enlarged lymph nodes - worried!

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

  • Thanks Jolamine. I feel utterly lost today, so scared of potential outcomes. I'm praying for a positive outcome. Feeling sore and sorry for myself xx

  •  

    Hi Rachel,

    Can you take the children out for the day for a picnic and a play in the park or something similar? This should be good fun for all in this lovely weather and, should help to take your mind off things.

    Jolamine xx

  • Hi all, 

    Hope everyone is well. [@Miks77]‍  how did your ultrasound go? (If you don’t mind me asking!) 

    ive been feeling really rotten this past week, attended out of hours last night. I feel like this thread is the only thing I have to turn to, although I feel bad for always posting when my symptoms are most likely 99% not cancer-related. Sorry if anyone finds it insensitive. 

    Happy thoughts to all. Xx 

  • Hi Katie

    sorry to hear your not feeling good? What did they say at out of hours care last night? Did you have anymore tests done?

    My ultrasound last Thursday ( after ten days of antibiotics)unfortunately showed no decrease in the size of my biggest lymph node ,well only in the short axis by 3mm which they say is nothing  it’s 0.4 x0.3 x2.4cm ( I don’t understand how the measurement really works!)so next Friday , May 31st I go into hospital and have an excisional biopsy they just take the biggest lymph node out which they tell me is a Level II node and results will be 5 working days later. I’m absolutely terrified I just can’t think of anything other then cancer. I am not unwell at all and haven’t been except a horrible bout of tonsillitis in February and last year in March I had Influenza B virus which is when I first noticed the lymph node swelling,so I don’t know what to expect from this biopsy my fear is it’s a metastasis from somewhere in my body as I have no symptoms of lymphoma at all plus every blood test I’ve had comes back normal? 

    So I guess in about 2.5 weeks I shall finally have an answer after chasing drs for now 14months!

    wish you all the best and I will update you once I know more! 

    Take care

    Miks xx

  • Sorry you've not been well :(  were out of hours any help?

  • Miks it all sounds very stressful :(  like you, my main fear is of metastasis.  The GP said not likely as I have swollen nodes in my neck, jaw, collar bone and jaw - she said the fact that they are widespread makes it unlikely.  But I can't help but think maybe its just something really advanced, my mind runsaway with me! Blood results should be back Wednesday, if they're normal my GP wants me to just ignore the swollen nodes :confused:  I hope you get good news in the next couple of weeks, will keep everything crossed for you.

  • That sounds super stressful [@Miks77]‍  I’m sorry that you’re needing to go through all of the worry! It’s impossible not to think of the worst case scenario, and it doesn’t help that you’ve been dealing with this for over a year now!! I really, really hope you get positive answers and that your mind can be put to rest as soon as possible! 

    [@Miks77][@becky1984]‍  Out of hours weren’t great! I’ve been having lots of bowel issues which have reared their head again! Also lots of pain on my spine and behind my ribs. OOH doc says she thinks I need a colonoscopy and an X-ray of my spine and chest (although lungs sound clear) but advised me that this would need to be sought through my GP. So back again this afternoon. Not hopeful that I’ll have any onward referrals though as my GP has pretty much written me off as a hypochondriac (and pretty much wrote that in my clinical notes, which I complained about!). I also have endometriosis so lots of symptoms related to abdominal pain and bowel issues usually get put down to that with no further investigation. 

     

    Fingers crossed your bloods come back normal, Becky! I have my fingers crossed for both of you! Xx

  • Thanks  @becky1984 yep it’s so hard not to worry! I also have lymph nodes up on both sides of neck under jaw on both sides and a hard one in posterior triangle but they aren’t concerned about others as they say they are under 1cm but I’ve read metassis can also be in smaller nodes?Anyhow I just have to wait a couple more weeks and then see. I will definitely keep you updated! I hope you also get to the bottom of your lymph node problems too and fingers crossed your bloodwork is all fine!

    take care and will chat soon xx

     

  • Hi Katie

    oh that doesn’t sound good definitely go back to your GP, I know what you mean I have been made feel like I’m going crazy over the last year ,have even been given referrals for pyschosymatic treatment, prescription’s for antidepressants  and was always told my lymph nodes were fine just reactive .I changed dr’s three times over the last year as  I  just never felt right about them as they constantly throb and I also get an aching neck especially if I touch them,(which I am guilty of doing a lot!) Now that they’ve grown they  finally take notice, I just hope it’s not to late.Let me know how you get on at GP I hope you get your referrals for colonoscopy and X Ray soon.

    wish you a lovely evening!

    take care xx

  • I’m so glad they’ve finally sat up and listened to you! It’s a shame that it has taken 3 different GPs to actually let your concerns be heard and taken seriously. I think it’s easy for people to chalk up symptoms to depression/anxiety (and sometimes rightly so) but I am a firm believer that we all know our own bodies and if something is more than psychosomatic to us it should be investigated. 

    The GP I saw today was great (finally). More bloods tomorrow, I’ve to send a stool sample away & he’s referred me for an abdominal ultrasound! I’ve to go back and see him in 2 weeks to see where we are at with my symptoms. Hopefully I’ll have some answers soon! 

    Hope everyone has a nice day & that the sun is shining wherever you all are! :) x