enlarged lymph nodes - worried!

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

  •  

    Hi Katie,

    This sounds like pretty good news. I know that you won't relax totally until you get the second opinion from the neck specialist. I am sure that you feel happier knowing that your consultant is being thorough and is leaving no stone unturned.

    Did she give you any indication of how long you might have to wait for your ENT appointment?

    Don't forget to keep us updated. In the meantime, I am hoping and praying that there is nothing too untoward with the second cyst.

    Kind regards,

    Jolamine xx


  • Hi AriaM,

    I am sorry to hear that your nodes looked suspect on your ultrasound yesterday. I hope that you get your ENT and biopsy referral through soon.

    This is always a scary time and, the two weeks will seem like forever. Try to keep yourself as busy as you can to distract yourself from the wait.

    Don't forget to keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, 

    Yes it’s fabtastic how thorough she’s being, it is making me feel much more relaxed about the process of waiting! She said she was getting the second opinion on the day and would make sure the report was sent to my GP yesterday. However, I called my surgery today and they advised me that they don’t usually process results of scans and X-rays for 4-5 weeks as it takes a while to come through and for a doctor to check them? I found that a bit odd, considering it will contain a request for an onward referral. I will phone again at the beginning of next week as the consultant said the report should most definitely be with them by Monday, if not by today. 

    Just not thinking about it in between times. What will be will be! :) This group has been such a great help. 

    Hope you are well. Xx

  •  

    Hi Katie,

    What a pity that you didn't get your results today to save you the wait over the weekend. You have the right attitude in not letting this worry you in between times, as worry won't change anything. You are quite right that what will be will be, but I hope that it will be good news for you.

    Kind regards,

    Jolamine xx

  • Hello!

     

    I’m glad that the nodes were reactive and not anything sinister! 

    This thread (though I haven’t posted on it before) has been so helpful to read, so many positive endings to different stories! 

    I have been ill for sometime with a suspected autoimmune disorder and recently found a large(ish) swollen neck lymph node. I went to the Doctors today, he felt it and looked at my throat and believes it’s reactive (it’s about 3cm long). I will go back if it changes or doesn’t go away in about a month, I was initially worried about the size of it but after reading these it has put my mind at rest! Thank you! 

  • Thank you Jolamine

    I am actually the wife!!! Ha ha my name is a bit confusing I’m Mikayla!I want to thank you too I always see how caring and supportive your posts are for everyone sometimes we just need a little extra reassurance at times! I wish you all the best for a healthy happy future too! Have a great Summer!

     

    Mikayla xx

     

  • Hi Buffytvs

    yes I definitely am relaxed and like you couldn’t find anything positive on such big reactive nodes!!! So I am so happy my post has put your mind at ease a little but do follow up with your dr,for me having this biopsy  was the only 100% way I could relax and not worry!( once I had the results!!! The waiting for results was such an anxious week for me!) Who knows how much bigger it would’ve grown had I not had it taken out! So yes reactive can stay enlarged but definitely a good idea to watch it and monitor it with your dr!

    wishing you all the very best!

    take care

    Miks xxx

  •  

    Hi Buffy,

    I'm sorry to hear about the worries you've been having with your lymph nodes. You must be so relieved after seeing your GP. Here's hoping that it is definitely reactive and that it will settle down soon.

    I'm glad to hear that you are a bit more relaxed about your condition since reading posts on this site. It can be a great help at times.

    Keep in touch and let us know how things go.

    Kind regards,

    Jolamine

  •  

    Hi Mikayla - what a lovely name!

    I am sorry for my error. Thank you very much for your kind words about my input on the form. Having had 2 bouts of breast cancer in the past 10 years, I know how scary it can all be.

    If I can help anyone through this, I am more than happy to do so.

    Kind regards,

    Jolamine xx

  • Hello again Miks!

    It must be such a relief, I’m so happy for you, I bet it was really stressful...

    Yes it was so hard to find any information on large lymph nodes without cancer cropping up as the first cause!

    I agree, for now I’ll put it to the back of my mind and then later check again and go back to the docs if it’s still big. Thank you so much! 

    Buffy xxx