Hi JW,

A very warm welcome to our forum, although I'm sorry to hear why you've joined us. I appreciate that this is a very worrying time for you and our minds tend to go straight to the worst case scenario. Consulting 'DR Google' can also scare the pants off you. We usually advise people to stay away from the interet until you know exactly what is wrong.

It is good news that your bloods were clear. The tests you have coming up in the next 2 weeks should give you some answers at last. Some lymph nodes are reactive to infections and these usually settle down with time. However, some can stay permanently raised even though there is nothing sinister present. Try to keep yourself busy to help pass the time until your appointments - even concentrating on a jigsaw will help to take your mind off things.

Please let us know how you get on. We are always here for you.

Here's hoping for good news!

Kind regards,

Jolamine xx

Hello,

i too am 24 y.o male and have had neck and armpit lymph nodes pop up and not go down for past 2 years.  I keep feeling more and more though they tend to be around 1.7cm-borderline abnormal but normal.  I also had extremely elevated CRP and ESR bloods, nightly low grade fever, overheating, dizziness, and sweating.

ive been now to more doc appts than I can count.  Ended up having a PET scan done last year which was clear, and ultrasounds and cat scans all which say these nodes are likely reactive.  But what are they reacting to for so long?  That's the question I've been struggling with.

I am still so convinced it may be lymphoma however my ENT is extremely hesistant to do excisional biopsy due to the small size, negative pet, and not concerning ultrasounds.

still trying to figure out why I feel so crummy and can't function at night time with these low grade fever flare ups, but no one has been able to get to the bottom of it.

hope you all get along well

Hey,

if you've have had these scans and they have come back clear that's really good. 
some lymph nodes that swell which in your case could be a reactive lymph node can stay swollen forever or decades. I've read stories on here where an individual has had swollen lymph nodes for over 10 years and still nothing. 
High CRP or ESR could be an indication of other things too. As these generally determine inflammation. You could have inflammation in your body. I know this because I have Crohn's disease and my CRP is used to determine my inflammation levels but this does not mean you have Crohn's too. 
if you are really worried about the lymph nodes push for a biopsy but if scans have come back all good you should be good. 
I am no doctor though. My thing is only advice. Good luck with everything xxx

Hi Mattman,

I am sorry to hear about your symptoms and the worry that this is causing you. I am not a doctor either, but have been following posts on this site for 12 years next month. In that time there have been many posts about reactive nodes and it doesn't always need a major infection to cause them. Something like a sore throat or toothache can be all it takes, so it could possibly be due to something lke your nightly low grade fever. Has anyone told you what might be causing this?

It is good news that nothing untoward has been detected on the tests you've had done, but you shouldn't be having these symptoms at your age without a good reason. If you continue to feel 'crummy', please be persistent, as things can occasionally get overlooked.

What has convinced you that this is lymphoma? Many people scare themseles rigid by looking on the internet before they get a diagnosis and convince themselves of the worst case scenario, which fortunately, seldom turns out to be the case. I sincerely hope that this is not the case, but I would still be asking questions until you get a more satisfactory answer.

Please keep in contact and let us know how you get on. We are always here for you.

Kind regards,

Jolamine 

Hello Jolamine.  Thanks for your response.

I began noticing small nodes in my chin a couple years back and didn't think much of them, but then they never went back down.  I then began noticing more and more new nodes popping up all around my neck with a burning sensation throughout my body, almost like toxins are running through my skin.  The area over the nodes are extremely warm as well.

then in the last year, I started experiencing mild sweating at night, but awful hot flashes with low grade fevers every night.  This is the worst symptom for me and I'm usually bed ridden because of them.  It's so weird because I feel fine during the day - it's the night time around 6p-8p that really does me in.

that combined with blood work routinely showing extremely elevated CRP and ESR, I have not had any real answers from doctors.  They see the numbers and know something isn't quite right, but they don't believe it's anything serious as the PET was normal

one of my doctors does believe a gene mutation could potentially be causing an autoinflammatory disorder, but until I can get approved for the specific biologic shot medicine, I won't have any relief.

im hoping to learn ways to cope with the symptoms at this point. I spoke at length with my ENT who is also an neck and head cancer surgeon, and he does not believe lymphoma would present like the nodes he's seeing in my scans.  He is confident a biopsy would show reactive nodes.  But again, it's so hard to understand what these nodes are reacting too.  I think there is definitely an inflammatory response in play to something.  I'm just having a hard time figuring it out.

thanks for listening to my rant!

Hi Mattman,

We all have to rant sometimes and, by the sound of things, you have good cause to do so. I don't know whether or not an MRI would show up any more than the scans that you've already had. It might be worth asking your doctor.

It is good news that your ENT doesn't think that lymphoma would present like your nodes are doing. Is there nothing else that he can do to identify the cause of your inflammation?

Kind regards,

Jolamine 

Hello jolamine,

doctor wants me to start on this autoinflammatory drug so hoping I get approved.  If I do well on it, likely confirms an autoinflammatory diagnosis.  Otherwise back to square one and likely biopsy to further investigate if this is something else.  Unfortunately, symptoms mimic lymphoma so it's hard to convince myself of that and not second guess the doctors, but I do feel like something is off.  

  HIeveryone, i have just joined the forum as I am going through tests for swollen lymph  nodes in upper parr of the stomach.

It all started with kidney stones which i still have (1 in left side and 3 om the right side). They were detected via CT scan. The Urologist followed this up by a second scan and it was during  this scan that i was informed if swollen NR.

Since than i had blood test - all clear - prostrate   CT scan - all clear - Ultra Sound for testecular cancer - all clear 

However I had another CT scan dine on 1st June 21 - the Urologist called couple a days ago and said lymph nodes still enlarged - normall size is around 1 to 1.2 cm but mine is 1.5 cm

The MDT team has decided that i should have a biopsy which is booked for Thursday  coming.

Like most in here though i never wanted to Google  it i did and what i have read is confusing.

My Swollen Lymph nodes is in the upper part of the stomach - i dont feel it at all and i dont have any classic symptoms  of it. The urologist did say that 90% its not anything siniter or serious but there is that 10% chance of it being something  cancerioud.

Not sure what to make of all this.

Hi Mattman,

It sounds as if your doctor hasn't given up and is still on your case. I sincerely hope that you do get approved for this drug and that it works for you. Have you any idea how long it takes to get approval?

It sounds as you have been consulting 'Dr Google'. You have no idea how many people convince themselves that they have lymphoma after doing this. We always advise people to stay away from the internet until they have a diagnosis, as it would have you in the ground with the most minor of injuries.

You know yourself when something is not right, so keep pursuing this until you get a satisfactory answer.

Kind regards,

Jolamine