she has the CA 125 cancer marker after she has had a full hysterectomy?also what experiences do others have with these levels?

mum is mid 60's and very healthy 

just breaks my heart....hate asking her about it as we can't accompany her into appointments because of Covid 

I have raised CA125 number 50 I had a call back from bloods yesterday and was told I couid have ovarian cancer . I've had problems with my left groin and hip and back and struggled to walk for a few months and the pain is getting worse . I'm worried. I'm waiting for further tests I'm hoping it might be cysts causing the pain 

Hello how are you?

I thought I'll reply to your post. I am in the same boat. Scans shows no cyst but fibroids which I'm already aware. Dr says the ca125 is high than what a fibroid should make and have been referred for mri scan.

have you had your mri scan? What was the outcome pls? I'm worried scared.

 Thank you 

Hi just wondering was pcos that cause for the raise in ur levels mine are raised I had a scan last year which said 'bulky' ovaries