enlarged lymph nodes - worried!

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

  • Hey Jolamine!

     

    I am very relieved! I was so worried when I sat in that doctors waiting room. 

    Yes this forum has been so wonderful, so many lovely people here! 

    I will definitely keep in touch and update on what’s going on.

    Thank you for the support 

    Best wishes

    Buffy x

  • Nice to see more people with a positive outcome!

    I have my long awaiting Dr appointment this evening.  Am scared in equal measures of being fobbed off again and being taken seriously :confused:  I really just want the lymph nodes to miraculously dissaprear in the next few hours so I don't have to deal with it all!!

    I've got a cough which has been hanging around for 3-4 weeks now following a cold, unsure if I should mention it, it maybe relevant but I don't want them to just say swollen nodes are down to that (they've been there much longer than the cough so can't be).  I've also been waking with stiff,sore fingers and hands for the last couple of weeks and had wondered about some kind of autoimmume condition.  Again, not sure whether to raise it though as I don't want to ditract from the swollen nodes as they are my main concern.  Ahh i really hate GP appointments at the best of times!!

  • Hey Becky!

    I am not a fan of doctors appointments either! 

    I would tell the doctor first how long you’ve had these swollen lymph nodes, are they in your neck? Or multiple places? If they’re neck the doctor will probably check the inside of your throat, so it’s best to mention the cold etc as well and how long you’ve had it.

    As for the autoimmune, it is possible, I have been ill for sometime and I tested highly positive for ANA in my blood which is indicative of an autoimmune disorder. I often wake with stiff and horribly painful joints but I have other symptoms too (I’m only 23!). The first joint pains started in my hands and fingers. I’m now seeing a rheumatologist and being tested for lupus and rheumatoid arthritis. I believe lymph nodes can swell due to autoimmune disorders, so you should mention that - the doc can do some blood tests. 

    I hope all goes well, swollen lymph nodes are very rarely cancer!

    Please keep us updated!! X

  • Thanks Buffy :)

    They are in my neck, throat, collar bone and groin and have been there for about 3 months now.  Gp seems pretty blase about it (which is both reasurring and frustrating!)  Seeing a different GP today, so I'll mention the other issue as you suggest.

    Ah poor you!  I'm early 30's and that seems bad enough, but stiff aching joints in your 20's just doesn't seem fair does it!! Hopefully your rheumatologist can get to the bottom of it for you.

  • Thank you Jolamine

     

    As a child I never liked having an unusual name but now I like it! You are so brave and strong i cant imagine how hard having cancer twice must have been,I am not a brave person at all  I never have been...as a child my dr always asked my mum  at appointments which one is it today ...the sooky one?( i have two sisters)I’ve never been a fan of needles or pain so I am glad this is over for me now ...as you know life can change from one day until the next so for now I live my life to the fullest as we never know what tomorrow brings.My best friend passed away from Leukemia when we were 17 so I’ve seen first hand how devastating cancer can be.

    I wish you all the best and hope you are better now and stay cancer free forever now! Take care of yourself! Your support is so nice for others on here.

    Take care 

    Miks 

  • Hi Becky

    i would definitely mention your other symptoms it may not be connected but could well be. When I had all the anxiety related to my lymph nodes my whole body ached bones,chest neck etc since having a clear result I feel normal again! Aches and pains gone!Stress can also affect us too in ways we wouldn’t expect,but let your dr check you properly.

    i hope your appointment goes well.

    Miks xxx

     

     

  • That’s okay! 

    That does sound frustrating, hopefully this new doctor will help. If it’s been three months they should at least do some blood tests to be sure! 

    Its been quite hard, thank you, I hope so too! Waiting for available appointments and test results is a long long process! 

  • Thanks Miks :)  You're right about stress, I think it definitely plays a part, that and becoming hyper aware of your body - I'm sure some of my symptoms are just me suddenly noticing things that might have always been there - makes me wonder if I'm going a bit mad sometimes!!

  •  

    Hi Becky,

    I hope that all goes well this evening.

    I understand why you want to dwell solely on your lymph nodes, but I would certainly mention your other symptoms too. Your doctor cannot give an accurate diagnosis without having the full picture.

    Kind regards,

    Jolamine xx

  •  

    Hi Miks,

    I am so glad to hear that you are living life to the fullest and hope that you continue to do so. It is so true that we never know what lies ahead of us. It must have been very hard for you when your best friend died of leukaemia at only 17.

    Dealing with 2 bouts of cancer is really not that different from dealing with one - we just have to get on with it. One thing is for certain and, that is that I certainly wasn't brave about it all.

    I sincerely hope that we can both continue to remain cancer free and can continue to enjoy our lives.

    KInd regards,

    Jolamine xx