CA125 raised levels

This week I went to see my GP with perimenopausall issues. I mentioned to him that I feel my stomach up to my ribs is bloated and tight and feels uncomfortable.  He said he would add some further tests to the hormone bloods to mark for any tumours.  And a pelvic and stomach ultrasound wodo be ordered as well. Within 24 hours y bloods came back abnormal raised at 59. I am now on 2 week pathway to see gynae and have further tests. Peopl keep trying to reassure me that it might not be the big C but as I read more I realise I have been experiencing Ovarian cancer symptoms but thought it was just me putting on weight. 

All my our bloods came back normal including the hormones which are strange as I havery multiple menopausal symptoms that are ruined the quality of my life.

I am 46 and am going crazy having to wait. 

  • Hi did u find out what it was 

  • Hi Lisa

    I had the operation on Mothers’s Day (little ironic) and after a long wait was finally told that there was no ovarian tissue. They suspect it was removed (accidentally) during a previous operation to remove a cyst. So that explained why they could never find it on the scans. But there was no cancer detected in the Fallopian tube and the other ovary looked fit and healthy. So I’m hoping that’s it. They can’t explain the raised CA-125. 

    My symptoms of severe right side abdominal pain that started the whole thing have now gone, which is a bit odd. Perhaps there was a psychological element to it. 

    So don’t give the raised CA-125 too much attention. Is it very high or just raised? Have you had any previous operations? Try not to get too worked up (easier said than done I know)

    Vix. Xx

  • Hi did they find out what the gas was ? Mine is just raised , I’ve had no other operations , and I’m still having periods x

  • Hiya I'm just after a bit of advice after having a similar experience 

    My CA125 was 45 in November was referred for a ultrasound which was all clear but they struggled to find my ovaries due to gas, I've had another blood test which is now 65 and been referred to a gynaecologist with a 3 month wait, anyone else had a similar experience? 
    I went to the Gp due to heavy periods, I'm 46 and thought I may be starting the menopause 
    I'm very worried now and thinking of paying private cause I can't wait 3 months 

  • I had a the same experience.  Started with possible peri menopause symptoms and pain in the left groin which is worst during ovulation. went to the Gp who sent me for blood tests one being the CA125 which came back 47.5 and was sent for an urgent TV ultrasound which was normal.  I've just had my results from a repeat blood test 8 wks later and it is now 99.5. I have gynae appt. in a couple of weeks.  I am 44 years old

  • Exactly the same, left side pain I thought it was ovary pain, I was expecting them to find a cyst on the scan but it was all clear 

    Hope it goes ok, let me know what they say! 
    The Gp said I will be referred urgently but there's still a 3 month wait 

    As the scan was clear I don't know what to expect when I see the gynaecologist 

  • Hi, 

    My result is 226 now, in april last year was 238, then 190 and I have had several investigation like ultrasound, MRI and other scans etc, nothing! It is a small fibroid but that could not give such a high level.

    I'm writing only for those who are worried for 56 value..could be nothing just like in my case..so do not worry. 

  • Thank you that's made me feel better! I will let you know how my appointment goes! X

  • Hi. I'm in the same situation CA125 was 149, had scan couldn't see overies few cysts but doctor doesn't seem worried,  said may be a long wait to see gynecologists.  Got to have another CA125 test, if it's gone up again I think I'm going to a&e myself see if that gets me seen sooner. I'm worried sick. Why would CA125 be 149. Had the test in july which was 12. Its confusing.  

  • Evening ladies,

    I hope you are all well. I am in similar boat, booked in for a removal of 22cm cyst on 17/2 (suspected dermoid). I've had repeat ca125 results today showing 16.5 so I'm fairly reassured that things are ok.

    my real concern is how fast this cyst has grown? Scan indicated it was 8-10 cm last June, but when keyhole surgery done in December she measured 20-22cm?

    surgeon is going remove omentum too when she operates, which she has never mentioned before today, and I'm curious as to why she might think that's necessary?

    Cyst has more than doubled in 6 months. That's very concerning for me. Anyone else experienced similar? 
     

    im perimenopausal (45) and a little bit worried (not that I can tell my family that)

    jx