Hi all, just joined today. My issues started with kidneystones in dec 20.

When they did the first MRI scan the urologist confirmed i have 1 kidneystone in my left kidney and three in the right.

They did a second MRI scan a month or so later and that also confirmed presence of kidney stones.

however on this occassion the uroligist informed the MRI has detected inflamed / Swollen nymph nodes.

I was referred to have MRI scan and Ultra Scan

Ultra scan was for checking testicular cancer - MRI for prostrate - both scans came out negative - they had also done some blood tests before the MRI scan and they were all clear bar slightly anemic.

However the nymph behind the stomact was still enlarged (1.5cm) hence I have been booked for CT Guided Biopsy Stomach on 17.6.21 

Looks like the consultants are suspecting high chance of either hodgkins or non hodgkins cancer.

Hi AP63,

A very warm welcome to our forum.

I am sorry to hear about this confusion. It is good news that all tests so far have been clear and, here's hoping that your CT guided biopsy will be too. Most people find that their lymph nodes can swell as a reaction to any sort of infection. This can be from something as simple as a sore throat to something more serious. In most cases they settle down within a short while, but sometimes they can remain up permanently for no particular reason.

Your consultant is obviously being cautious and making sure not to miss anything, which is good. Are there any plans to remove your kidney stones. I am not a doctor, but suspect that these may be causing the changes in your lymph nodes. We always advise people to steer clear od consulting 'Dr Google' before a diagnosis, as this will only scare you for no particular reason. 

I am glad to see that you don't have too long to wait for your biopsy. Please keep in touch and let us know how you get on. We are always here for you.

My fingers are crossed for good news.

Kind regards,

Jolamine 

Hi Jolamine, thank you for the welcome and response. I feel eased reading your post.

With regards to my kidney stones - they will have to be removed via laser surgery but as yet i have not been given any date.

I suspect it is because the medics want to get to the bottom of my lymph nodes before doing laser 

I will keep the forum posted.

Once again thanks for your support.

Kind regards 

AP

Hi AP,

I haven't had kidney stones, but I have had a 3 inch gallstone, which had to be removed by open cholecystectomy. I know that at that time I had a lot of inflammation surrounding the area, although at the time I never even thought to check my lymph nodes. I do hope that you don't have too much delay  for your surgery.

Please remember that we are always here for you.

Kind regards,

Jolamine 

Hi 

One of my KS ia around 9mm and urologist hencd the  need for laser surgery.

Like you i never thought if lymph nodes until the urologist told me. It's only than I started reading on it!

It's good to share experiences we have had and moral support available.

Once again,  thank you so much for your support.  

Regards, 

AP

Hi,

Did your urologist not attribute the lymph node swelling to the inflammation caused by the kidney stomes? When I went to see my surgeon, I felt that I was wasting his time, as I found it hard to describe exactly how I felt and, I didn't want to waste his time.

He took one look at me and admitted me there and then. He told me that he couldn't guarantee that he could pull me through and put me on to intra-wenous antibiotics for a week before he could operate. I understand that kidney stones can be pretty uncomfortanle too.

Kind regards,

Jolamine

No  the consultant has not made reference to kidney stones as reason for enlarged nymph nodes - that is whats worrying me thinking that i will.be diagnosed with a form of cancer.

I have a feeling deep down the urologist knows i have it but he wants the biopsy to comfirm it.

Hi AP,

We all tend to think the worst at this stage - fortunately, this seldom turns out to be the case.  Even if your consultant feels that this might be cancer, there is no way of being certain until he gets the result of a biopsy. Just remember that 'it isn't cancer until you're told it's cancer.'

I have had 2 bouts of cancer, but have had 3 other occasions when my consultant thought that I had cancer, which turned out not to be the case after biopsies were carried out.

Kind regards,

Jolamine 

Hi everyone,

I've had a bit of a whirlwind of a year to be honest.

I gave birth to my second in March 2020 and shortly after began suffering with horrendous vertigo issues. I managed to get it sorted and was diagnosed with vestibular migraines.

I am a teacher and went back to work September 2020. Feb 2021 I came down with what I thought was covid. ALL covid symptoms, but my tests kept coming back negative.

I have never suffered with chest problems, but this infection dragged on for 4 months. I now see a chest specialist monthly and take a steroid inhaler. Chest X ray came back clear thankfully. This infection (whatever the hell it was - they still can't tell me), put me in urgent care twice for breathing difficulties and in the first few weeks I couldn't even walk from my living room to the kitchen without having to sit down because I felt like I would pass out. I am a 30 year old healthy woman with no underlying health conditions. 

About 2 months ago I began having night sweats and found a lump in my neck. My GP put it down to the tail end of the nasty chest infection. My chest specialist also said his gut feeling was that it was nothing to worry about as overall I was making massive improvements but to keep an eye on things.

I returned to my GP a couple of weeks after to say that although the night sweats were getting better I was still concerned about the lump. She has referred me for an urgent US and ordered blood tests. All blood tests came back with no further action required.

I have since found out I am pregnant with my 3rd which was quite a shock but still, every child is a blessing and I am still over the moon! At the weekend I also found another pea size lump in my neck. This one doesn't move, whereas the other one is more like the shape of a grain of rice, moves and is rubbery. Neither are painful.

Of course like any human, I've consulted Dr.Google and he is telling me some horrible things. I'm a Science teacher so try to think logically but when human emotion takes over, what can you do really.

I also have a large lump behind my ear, but I have had this for as long as I can remember. Must be 20+ years. Doesn't move, kind of rubbery, never painful, just always been there. Never went to the doctors, as I said I've had it as long as I can remember, so it's always just been 'a part ' of me. I do remember having a very nasty bout of glandular fever when I was younger so thought maybe it was from that. 

Anyway now since I have discovered the 2nd lump in my neck, I'm now panicking about the 20+ years lump. Sleepless nights. Pregnancy hormones probably don't help but I seriously can't stop thinking about how I cannot be ill for the sake of my children. 

US booked for 5th July and hoping that they tell me that I'm just a big worrier and I've spent the last month worrying for no reason....