Hi Andy

i didn’t have my tonsils out I had an excisional biopsy so had a general anesthesia to remove a node.( surgery) There was another node smaller next to the biggest one and I’m really beginning to think they took that one! I also had no appetite at all and felt so many more aches and pain’s during all this stress....anxiety can play a lot of tricks on your mind! I noticed this as once I received the “ good” news everything stopped aching!!! Now I feel like I’m back to square one! Hoping I’m wrong !Lets see what Thursday brings for me I guess an ultrasound at least to have a look!Best of luck tomorrow will be thinking if you!

keep us updated and take care!

Miks 

Hi Andy,

I fully agree that this is a particularily scary time, but I am glad to hear that your biopsy is tomorrow - the sooner it is over the sooner you'll get the results. 

You are quite right. You will feel better once you know the results either way. At present, it is fear of the unknown that is so frightening. The best advice I can give you is to keep yourself busy to try and distract yourself from the wait.

I hope that all goes well for you tomorrow and that you don't have too long to wait for the results. Please stay in touch and let us know how you get on

We are always here for you.

Kind regards,

Jolamine xx

Glad I've found this particular thread having had about 4 months so far of worry. Started with a very very bad case of tonsilitis (confirmed need removing) - however since then have been generally unwell. Doctor describes it as virally unwell - I have hot flashes, fatigue and nausea - and swollen (and quite sore/achy) lymph nodes in my lower and upper legs, and relatively palpable ones in my abdomen which cause the nausea. Nausea and general illness seems to come and go in waves week by week - but Dr has now requested the a whole raft of tests.

As a curve ball, my symptoms tend to correlate with right sided facial pain and loss of taste - which has this week been confirmed as an impacted wisdom tooth requiring extraction... maybe I'm just wishing it's all linked, but the lymph nodes are worrying me at only 28!

Hi JPS,

Welcome to our forum.

I am so sorry that you have had this worry for the past 4 months. I am not a doctor, but can assure you that general malaise often accompanies tonsillitis. Have you got an appointment to get your tonsils removed yet?

I am glad to hear that your GP has requested a whole raft of tests. If you are so aware of your lymph nodes, it sounds as if you may need a biopsy to get these checked out.  Ask your GP to refer you for this. It may just be that they are up because of the inflammation in your tonsils, but you'd be better to get this checked out.

At only 28 you still have a lot of living to do, so here's hoping that nothing untoward turns up for you.

Kind regards,

Jolamine xx

Hi everyone,. I'm new here (in the sence that this is my first post but I've been reading for quite some time).

I've been reading this thread recently because I have some enlarged lymph nodes.

I first noticed one on my neck torards the back but still in the side. I knew about the waiting 2 weeks to see if the go down so booked an appt for 2 weeks time (early June). My GP happily referred me for a scan.

Scan was done mid July and after seeing my GP he said the scan showed several (but also said 3) reactive nodes and rescan in 6 weeks.

Of course my mind is in overdrive. Like many others I have health anxiety and have thought I've had many serious diseases, most recently before this I thought I had diabetes. I had physical symptoms - tingling of fingers and toes, sensitivity here and there on my arms, and I don't have the best diet. As soon as I got the all clear, these stopped.

Since my scan I have felt like I can feel the nodes in my neck most of the time, aches and pains etc. I can now feel 2 nodes next to eachother. And feel they may have gotten bigger. Only 5 or so minutes ago I fel one on the opposite side near my collarbone which I now can't find so am unsure what I was feeling.

I don't have any symptoms such as weightloss or night sweats.

I'm already 95% sure I have cancer even though I don't have other symptoms. Other than the pain and almost swelling feeling in my neck but I don't know if this is anxiety or real.

I'm not sure whether to see my gp and ask for my scan to be brought forward on the basis they've grown or to wait for my scan in 3rd September.

And what if they are found to be reactive on the scan? Will they just leave them? And if they have grown I imagine I'll need further testing but I don't know what. Can reactive nodes be cancer?

I hope everyone is well x

Hi Khammy87,

My ENT specialist said (back in April) that several reactive nodes in my neck and under my jawline were likely to be reactive (due to them being tender) but referred me for an Ultrasound anyway. The US confirmed them as being reactive and not even worthy of a biopsy. I’m not saying the system is infallible (and mistakes are made), but they usually take a biopsy if there were any concerns at all. The absence of night sweats and the fact they are tender (not a painless lump) should be a source of reassurance I think.

The consensus of opinion was that I had a viral infection that took a while to go away.

Dave

Ive truly found comfort in this thread, it’s eased my anxiety but I’m still scared. 2 weeks ago I woke up with a dry scratchy throat as the day went by I realised when I swallowed I could feel a lump inside my throat when I went to touch my neck I felt a fleshy lump on the outside which was hard and swollen. After a day or 2 I couldn’t feel the lump as I swallowed but the lump on the outside was still there. I went to the GP 5 days after he felt the lump and said he was going to refer me to the ENT doctor for an ultrasound FNA. A couple of days after I noticed the lump was getting smaller and it was kind of moveable however, I also felt a pea sized hard lump underneath the original lump (this is now 1 week) which doesn’t move I don’t know if it’s a enlarged lymph node which has appeared suddenly or if it was hiding under the first lump. I felt fine when the lump first appeared and I haven’t been losing weight I did feel lethargic the week before the lump appeared but I believe that was because I was so busy at work. I’ve been going to work everyday, sleeping fine and waking up early. I just haven’t been able to go gym because I’ve been feeling lazy and demotivated. I did go once though and it was fine (I usually go gym 3/4 times a week)

I’ve been inspecting the lump and keeping notes everyday to show the doctor when I go for my scan, I even drew a circle around the first lump everyday but a rash appearead because I think I was using eyeliner so I stopped. On Sunday evening just gone my throat became really itchy and on Monday I developed  a really bad itchy sore throat. I managed to go gym and I spent an hour in there I felt proud because I was able to do my routine with a couple of longer breaks (1-2 minutes rest) which I thought was normal because I haven’t exercised consistently in 2-3 weeks. I also struggled to sleep because my nose was blocked and I had a headache so I took paracetamol to get myself to sleep. I woke up on Tuesday with a headache and when I went to the bathroom I coughed up really dark basically black phlegm. I was petrified I then coughed up a small amount of browny/ yellow phlegm with red specks. I called 111 and ended up in my GP again. My GP told me to say Ahhhh and said he couldn’t see I had a chest infection so I should just wait for my ENT appointment which is basically today (Thursday). He didn’t even feel my lump (located on the right side. It also moves as I swallow which means it’s fixated) he  just checked under my jaw for swelling. I asked him if he thought it was serious and he said he thinks it’s a virus but he wants to be sure. I was in there for 2 minutes before he sent me away! On Wednesday I’ve been coughing up phlegm but it’s either been white or really yellow, no blood which is good. 

I wont lie I keep googling my symptoms as I think it’s getting worse. When I noticed the lump I felt absolutely normal now I have a sore throat and coloured phlegm I keep seeing throat and lung cancer floating around when I google I know I shouldn’t. When I lie down my nose gets blocked which could explain why I struggled to sleep. I went gym on Wednesday and worked out for an hour again but I tried boot to over do it as my throat was hurting and I think exercise may have made it worse. I’m a very anxious person and I work myself up so I have been crying on and off since my first GP appointment last Monday. I can’t explain how scared I am, I’m only 25 and I’ve only told my sister because she had cancer 6/7 years ago and she’s now a nurse she keeps telling me to relax and I probably just have an infection or virus but I can’t. I wouldn’t know how to deal with it. I have no one to talk to and I’m absolutely scared. I’m going to try and sleep and so I can feel rested for my ultrasound. The blocked nose isn’t that bad tonight or should I say today! Sorry for the very long post!!!!

SA

hi sunshine em I was wondering about how you are now if your ok and your symptoms went or are the lymph nodes still there sorry 

I know your probably trying to live on from this 

I too would like to know how those are on this thread that havent posted if they got an answer? So many people dont return to update, which I hope is a good sign?!

I have spent hours today reading this whole thread! It has been a good help to my anxiety! Such a great support network it is here! 

I have had worrying symptoms for 2 and a half months now. On and off fevers, chills etc. I also have random lymph nodes that swell and get tender then after a few days the tenderness goes away. It has happened 4 times in the last 3 months which is concerning me. Once behind my ear, then the left side of my neck and twice in the right side! I currently have a tender swollen lump in my neck just under my jaw. I do have some small ulcers in my mouth at the same side the nodes are up but I dont think ulcers would cause swollen nodes? 

Im currently waiting to see haematology for about 6-7 weeks now. The doctor red flagged me but it was downgraded to 'urgent' meaning I should be seen in 8 weeks. I hope I hear soon!! The wait is so frustrating, the only tests I have had done so far is bloods, I have had them checked 3 times since these symptoms started and they have been all fine. Although from reading these forums I know that doesnt mean alls okay...

How is everyone else doing? Anyone in the same position as me?